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    The dosage is by weight as far as I know. when I...

    The dosage is by weight as far as I know. when I was ~115 pounds, I was rx'ed 200 mg x2 / day M-F, and 200 mg 1x / day Sat, Sun. = 2400 mg / wk. I was weighed at the appt it was rx'ed. I am maybe 10...
  2. Thread: THC Pills

    by laser_cat
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    There are partial opioids like tramadol or...

    There are partial opioids like tramadol or suboxone that are "easier" to get. My pain doc who i think is brilliant - has strongly encouraged me to be on low dose opioid bc of this "beautiful" effect....
  3. Thread: THC Pills

    by laser_cat
    Replies
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    It's a vasodilator so titrate really slowly. It...

    It's a vasodilator so titrate really slowly. It helped with cold, hot, cold-> hot sensation (and also flushing). However worsened my "time of day" flaring. If you try, I would treat it like any other...
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    In my case not getting too cold does not help my...

    In my case not getting too cold does not help my overall condition, it just prevents it from getting worse. But currently popular in erythromelalgia circles is heat desensitization protocols, similar...
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    Only emotional flushing. Clonidine can make...

    Only emotional flushing.

    Clonidine can make me feel cold for a few min after a dose but on the whole it was not improving my quality of life, night flares, emotional flaring, etc. I try not to...
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    Yeah, other labs I noticed have ref. ranges at...

    Yeah, other labs I noticed have ref. ranges at under 60 for TPO antibodies. Wow, your number spiked VERY high!!
    I'm getting more autoimmune workup soon. Maybe other general issues.

    Hoping your...
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    Hey Mistica - my TPO antibodies came back at 35...

    Hey Mistica - my TPO antibodies came back at 35 (normal, under 9). However there seem to be different opinions of "normal" (of course there are..) and some ppl can have numbers in the hundreds. I...
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    periactin / cyproheptadine is prescription here...

    periactin / cyproheptadine is prescription here in US.

    Daily aspirin is something else I'm not sure you've tried. There are 2 case reports I can think of, pairing paxil with aspirin (but they...
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    Nasal helped most in the beginning and then...

    Nasal helped most in the beginning and then effectiveness waned quite a bit

    hopefully another botox round will help you. I notice increasing benefit (baby steps) w/ each round of injections until...
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    I stopped the nasal spray for now, not for any...

    I stopped the nasal spray for now, not for any real reason, just ran out. I think my symptoms are best handled with (something like) botox, cymbalta, low dose propranolol, mexiletine. (Note I was on...
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    Sorry I don't know of any! :(

    Sorry I don't know of any! :(
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    Thanks for the info on iodine!

    Thanks for the info on iodine!
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    Mistica - great you found something you can turn...

    Mistica - great you found something you can turn to reliably for night flushings. I understand the frustration in that the random "thing" (antibiotics) can make you lose your foothold. I don't eat at...
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    I noticed anxiety + depression for me with LDN....

    I noticed anxiety + depression for me with LDN. It actually made my face worse (low dose, higher dose). There is a really active LDN facebook group that's into dosing optimally.
    In general (not...
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    I am so glad it's helping you. great news.

    I am so glad it's helping you. great news.
  16. I recommend Tim Berger at UCSF derm. He is...

    I recommend Tim Berger at UCSF derm. He is referral only. He has the most experience with neurogenic rosacea that I've found in US, and also with related conditions like neuropathic itch and feet...
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    I have not tried periactin - one derm brought it...

    I have not tried periactin - one derm brought it up but we put a pin in it for some reason. I'll bring it up next time. I don't hear of it much in EM communities but every now and then I hear it...
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    Just want to update this - Saw my derm who said...

    Just want to update this - Saw my derm who said accutane probably could not help with neurally-mediated processes. It is great for swelling on the face if it presents by itself, but it likely won't...
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    Thanks, and thanks for the dosage references...

    Thanks, and thanks for the dosage references (will see my derm soon). It's interesting that plaquenil (anti-inflammatory - but don't know precise MOA) can correct this ... at least partially.
    ...
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    Yikes, I was contemplating low dose accutane (eg...

    Yikes, I was contemplating low dose accutane (eg 10 mg / wk for flushing/burning) and although I knew it would be a wild card, I haven't heard of anyone getting symptoms after low dose before. I'm...
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    I hope it is of some benefit for you - even just...

    I hope it is of some benefit for you - even just the depression part.

    yeah, i don't really like the mirtaz. either, but in my experience things get unpredictable if I try to taper (antidepressants...
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    one idea is low dose accutane. You mention...

    one idea is

    low dose accutane. You mention you had bumps (?) and sometimes low dose helps flushing/burning - though I've only found testimonials from people who have bumps
    ...
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    2 different reds, yellow, infra .. it's all bad...

    2 different reds, yellow, infra .. it's all bad for me unfortunately. Increases burning big time
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    I actually think the OP is authentic although she...

    I actually think the OP is authentic although she isn't around anymore. Although it's good to take anything with a grain of salt - post content, pics, even papers.

    I have some pics of my own...
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    Since this seemed to happen after you got off...

    Since this seemed to happen after you got off mirtaz., I would consider adding another antidepressant to help reinforce whatever pathway your face liked and was taken away. I like the SNRI's better...
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