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  1. Replies
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    Aww! I'll buy you the 85% myself!!wink1: It's...

    Aww! I'll buy you the 85% myself!!wink1:

    It's so important to me to support others with this ****** disease (as others on here have supported me), it's called 'paying it forward' isn't it?yes:
    ...
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    I sincerely hope that you find a way to get a...

    I sincerely hope that you find a way to get a prescription!

    J
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    I am 'getting there' my nose sensitivity...

    I am 'getting there' my nose sensitivity (tingling not redness) is often and indicator, and I still have that!

    Overall I would say 85% better with LDN!

    As for my peak, probably at about 3...
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    Awww! Bless you! So delighted! Remember that I...

    Awww! Bless you! So delighted!

    Remember that I am almost 8 months into my LDN journey, slowly so slowly with this drug I think! wink1:

    You too!

    Judy
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    Hello Angela I am pleased to report things...

    Hello Angela

    I am pleased to report things have settled down again since reducing to 2 mg, hope that you are finding the same.

    J
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    I run my own home-based company, there is no way...

    I run my own home-based company, there is no way that I could have gone out to work over the years!

    I echo your sentiments Angela................Hang in there Opare! We are all in this together!
    ...
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    Angela, Totally agree, 2 mg appears to be a...

    Angela,

    Totally agree, 2 mg appears to be a much better dose for me, my main issues are humidity and emotional changes (happy/sad/excited/nervous) LDN certainly helps with this.

    J
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    Dropped back to 2 mg (over 7 months on); started...

    Dropped back to 2 mg (over 7 months on); started on 0.5 mg which I would strongly advice and increase s-l-o-w-l-y.
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    A resounding YES! for me! J

    A resounding YES! for me!

    J
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    Hello Lizzy I thought it was you; I absorb...

    Hello Lizzy

    I thought it was you; I absorb meds really well, so it's no great shock that 3 mg cause me nerve pain and flushing, don't think I will ever get beyond 2.5 mg.

    I started on 0.5 mg...
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    Totally agree, cannot remember who on here was...

    Totally agree, cannot remember who on here was advised to start on 4.5 mg & had terrible trouble!!

    Bear in mind that I have been on LDN for over 7 months and am STILL on 2 mg!!

    How are you...
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    Hello Angela Yes, it looks like beyond 2.5 mg...

    Hello Angela

    Yes, it looks like beyond 2.5 mg is a no, no for me!

    Had a couple of rough days, and a bit humid here in the UK ( a real trigger for me!).

    How are you doing?

    J
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    I think I was doing better on just 2 mg and this...

    I think I was doing better on just 2 mg and this the 2nd attempt at 3 mg, which doesn't seem to suit me.

    I get that horrible sore-type nerve pain (no flushing).
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    Fab news! It's a very fine line isn't it? I...

    Fab news! It's a very fine line isn't it?

    I guess that's why it's called LOW DOSE!!!wink1:
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    Dropped mine from 3 mg (split dose) to 2 mg back...

    Dropped mine from 3 mg (split dose) to 2 mg back to evening and all is well!! wink1:

    J
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    .................in my experience Angela. any...

    .................in my experience Angela. any adverse effects from taking a slightly higher dose, will soon be resolved when you drop back.yes:

    J
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    Update!

    Tried split dose 1.5 mg 12 hours apart; had some sensitivity and that sore nerve pain return!

    Back to evening dose of 2 mg.

    J
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    I am not the person to advice you, I had a severe...

    I am not the person to advice you, I had a severe reaction to beta blockers and I prefer to use breathing exercises for anxiety.

    Perhaps others can chime in??

    J
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    Everyone is different & I guess you never know...

    Everyone is different & I guess you never know until you try.

    Most meds give ME side effects!!

    J
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    Clonidine did nothing for me (except hair loss!)...

    Clonidine did nothing for me (except hair loss!) and actually made my flushing worse!

    J
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    I just felt after 7 1/2 months, I could increase...

    I just felt after 7 1/2 months, I could increase to my optimum dose (for me anyway!).

    I am still experimenting with the split dose, however strongly feel that I will reduce to 2 mg and nightly...
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    What negative results did you get when you went...

    What negative results did you get when you went up to 3 mg Angela?

    Judy
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    Please bear in mind, that with LDN a lower dose...

    Please bear in mind, that with LDN a lower dose seems to be the way to go, many of us don't get past 3 mg, and slowly does it!

    Hope that you can get yours!

    J
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    No problem: Eventually sleep improved (vivid...

    No problem:

    Eventually sleep improved (vivid dreams for a while, but eventually eased off).

    Tolerance improved to: Hairsprays,perfumes, cleaning products, scented candles.

    Computer screen...
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    Hello Angela Please increase your dose slowly,...

    Hello Angela

    Please increase your dose slowly, I increased mine to 3 mg after 6 months of steady increases & sensitivity and mild nerve pain returned!

    I also have many more hot flushes since...
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