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Sadly, that has been my experience also. My GP (although she didn't know much) was prepared to at least work with me.

Fingers crossed!

100% ! I was taking liquid form anyway, but Fiona on here mentioned sublingual drops and what a difference!

As for my post. I hear you all, your pain, your hopelessness, just want the same fab...

Give it time, nothing with LDN is instant, you may want to look into those drops.

I just wanted to take a moment to give hope to others with this awful disease.

Having been diagnosed with rosacea and then ocular rosacea in 2002, I spent day after day, month after month and year...

I am taking sublingual drops, LDN without the fillers (tastes awful) but a real game-changer for me!

In the beginning, I did try LDN in the morning, however nowhere near the good results that I obtained in the evening.

I cannot recall, are you on tablets or drops?

Don't apologise for updating...

LDN dose: 4ml

What is there to tell. I'm currently sitting here with the right side of my face bright red, purple, swollen boring. When I breath the warm air burns my top lip. Back to square one....

Aww! Bless you!

Yes. over 2 yrs and no more nerve pain. The odd rosy-cheek if I have a glass of wine, but no more pain. Taking 2mg at present.

I differ there, my nerve pain and swelling was so bad that I was going out of my mind!

Sorry that the reduction of nerve pain did not reduce your redness & flushing though.

Well that is terrific news! Getting rid of nerve pain must be such a relief!

I would increase your does VERY slowly, IMHO two months is not enough time to assess LDN properly, I would hate you to 'give up' too soon.

Good luck!

J

100% agree!

J

I found that the less facial pain I got, the less I flushed (eventually reduced redness); fingers crossed for you.

J

Within the first couple of weeks, particularly in the reduction of facial nerve pain.

J

In the early days, it's so hard not to attribute everything to LDN, btw I saw good results quite early on!

Hope it's the same for you!!

J

Don't identify with sub-types. I have neurogenic rosacea (intense burning & nerve pain

when face is hot or cold); triggers emotions (happy or sad) alcohol, stress, wind.

Yes! very much so, the less I flushed the better my skin looks!

I still have the battle scars (thread veins) however cover with good makeup!

J

Hello!

I started on 0.5 mg (I have an overactive thyroid, so as LDN can stimulate this I had to take care) VERY gradually increased by 0.5 mg every 2 or so weeks until I was at 2.5 mg (if I tried...

I am 2 yrs into my LDN journey, it has been a life-saver and a game-changer for me!

J

Glad to hear that you've got some relief.

J

You remembered! wow! My dry/burning mouth has gone!

J

Sounds like a good plan!

I have graves disease too, and since rosacea eczema. (oh joy!), I wish you well.

J

So sorry to hear this.

J