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  1. Thread: Nose pain?

    by laser_cat
    Replies
    33
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    5,167

    keep in touch, momof. Yes i'm on 120 duloxetine...

    keep in touch, momof. Yes i'm on 120 duloxetine and it helps. Weirdly it helps with the flushing and swelling not just pain for me.

    I'm layering antibiotics now, with ketotifen. Trying minocycline...
  2. Thread: Nose pain?

    by laser_cat
    Replies
    33
    Views
    5,167

    So I've noticed this more with myself - pressure...

    So I've noticed this more with myself - pressure on the sides of the bridge of the nose. Not sure if it is similar to anyone else. I notice with some meds it can feel like it drains out a bit and...
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    CBD topical decreased my flushing threshold...

    CBD topical decreased my flushing threshold dramatically (bad). Oral CBD i think did the same, but at least it didn't burn my sensitive skin. Lots of CBD topicals come with other stuff like menthol,...
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    That's great. I hope it continues to work for you...

    That's great. I hope it continues to work for you . And even better at the higher dose.

    I got a blister from laser years ago and it is otherwise a very sensitive spot on my face. I feel like the...
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    brain zaps happen with any SNRI or SSRI as you...

    brain zaps happen with any SNRI or SSRI as you taper off (can happen). Not a side effect as you go up or are on them. FOr me only an issue a month while I was down to 0 mg. It's like when you read...
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    How are you doing with the ketotifen Boris? My...

    How are you doing with the ketotifen Boris?

    My doc just called in an rx to a compounding pharm nearby.

    Thanks.
  7. Replies
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    983

    I like it. It helps me so much and I'll happily...

    I like it. It helps me so much and I'll happily be on it for life. Just start slow. I've weaned off a couple times and it went ok as long as it was a slow taper - especially when you get near 0. I...
  8. Thread: rhinophyma

    by laser_cat
    Replies
    3
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    606

    I agree it is best to talk to a doc about...

    I agree it is best to talk to a doc about accutane for rhynophyma. I THINK: It can reverse some of it if not too severe and possibly limit progression. I asked my doc about limiting progression of my...
  9. Replies
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    Not to hijack this thread when I'm not the OP - ...

    Not to hijack this thread when I'm not the OP -

    quick update -

    I cannot tolerate any accutane without other anti-inflammatories like flagyl in the background. I've been on/off flagyl enough...
  10. That's interesting. I definitely dont have mites...

    That's interesting. I definitely dont have mites as my issue, as i did ivermectin (oral) course. Glad i did it tho as it is low hanging fruit.
    I actually was specifically not rx'ed Minocycline since...
  11. I'm so sorry. I wish the impact of rosacea,...

    I'm so sorry. I wish the impact of rosacea, flushing, and similar were more well known by doctors

    CTD = connective tissue disease, like lupus or dermatomyositis. There are others. Best to see a...
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    So sorry for your mother

    So sorry for your mother <3 Sending thoughts for peace and comfort your way.

    I am glad it helped you so far. keep up the updates ... but take care of yourself first xx

    I'm on the fence about...
  13. Well, i would think you'd have to fly out every...

    Well, i would think you'd have to fly out every month :p I think you could find a local doc if you look enough. Youve tried large teaching hospitals? My impression is maintenance doses are not...
  14. Thanks for understanding! I'm sorry about you...

    Thanks for understanding! I'm sorry about you being housebound. Similar boat for me. Very very debilitating over here.

    Also, we are smart cookies lol who know our condition - wish docs would...
  15. Ugh just read something from my local doc - she...

    Ugh just read something from my local doc - she thinks 5 mg / day of accutane won't do anything - that I need 40 mg / day for my weight of 45 kg (huh?). It's frustrating how I'm not listened to out...
  16. Thanks for explaining all that. Sorry you've been...

    Thanks for explaining all that. Sorry you've been dealing with skin issues for so long. I'm glad accutane helped you for as long as it did.

    My docs in CA have realized I'm a very difficult case...
  17. I just cut 10 mg capsules with scissors, save the...

    I just cut 10 mg capsules with scissors, save the other half in the fridge or throw it away. Hopefully that doesn' alter the efficacy of anything. Getting them out of the over-the-top packaging is...
  18. My derm also rx'es accutane for lupus - starts at...

    My derm also rx'es accutane for lupus - starts at 10 mg / wk or so for that and goes up. Just an fyi! Glad you are finding it ok so far! I still have to find my dose, or combination with antibiotic /...
  19. I did a small trial of accutane in Dec and am...

    I did a small trial of accutane in Dec and am currently 3 wks into my "real"? trial.

    First trial: a few weeks of 500 mg BID of flagyl and then started accutane (a few days of 5 mg / day, a few at...
  20. Thread: Nose pain?

    by laser_cat
    Replies
    33
    Views
    5,167

    Yikes!!

    Yikes!!
  21. Thread: Nose pain?

    by laser_cat
    Replies
    33
    Views
    5,167

    At my worst i felt like i had a lymph?...

    At my worst i felt like i had a lymph? inflammation bubble? lodged INSIDE my nose bridge (you couldn't see it), like i just drank water and laughed, sort of. It was uncomfortable and i was worried it...
  22. Thread: Nose pain?

    by laser_cat
    Replies
    33
    Views
    5,167

    I agree with edema / lymph building up. At the...

    I agree with edema / lymph building up. At the worst for me it was like hardened wax getting wedged between sides of nose / eyes. It's not getting worse for me anymore but it is still there and a...
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    How did you get it? Are you in US? That's great...

    How did you get it? Are you in US? That's great so far.
  24. Thread: Nose pain?

    by laser_cat
    Replies
    33
    Views
    5,167

    Sort of, maybe. I had intense pressure / pain on...

    Sort of, maybe. I had intense pressure / pain on the bridge of my nose - almost like the bones were changing the force was so much. This was decided by doctors to be unrelated to rosacea / rosacea...
  25. Replies
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    That's too bad about the ketotifen. Unfortunately...

    That's too bad about the ketotifen. Unfortunately it seems like anything even presumably helpful things can be unhelpful for some of us. ketotifen seems to be used in solid edema sometimes when...
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