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  1. Replies
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    How are you getting along with this?

    How are you getting along with this?
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    Hi Molly, Thanks for sharing- I'll be interested...

    Hi Molly,
    Thanks for sharing- I'll be interested to hear how you get on. I'm currently in the middle of trialing another drug (hydroxychloroquine) but I am considering trying Protopic as well since...
  3. Saying that "western medicine has nothing to...

    Saying that "western medicine has nothing to offer" is a ridiculous claim.
    Organic/"natural" ingredients are not always better for skin than synthetic/chemical ingredients. Many natural ingredients...
  4. There is no cure to rosacea and what you're doing...

    There is no cure to rosacea and what you're doing is nothing novel.
  5. I think a lot of people on here have the same...

    I think a lot of people on here have the same symptoms and agree they seem to be related to rosacea but not the "typical" case. The evening flush could be a lot of things- but in general people's...
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    Thanks for the update on your progress- hope it...

    Thanks for the update on your progress- hope it continues to work for you.
  7. Do you think facial erythromelalgia and...

    Do you think facial erythromelalgia and neurogenic rosacea are different in some ways? My symptoms sound spot on to yours.
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    Wow, that's good to hear since I also have...

    Wow, that's good to hear since I also have constant swelling in my face, which might bother me even more than the bad flushing. Did your primary care doctor prescribe it to you? I wonder if there's...
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    Thanks so much to everyone who responded and for...

    Thanks so much to everyone who responded and for the great advice. I agree when I describe my symptoms as just "flushing" to doctors they probably think superficial redness = cosmetic concern. ...
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    Hydroxychloroquine dosage

    Hi all,
    Question for people who have tried hydroxychloroquine for flushing/neurogenic rosacea. I was just prescribed 200 mg/day - I'm wondering if this is a large enough dosage? Seems like most...
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    That's interesting about the diet helping. I've...

    That's interesting about the diet helping. I've been pretty strict about what I eat since this flushing started but not to that extent- I might try that for a while just to see if it helps. I've done...
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    Unfortunately I haven't really, though I will say...

    Unfortunately I haven't really, though I will say eating lighter in the evening (I try not to eat at all after 6pm) has helped with flushing at night laying down to sleep. My next step is to try...
  13. I definitely wouldn't use the machine made for...

    I definitely wouldn't use the machine made for legs on your face. IPL should be done in a dermatologists' office.
    Mine got worse after a series of IPL but it's beneficial for some.
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    I think you're lost... this is a rosacea forum

    I think you're lost... this is a rosacea forum
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    Sticky: I've seen hydroxychloroquine/Plaquenil mentioned...

    I've seen hydroxychloroquine/Plaquenil mentioned on here several times. It is also mentioned in this article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3692271/

    I've tried to search for it on...
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    Cured in 3 days? Well that made me laugh out loud...

    Cured in 3 days? Well that made me laugh out loud this morning.
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    I think I have the same issue. It's possible my...

    I think I have the same issue. It's possible my neurogenic rosacea coincidentally started while I was doing IPL treatments but I do feel like there is at least a chance that the treatments aggravated...
  18. Most people need maintenance laser treatments...

    Most people need maintenance laser treatments about once a year. Capillaries are stubborn and have a tendency to return.
  19. Thank you for the recommendation!

    Thank you for the recommendation!
  20. Thank you! I will look into contacting one of...

    Thank you! I will look into contacting one of these doctors, I think that could be really helpful.
  21. That makes sense- thank you for the tip!

    That makes sense- thank you for the tip!
  22. I haven't really looked into Lyrica yet- I...

    I haven't really looked into Lyrica yet- I thought that was more for pain, or is that not the case? I actually don't have the pain symptom, which seems like it's fairly common with neurogenic...
  23. Looking for a derm/Dr. that understands neurogenic rosacea

    I'm wondering if anyone can recommend a doctor that is willing to prescribe treatments beyond the usual meds for rosacea, ideally in or near PNW USA? My PCP and the dermatologists I've seen are...
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    Yes, this is something mirtazapine is good for. I...

    Yes, this is something mirtazapine is good for. I still have to fall asleep really elevated- I bought a wedge pillow that helps with this- but otherwise I don't have an issue with flushing in the...
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    Sorry to hear your skin started acting up again...

    Sorry to hear your skin started acting up again after you had it under control. Is the colder weather the only factor you think could have caused it?
    My skin's main trigger is heat, so it's usually...
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