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  1. Thread: Soolantra

    by SaraL
    Replies
    1,360
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    521,313

    Finally decided to go with taking oral meds to treat the demodex

    I haven't posted for a while, I started Soolantra in January and while it worked, I think it has only been able to provide results for about 3-4 months. I can't really explain why, but I think some...
  2. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    Thanks for sharing your experience Elaine, sounds...

    Thanks for sharing your experience Elaine, sounds really promising. It makes sense that the cream may not reach deep enough to eliminate the demodex brevis mites. I was considering talking to my dr...
  3. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    about to hit 4 month mark on Soolantra

    I started Soolantra in the beginning of January. Before treatment I had dry, sandpaper like skin, white spikes of skin coming out of each pore with red, sensitive skin. I talked with my Dr about...
  4. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    Hi Lou, Don't get frustrated, you'll see...

    Hi Lou,

    Don't get frustrated, you'll see results if your issue is mite related,but it just takes a while. I'm on day 21 and the die off symptoms are just now starting to subside. The first 4...
  5. Replies
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    680

    How long should Soolantra be used for?

    Hi i'm wondering if you've seen positive results from Soolantra, were you able to completely go off the prescription and maintain results or did you taper and use every other day or 1-2x per week to...
  6. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    Hi lejaja I was just reading a paper on...

    Hi lejaja

    I was just reading a paper on demodex treatment and some of the patients still had die off symptoms at 4 weeks but were completely clear at 4 months after use of either daily topical 1%...
  7. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    Day 13 of Soolantra

    Today is day 13 of using Soolantra and it's been an interesting journey so far. I'm using for what I suspect was a massive demodex infestation called pityriasis folliculorum, which caused really...
  8. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    how much Soolantra is everyone else using? these instructions are confusing

    When I talked to the pharmacist he mentioned applying a thin layer, but I found this from Soolantra's instructions

    "Apply Soolantra Cream to the affected areas of the face once a day. Use a...
  9. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    Soolantra day 6

    The irritation and itchiness from yesterday is gone and today i've woken up with a ton of very tiny breakouts. i wouldn't call them pimples or pustules, but almost looks like the hair follicles or...
  10. Thread: Soolantra

    by SaraL
    Replies
    1,360
    Views
    521,313

    Soolantra day 5

    i've been on Soolantra now for 5 days, i'm feeling really itchy today and a little more red than normal. i'm hoping this is the start of a die off and not irritation from the cream
  11. Alright, I finally just picked up my...

    Alright, I finally just picked up my prescription. I'm nervous to start. Are you guys using your normal skincare with this? I typically just wash my face once at night with bioderma cleansing milk...
  12. Any extra steps I should take to eradicate demodex mites?

    I was prescribed Soolantra today. I've made a list of things I need to do


    1. Wash blankets and buy new sheets
    2. Buy new pillows
    3. Toss out skincare products that are in jars (not sure if...
  13. that video is disgusting and fascinating at the...

    that video is disgusting and fascinating at the same time lol. I talked to my Dr today about all my skin issues and demodex mites, he really didn't know much but read what I brought him and was...
  14. Well i've read a ton and printed out material for...

    Well i've read a ton and printed out material for my dr. I hope he takes me seriously. After more research I found there's an association between using elidel, protopic, steroids and...
  15. Thanks for the links Tom. Dryad, you're right I...

    Thanks for the links Tom. Dryad, you're right I think we are talking about the same issue but just that everyone's system reacts differently to the high levels of mites, which is why some have...
  16. Hi Dryad, This is a different issue...

    Hi Dryad,

    This is a different issue altogether. It's a build up of scaly skin caused by a massive demodex infestation of hair follicles, another member mentioned her experience here
    ...
  17. I'm curious how many of you have been diagnosed with pityriasis folliculorum?

    I'm almost 100% certain this is what I have. There's been non stop dryness, the classic white spikes of dry skin coming out of every follicle (which I now know may be clusters of demodex tails),...
  18. Wow this sounds exactly like what I have. I've...

    Wow this sounds exactly like what I have. I've had issues with the weird, tiny skin flakes that don't respond to moisturizer, oils, vaseline, manual and chemical exfoliants, etc.. My entire face...
  19. Found out my facial redness could be from Cushing's disease

    I don't visit here anymore because I don't believe my facial redness is just "rosacea" None of the treatments I've tried work, plus I don't just have a red face, I have other symptoms like fatigue,...
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    Hi there again, First off, I'm not sure that...

    Hi there again,

    First off, I'm not sure that you can demand a general practioner to prescribe those meds to you. And, you probably wouldn't want them to, since they wouldn't know the correct...
  21. Replies
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    Benzoyl peroxide is very harsh on the skin and...

    Benzoyl peroxide is very harsh on the skin and would only make the redness worse. Your dr. is very wrong in saying that nothing can be done. I'm really sorry that a dr. would behave like that, a dr...
  22. Thanks Melissa, I'll keep updating my progress...

    Thanks Melissa,

    I'll keep updating my progress on here, only because I know that some others may experience face flushing and other similar symptoms to rosacea, as a result of mold exposure. So...
  23. Replies
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    6,136

    The $25 Oracea card from my derm worked. I...

    The $25 Oracea card from my derm worked. I called Galderma today, inquiring about the metrogel card. For the uninsured, you will receive $80 off the metrogel prescription. I will update again once...
  24. Thanks everyone for your responses. It looks...

    Thanks everyone for your responses. It looks like I will be living with my mom until I feel better. It seems that I may still be reacting to mold spores in our new environment, we moved out, but...
  25. Replies
    5
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    6,136

    Thanks for the response. Do you happen to know...

    Thanks for the response. Do you happen to know how long it takes for the cards to arrive? Also, do you know if these will work since I do not have insurance?
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