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  1. Thread: Plaquenil..

    by mutantfrog
    Replies
    53
    Views
    32,307

    Following up

    Hi :)

    Following up on my progress with plaquenil.

    Originally I was supposed to do 400mg/day for a month and then step back to 200mg/day. With the headaches and such (fluid behind my ear but no...
  2. Thread: Plaquenil..

    by mutantfrog
    Replies
    53
    Views
    32,307

    Re: weight loss: heh yeah no complaints really...

    Re: weight loss: heh yeah no complaints really from me, either. I haven't lost any since my last post, and my appetite seems to have returned to normal. So - I'm fine with whatever, as long as I'm...
  3. Thread: Plaquenil..

    by mutantfrog
    Replies
    53
    Views
    32,307

    Follow up question - cutting the pills?

    Follow up question:

    Can the pills be cut in half? They look like tablets.

    I'm trying to think of how to get closer to the 330-350mg dosage that is appropriate for my body weight.

    I'm not...
  4. Thread: Plaquenil..

    by mutantfrog
    Replies
    53
    Views
    32,307

    shantelle, Yes you are correct -...

    shantelle,

    Yes you are correct - Dermatomyositis. I can never remember how to spell the darn thing.

    I've been on Plaquenil for 5 days now. I was told to do 400mg (at once or split, depending...
  5. Thread: Plaquenil..

    by mutantfrog
    Replies
    53
    Views
    32,307

    shantelle, I had a very bad flare recently...

    shantelle,

    I had a very bad flare recently (swollen red numb fingers) and was definitively diagnosed with DM rather than just UCTD. My ESR was elevated - 22, not too dissimilar from yours.
    ...
  6. Thread: Plaquenil..

    by mutantfrog
    Replies
    53
    Views
    32,307

    OMG. That is me to a T!!!!!! I was recently...

    OMG. That is me to a T!!!!!! I was recently diagnosed with Undifferentiated Connective Tissue Disease (they did a biopsy of my finger). I also struggle with rosacea/POD, allergies, asthma and...
  7. Replies
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    Naninska, I'm not entirely certain was is...

    Naninska,

    I'm not entirely certain was is ok/not ok to take while breast feeding. But, here are some other things which I've found to help my POD flares (I haven't had a flare in about 18mo),...
  8. Replies
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    109,209

    mrsmoof, Sorry to hear the Singulair hasn't...

    mrsmoof,

    Sorry to hear the Singulair hasn't done much for you. It's been very helpful for me in conjunction with other therapies.

    I should also add that I have allergy/asthma issues (which...
  9. Replies
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    sorry just wanted to chime in had my D tested...

    sorry just wanted to chime in

    had my D tested a few months ago and it was on the bottom end of normal.

    Had it tested earlier this week and it was seriously low - I've been put on a once a week...
  10. Replies
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    109,209

    mrsmoof, Yeah still doing well on the...

    mrsmoof,

    Yeah still doing well on the Singulair :) No adverse effects to report....
  11. Sorry for the delay. So, it is definitely...

    Sorry for the delay.

    So, it is definitely autoimmune. I'm doing a 2nd biopsy in September where a more specific test will be done to determine which AI is causing the problem. Doesn't appear to...
  12. Thanks for the support Melissa sidehug: Yeah...

    Thanks for the support Melissa sidehug:

    Yeah so ANA came back negative, and I'm seeing a rheumatologist tomorrow for an interpretation of the biopsy. The biopsy showed some kind of connective...
  13. Wow ok so after all this drama - ended up...

    Wow ok so after all this drama -
    ended up having to get a skin punch biopsy because the rash was still not responding well to oral Prednisone (though now my skin is flaring thanks to the...
  14. Replies
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    OK. So. I stopped using the coppertone for 2...

    OK. So.

    I stopped using the coppertone for 2 days to let that angry spot on the left heal more quickly. That resolved/calmed down, and I went back to trialing the coppertone.

    After a week of...
  15. I DEFINITELY know what you mean. I tend to be a...

    I DEFINITELY know what you mean. I tend to be a heat flusher to begin with - so that first instinct is to try and keep my body as cool as possible to avoid causing a rosacea flush. Fortunately, I...
  16. Yup, it's PLE. Have been very good with a...

    Yup, it's PLE.

    Have been very good with a topical steroid for a few days (to help it calm down). I also invested in a good, lightweight (BREATHABLE - it's been 95+ F around here the last 2 weeks)...
  17. O.M.G. Melissa W thank you so much for the PLE...

    O.M.G.
    Melissa W thank you so much for the PLE suggestion. I googled it and the image looks EXACTLY like what I have! (http://dermnetnz.org/reactions/pmle.html). Esp the one on the far right of...
  18. Could I have possibly gotten burned doing this!?!?

    OK.
    Question regarding doxycycline and sun exposure. I know there have been a few of these...

    I took doxy for a long time when I was a teenager and early 20's. Never was too much more sensitive...
  19. Replies
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    SalsaNorway: Octinoxate 7.5% Octisalate 5%...

    SalsaNorway:

    Octinoxate 7.5%
    Octisalate 5%
    Zinc Oxide 14.5%

    So a mix of chemical and physical, it looks like.
    I would think it's ok for dry skin?? Mine tends to be normal to slightly oily. ...
  20. Replies
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    OMG me too!!!! I love squash of all kinds -...

    OMG me too!!!! I love squash of all kinds - butternut squash is also soooo good. Spaghetti squash is wonderfully versatile, too. That and eggplant...I could be happy eating those forever. I know...
  21. Replies
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    wheat, as in wheat gluten? I have heard of...

    wheat, as in wheat gluten?

    I have heard of people using spaghetti squash.
    You use the spaghetti squash and shred it as kind of a "pasta". There are a bunch of recipes online. I know there are...
  22. Replies
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    6,076

    maroon5, I'm also in the process of looking...

    maroon5,

    I'm also in the process of looking into some food ingredients. I know some minty things (like York peppermint patties, after dinner mints - the hard candies, Junior Mints) send my skin...
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    I would just like to chime in and add that I am...

    I would just like to chime in and add that I am also trying this product. Today was my first day.

    I've tried a number of other recommended sunscreens (from various threads on this board) but no...
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    mrsmoof you could be sensitive to a...

    mrsmoof

    you could be sensitive to a preservative or to an ingredient that can't/hasn't been tested yet. You would need to do an elimination diet to find it.

    Personally I have a food allergy,...
  25. Thread: Exercising

    by mutantfrog
    Replies
    5
    Views
    2,712

    I have the same issue. If left unchecked the...

    I have the same issue. If left unchecked the splotches turn into hive/cyst like things, only they're flat. Ugh.

    Here are a few things I've found to be helpful for me:

    -I go nuts with the...
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