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  1. That's excellent news that it's working. I have...

    That's excellent news that it's working. I have also just been prescribed isotretinion at a very low dose 5mg 3 x a week for persistent acne and lupus rashes.

    My previous experience with it was...
  2. I've been recommended to try prp treatments so...

    I've been recommended to try prp treatments so very curious to see how you got on with them. Did it help with flushing, permanent redness or pain?

    Also did you experience any side effects or...
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    I definitely think it's worth a try if you have...

    I definitely think it's worth a try if you have exhausted all other options. However, Prof Chu who initially diagnosed me did say that he had seen quite a few patients develop flushing and red skin...
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    I was on a very low dose of isotretinion/...

    I was on a very low dose of isotretinion/ accutane for many years for persistent acne. My dose was 10mg a week. Unfortunately I did get severe facial flushing, swelling and pain on my cheeks while I...
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    Thanks laser_cat. That's really interesting...

    Thanks laser_cat.

    That's really interesting that the inflammation for you is pointing more to an autoimmune angle as well. I did a myositis antibody screen recently which showed only some weak...
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    Laser_cat sorry it's taken me so long to get...

    Laser_cat sorry it's taken me so long to get back. Thanks for the detailed response.

    Yes they are their own micro environments which is a handful to manage when nose, cheeks and ears all flush and...
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    Laser_cat really appreciate the update. That's...

    Laser_cat really appreciate the update.

    That's great that you've been making progress with immunosuppressives. Are these improvements just for the nose flushing? Or do they also help for the...
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    Thanks antwantsclear. Just replied to your PM....

    Thanks antwantsclear. Just replied to your PM. Not sure if it went through as it's not showing up in my sent items. Let me know if you haven't received it.
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    Thanks laser cat! 70-80% success rate is amazing!...

    Thanks laser cat! 70-80% success rate is amazing! I will be so happy with that. That's definitely making me feel hopeful.

    The neurologist is now trialling me on Cymbalta/ duloxetine. If this...
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    Good luck with the Imuran laser cat. I really...

    Good luck with the Imuran laser cat. I really hope you get positive results from it.

    I've finally been seen by a rheumatologist who thinks the flaring/ EM may be secondary to an underling...
  11. Thread: Antibiotics

    by owldog
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    I agree with antwantsclear. I think you really...

    I agree with antwantsclear. I think you really need to see a specialist. I'm sorry to hear that you're not getting the help you should be getting from the right places.

    I also don't think a...
  12. Thread: Vegan Diet?

    by owldog
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    I'm so happy your symptoms have gone due to the...

    I'm so happy your symptoms have gone due to the ZZ cream. I've actually placed an order and hopefully going to try it out soon. Did you your skin get worse before it got better? I'm scared about the...
  13. From my experience I would probably not recommend...

    From my experience I would probably not recommend low dose accutane if you want to improve the nerve pain.

    I actually got all the nerve pain and severe flushing while on low dose accutane for...
  14. Thread: Vegan Diet?

    by owldog
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    I actually developed rosacea suddenly after being...

    I actually developed rosacea suddenly after being on a strict vegan diet for a year. I was very ill and bloated all the time. I have been tested for SIBO and I also have ibs. I don't think the high...
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    That's great! Yes please update with feedback. Is...

    That's great! Yes please update with feedback. Is she at 22 Harley Street? I'll try calling next week to book an appointment

    I've been really anxious since Prof Chu has left too as he was the...
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    Thanks laser cat. Yes for me the days of placebo...

    Thanks laser cat. Yes for me the days of placebo are the worst too.

    The best time in terms of flares for me is the first 10 days of my pill pack once my period has ended. I've mentioned this to...
  17. Yes you're right. I just never put two and two...

    Yes you're right. I just never put two and two together as I've had increased flushing recently.

    Got 3 boxes of this stuff as well that I'll probably have to throw out and see if I can get another...
  18. For what I've researched it does seem that very...

    For what I've researched it does seem that very similar medications are prescribed for both. Unfortunately here in the UK neurogenic rosacea is not really recognised. So most of the derms I saw...
  19. Just noticed this post, the pharmacy changed my...

    Just noticed this post, the pharmacy changed my mirtazapine to the nomad brand as well and I've also noticed an increase in flushing. Really weird I thought most generics should be the same.

    Did...
  20. Hey, I have something very similar. I was on...

    Hey, I have something very similar. I was on accutane too and it's been a year since I stopped. Mine looks very similar to your photos. I get the flaring/ flushes on my ears and really bad on my...
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    Thanks so much for your reply laser cat. I will...

    Thanks so much for your reply laser cat. I will definitely try some propranolol.

    Opare, did the MSM worsen your symptoms at all at any point? I had headaches as well as insomnia from it even...
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    That makes total sense! My skin is like leather...

    That makes total sense! My skin is like leather too since I've been on clonidine. It's also got a really weird waxy texture in the areas that I flush. My wound healing is really delayed as well.
    ...
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    This is what I've been thinking. That possibly...

    This is what I've been thinking. That possibly clonidine is somehow over constricting the blood vessels and the cold is continuing to damage the nerves by starving them off oxygen and nutrients...
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    Thanks for your reply! It's such a minefield...

    Thanks for your reply! It's such a minefield trying to find a treatment that will work without progressing this beast and making things worse. And if I didn't risk anything and tried nothing I'll...
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    That's exactly the same as me. I get blood spots...

    That's exactly the same as me. I get blood spots from aspirin all over my arms and face so I avoid taking it. MSM has done the same along with some broken capillaries.

    Annoyingly it has also woken...
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