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    Yes I've tried several - anti-seizures are...

    Yes I've tried several - anti-seizures are topamax, tegretol, trileptal, zonisamide; topicals benzocaine 20%/lidocaine 6%/tetracaine 4%, amitriptyline 6%.

    For me the oral sodium channel blockers...
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    Anti-inflammatory / immunosuppressive route

    Had an interesting derm appt, would like to share. (some of this is repetitive)

    I asked: If SFN is driving my bad face, why don't my symptoms start/be more severe in the feet?

    He said...
  3. That's terrible about SSRI's, SNRI's worsening...

    That's terrible about SSRI's, SNRI's worsening your rosacea. One thing is ketamine iv for depression - my experience is that it blows the traditional pills out of the water. It can be done for...
  4. I would try clonazepam, gabapentin, baclofen for...

    I would try clonazepam, gabapentin, baclofen for stinging pain. Most things cause vasodilation for me so I can't tolerate gabapentin / baclofen but I think most people can. (Note: even LDN causes...
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    Yeah, thanks for posting about your experience. ...

    Yeah, thanks for posting about your experience.

    Recently a derm brought up possibility of trying elidel (similar topical). I asked him how this is different from protopic (I didn't even bring up...
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    I hate that you took it and you never recovered! ...

    I hate that you took it and you never recovered!

    Yeah, obviously not keen on the (rare) side effect of nerve damage ... But my swelling was so disabling that I couldn't make my doc appts...
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    I'm on an antibiotic now that helps the swelling...

    I'm on an antibiotic now that helps the swelling some. And it's still early. Docs think swelling is going to come back once I stop the antibiotic (oral metro) because it doesn't address root cause,...
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    If you're itchy I think worthwhile to get a trial...

    If you're itchy I think worthwhile to get a trial of soolantra or something "safe" for seb derm ... itching can happen with neur rosacea but why not cover bases, if you know what i mean..

    Flaring...
  9. There was an MD who published at least 2 papers...

    There was an MD who published at least 2 papers on EM, as a patient having EM. He was a psychiatrist if I remember right, so I don't think he used his MD at all really to do this. They were basically...
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    Propranolol is the only drug that helps with the...

    Propranolol is the only drug that helps with the emotional / increased heart rate flaring for me. For a long time I thought, I'd rather just deal with the flaring - not because my flaring is not...
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    Hey owldog- yes clonidine made my skin like...

    Hey owldog- yes clonidine made my skin like leather. Very dry, everywhere. I remember a wound took 8 mo or so to heal, when i thought it would take ~2 weeks! I tried to add a vasodilator to the...
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    i think with severe cases, laser might ......

    i think with severe cases, laser might ... create new blood vessels. That's just how it made mine worse - creating new blood vessels. I don't think a doc will ever say "no" to a rosacea patient,...
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    Yeah, with the MSM i went back to baseline. The...

    Yeah, with the MSM i went back to baseline. The big things that I did not go back to baseline were: clonidine and laser. Thank goodness I never used Mirvaso (thanks to things like this forum, I was...
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    MSM can thin the blood. It made my...

    MSM can thin the blood. It made my flushing/burning worse, consistently.

    If I take high dose aspirin, i get red dots all over my legs, I think blood leaking from capillaries, but they clear up if...
  15. Coping methods are personal. It is admirable that...

    Coping methods are personal. It is admirable that you re-evaluated yours and decided what needed to change to better enrich your life. But, do not write in a way that suggests others are not trying...
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    I see. Thanks for pulling those out. "On the...

    I see. Thanks for pulling those out.

    "On the one hand, the immunosuppressive properties of tacrolimus might facilitate overgrowth of follicular Demodex in susceptible patients, as suggested by the...
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    Do you know why this doesn't seem to happen (I...

    Do you know why this doesn't seem to happen (I think..) with plaquenil or methotrexate (or other anti-inflammatories)?
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    Do you use the topical or.. ?

    Do you use the topical or.. ?
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    The dosage is by weight as far as I know. when I...

    The dosage is by weight as far as I know. when I was ~115 pounds, I was rx'ed 200 mg x2 / day M-F, and 200 mg 1x / day Sat, Sun. = 2400 mg / wk. I was weighed at the appt it was rx'ed. I am maybe 10...
  20. Thread: THC Pills

    by laser_cat
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    There are partial opioids like tramadol or...

    There are partial opioids like tramadol or suboxone that are "easier" to get. My pain doc who i think is brilliant - has strongly encouraged me to be on low dose opioid bc of this "beautiful" effect....
  21. Thread: THC Pills

    by laser_cat
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    It's a vasodilator so titrate really slowly. It...

    It's a vasodilator so titrate really slowly. It helped with cold, hot, cold-> hot sensation (and also flushing). However worsened my "time of day" flaring. If you try, I would treat it like any other...
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    In my case not getting too cold does not help my...

    In my case not getting too cold does not help my overall condition, it just prevents it from getting worse. But currently popular in erythromelalgia circles is heat desensitization protocols, similar...
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    Only emotional flushing. Clonidine can make...

    Only emotional flushing.

    Clonidine can make me feel cold for a few min after a dose but on the whole it was not improving my quality of life, night flares, emotional flaring, etc. I try not to...
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    Yeah, other labs I noticed have ref. ranges at...

    Yeah, other labs I noticed have ref. ranges at under 60 for TPO antibodies. Wow, your number spiked VERY high!!
    I'm getting more autoimmune workup soon. Maybe other general issues.

    Hoping your...
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    Hey Mistica - my TPO antibodies came back at 35...

    Hey Mistica - my TPO antibodies came back at 35 (normal, under 9). However there seem to be different opinions of "normal" (of course there are..) and some ppl can have numbers in the hundreds. I...
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