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  1. Replies
    6
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    4,018

    If only your doctor and mom spent a day in your...

    If only your doctor and mom spent a day in your shoes, they would be changing their tune pretty quick!
    Anti-malarials were no help to me. Just started a beta blocker today. I wish I could help you...
  2. I live in Canada and just got my first jar of...

    I live in Canada and just got my first jar of honey.
    Told my wife if it does not help my skin, she can put it on her toast.
    Bought it online from here:

    http://www.wedderspoon.ca/shop/home.php
    ...
  3. Replies
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    18,849

    It gave me massive flushing like I had never...

    It gave me massive flushing like I had never experienced before.
    From my face down to my stomach. Intense nasty pins and needles
    burning flushing. It got a bit less after the first week but was...
  4. Replies
    468
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    123,220

    Well its been 2 months since I started the...

    Well its been 2 months since I started the Mepacrine.
    It has not done a thing for me.
    Flushing/burning and redness is now worse than ever.
    It did not help with my fatigue nor muscle and joint...
  5. Replies
    468
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    123,220

    I've been taking it daily for almost 4 weeks now....

    I've been taking it daily for almost 4 weeks now.
    Nothing to report either good or bad.
    Has not helped flushing or redness but there have
    been no negative side effects either.
    It does not seem to...
  6. Replies
    468
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    123,220

    I have been on mepacrine for 2 weeks now,...

    I have been on mepacrine for 2 weeks now, 100mg/day.
    Main side effect has been insomnia but it is lessening now.
    Also, several mornings a week I start the day with what seems like the
    beginning of...
  7. Replies
    468
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    123,220

    I finally got my prescription and started...

    I finally got my prescription and started yesterday.
    Dose is 100mg/day quinacrine hcl.
    Took my first pill before bed and got a terrible sleep.
    Now I will take it in the mornings and hope I dont...
  8. Replies
    468
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    123,220

    I am pulling for you EK1! I hope that soon you...

    I am pulling for you EK1!
    I hope that soon you start getting some good results.
  9. Replies
    468
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    123,220

    EK1, I have sent you a PM. I am trying to find...

    EK1, I have sent you a PM.
    I am trying to find out the name of the derm who prescribed the Mepacrine for you.

    Thanks.
  10. Replies
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    4,175

    Kinda odd how all the 'after' shots are bright...

    Kinda odd how all the 'after' shots are bright and washed out looking.
    Makes you wonder.....

    Still, it would be great if it really works.
  11. Replies
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    2,229

    Give your head a shake and try to put this in...

    Give your head a shake and try to put this in perspective.
    Calling the kid a bastard and wanting to kill him for accidentally
    hitting you is out of line.

    People without rosacea have no idea how...
  12. Replies
    468
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    123,220

    Some good information on 3 anti malarials here in...

    Some good information on 3 anti malarials here in regards to lupus.
    ...
  13. Replies
    468
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    123,220

    Interesting and unsettling article. Its too bad...

    Interesting and unsettling article.
    Its too bad Quinacrine has not been used by enough people over the years to confirm this theory.

    It seems that Plaquenil is used quite extensivly for treating...
  14. Replies
    468
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    123,220

    I am doing my best to get my hands on...

    I am doing my best to get my hands on Mepacrine/Quinacrine and it looks promising
    that I will, so it will be interesting to see if there are any positive results among the three
    people who will be...
  15. Replies
    468
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    123,220

    I just talked to me GP about prescribing...

    I just talked to me GP about prescribing Quinacrine and to my suprise he agreed to try it
    for a month and see if there are any worthwhile results. Unfortunately the local pharmacist
    says it is not...
  16. Fole25: I feel that I gave laser genesis a...

    Fole25:

    I feel that I gave laser genesis a fair try with a reasonably competent technician
    but it did not help me at all. Now, 2 years later, my condition continues to worsen.
    I do not think...
  17. Replies
    19
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    5,697

    Take care when using beta blockers if you are...

    Take care when using beta blockers if you are prone to bad allergic reactions.
    A doc perscribed me beta blockers until I reminded him that I was
    getting monthly allergy shots. He promply changed...
  18. Replies
    468
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    123,220

    Does Doctor Chu have a website? I would like to...

    Does Doctor Chu have a website?
    I would like to try to collect any info or documents supporting the use
    of mepacrine for rosacea/flushing so that I have something to back me
    up at my next doctors...
  19. Replies
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    2,467

    I did it on my ears, no effect.

    I did it on my ears, no effect.
  20. Here is a link to the device I built. Hopefully...

    Here is a link to the device I built.
    Hopefully it has some information that may be of some use.

    http://www.rosaceagroup.org/The_Rosacea_Forum/showthread.php?t=11185
  21. Replies
    4
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    1,490

    I tried MT2 last year to see if it would help...

    I tried MT2 last year to see if it would help mask my redness and possibly help my skin.
    It does help you tan, there is no doubt as my wife also went on it because she is very pale.
    She ended up...
  22. I was just kidding, you know, tongue in (red)...

    I was just kidding, you know, tongue in (red) cheek.....

    Besides if this stuff built big muscles I would be spraying
    it on my biceps and my.....um, nevermind, not gonna go there.... : )
  23. Well I used it one more time, and it worked good...

    Well I used it one more time, and it worked good and had no side effects or irritations.
    I know I cannot use it long term (damn wish I could) but it was nice to see my condition
    actually improve...
  24. Good results using NASONEX nasal spray on my face

    After reading about people using sinus sprays that contain Oxymetazoline on their faces with some success at knocking back permanent redness.

    I dug out an old bottle of nasal spary Nasonex (it was...
  25. Replies
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    216,687

    Got ebay figured out (thanks to my wife) and now...

    Got ebay figured out (thanks to my wife) and now have some Prosacea on the way.
    Thanks again for the Ebay link.
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