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Type: Posts; User: Jamoverton

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    Thanks, I'm crossing my fingers with the LDN! I...

    Thanks, I'm crossing my fingers with the LDN!
    I am planning on staying on the mirtazapine and hydroxychloroquine indefinitely and I'm adding meds to see if I can increase my results. The mirt. and...
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    Yes, there is hope. Just keep trying things....

    Yes, there is hope. Just keep trying things. Hydroxychloroquine, mirtazapine, and intermittent fasting (i.e. not eating after 6pm each day until breakfast the next morning) have helped me the most,...
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    Thanks for keeping us updated. I haven't tried...

    Thanks for keeping us updated. I haven't tried that yet so I'll be interested to see how it works out for you.
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    Ok, well I'm on antidepressants and I'm still...

    Ok, well I'm on antidepressants and I'm still living a "real" life, whatever that means.
    Also, that wasn't the only possible solution I suggested to you. You are sounding a little resistant to help,...
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    I was very, very close to suicide a little over a...

    I was very, very close to suicide a little over a year ago due to neurogenic rosacea, so I know what you're feeling. There are medications that can help- what have you tried so far? Mirtazapine and...
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    That's fascinating. Thank you for sharing your...

    That's fascinating. Thank you for sharing your results. I have similar symptoms to you (flushing/swelling on nose/cheeks and laying down is a trigger) so I'll consider trying this in the future.
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    Pretty good! I'd say it helped my...

    Pretty good! I'd say it helped my flushing/residual swelling at least 30%, maybe more. Heat is my worst trigger so with cooler weather coming I might have more improvement.
    I started duloxetine...
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    If it's only been 8 days I think there's still...

    If it's only been 8 days I think there's still hope it'll calm down- treat your skin as gently as possible for now and see if it heals up. Did you do the treatment in a dermatologist's office? The...
  9. Thread: suicide

    by Jamoverton
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    Hi Dave- I've been there so I'm so sorry to hear...

    Hi Dave- I've been there so I'm so sorry to hear you're going through this. Last summer I was VERY close to suicide due to a sudden onset of debilitating facial flushing. It's been less than a year...
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    Ah, just saw this- thanks for reporting back!...

    Ah, just saw this- thanks for reporting back! Good to know that the aspirin has been working for you. I haven't really given that a try yet.
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    It's been helping. I'm about 3 months in. The...

    It's been helping. I'm about 3 months in. The dose I'm taking is a little less than what I've seen recommended for my weight so I may ask my doctor to bump up my dosage at some point. It's certainly...
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    How are you getting along with this?

    How are you getting along with this?
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    Hi Molly, Thanks for sharing- I'll be interested...

    Hi Molly,
    Thanks for sharing- I'll be interested to hear how you get on. I'm currently in the middle of trialing another drug (hydroxychloroquine) but I am considering trying Protopic as well since...
  14. Saying that "western medicine has nothing to...

    Saying that "western medicine has nothing to offer" is a ridiculous claim.
    Organic/"natural" ingredients are not always better for skin than synthetic/chemical ingredients. Many natural ingredients...
  15. There is no cure to rosacea and what you're doing...

    There is no cure to rosacea and what you're doing is nothing novel.
  16. I think a lot of people on here have the same...

    I think a lot of people on here have the same symptoms and agree they seem to be related to rosacea but not the "typical" case. The evening flush could be a lot of things- but in general people's...
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    Thanks for the update on your progress- hope it...

    Thanks for the update on your progress- hope it continues to work for you.
  18. Do you think facial erythromelalgia and...

    Do you think facial erythromelalgia and neurogenic rosacea are different in some ways? My symptoms sound spot on to yours.
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    Wow, that's good to hear since I also have...

    Wow, that's good to hear since I also have constant swelling in my face, which might bother me even more than the bad flushing. Did your primary care doctor prescribe it to you? I wonder if there's...
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    Thanks so much to everyone who responded and for...

    Thanks so much to everyone who responded and for the great advice. I agree when I describe my symptoms as just "flushing" to doctors they probably think superficial redness = cosmetic concern. ...
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    Hydroxychloroquine dosage

    Hi all,
    Question for people who have tried hydroxychloroquine for flushing/neurogenic rosacea. I was just prescribed 200 mg/day - I'm wondering if this is a large enough dosage? Seems like most...
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    That's interesting about the diet helping. I've...

    That's interesting about the diet helping. I've been pretty strict about what I eat since this flushing started but not to that extent- I might try that for a while just to see if it helps. I've done...
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    Unfortunately I haven't really, though I will say...

    Unfortunately I haven't really, though I will say eating lighter in the evening (I try not to eat at all after 6pm) has helped with flushing at night laying down to sleep. My next step is to try...
  24. I definitely wouldn't use the machine made for...

    I definitely wouldn't use the machine made for legs on your face. IPL should be done in a dermatologists' office.
    Mine got worse after a series of IPL but it's beneficial for some.
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    I think you're lost... this is a rosacea forum

    I think you're lost... this is a rosacea forum
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