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  1. Replies
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    I take both. If I go down on either the...

    I take both.

    If I go down on either the flushing increases significantly and returns on my arms, torso, etc.

    I haven't noticed hair loss side effect personally.
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    Yes I take cymbalta 80 mg in the morning. It...

    Yes I take cymbalta 80 mg in the morning. It helps - ideally I would take 60 mg x2 so I could get help in the evening, but when I tried that (and it did help with evening) I had total insomnia. Makes...
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    I use compounded amitriptyline 6% / diazepam 2%...

    I use compounded amitriptyline 6% / diazepam 2% on the ears, 2x/day.
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    Hi owldog - I am still on plaquenil. It...

    Hi owldog -

    I am still on plaquenil. It doesn't really help my face but it does help my neck swelling / heat. No side effects. My understanding is this much weaker in potency than say Imuran. I am...
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    Yes I've tried several - anti-seizures are...

    Yes I've tried several - anti-seizures are topamax, tegretol, trileptal, zonisamide; topicals benzocaine 20%/lidocaine 6%/tetracaine 4%, amitriptyline 6%.

    For me the oral sodium channel blockers...
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    Anti-inflammatory / immunosuppressive route

    Had an interesting derm appt, would like to share. (some of this is repetitive)

    I asked: If SFN is driving my bad face, why don't my symptoms start/be more severe in the feet?

    He said...
  7. That's terrible about SSRI's, SNRI's worsening...

    That's terrible about SSRI's, SNRI's worsening your rosacea. One thing is ketamine iv for depression - my experience is that it blows the traditional pills out of the water. It can be done for...
  8. I would try clonazepam, gabapentin, baclofen for...

    I would try clonazepam, gabapentin, baclofen for stinging pain. Most things cause vasodilation for me so I can't tolerate gabapentin / baclofen but I think most people can. (Note: even LDN causes...
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    Yeah, thanks for posting about your experience. ...

    Yeah, thanks for posting about your experience.

    Recently a derm brought up possibility of trying elidel (similar topical). I asked him how this is different from protopic (I didn't even bring up...
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    I hate that you took it and you never recovered! ...

    I hate that you took it and you never recovered!

    Yeah, obviously not keen on the (rare) side effect of nerve damage ... But my swelling was so disabling that I couldn't make my doc appts...
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    I'm on an antibiotic now that helps the swelling...

    I'm on an antibiotic now that helps the swelling some. And it's still early. Docs think swelling is going to come back once I stop the antibiotic (oral metro) because it doesn't address root cause,...
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    If you're itchy I think worthwhile to get a trial...

    If you're itchy I think worthwhile to get a trial of soolantra or something "safe" for seb derm ... itching can happen with neur rosacea but why not cover bases, if you know what i mean..

    Flaring...
  13. There was an MD who published at least 2 papers...

    There was an MD who published at least 2 papers on EM, as a patient having EM. He was a psychiatrist if I remember right, so I don't think he used his MD at all really to do this. They were basically...
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    Propranolol is the only drug that helps with the...

    Propranolol is the only drug that helps with the emotional / increased heart rate flaring for me. For a long time I thought, I'd rather just deal with the flaring - not because my flaring is not...
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    Hey owldog- yes clonidine made my skin like...

    Hey owldog- yes clonidine made my skin like leather. Very dry, everywhere. I remember a wound took 8 mo or so to heal, when i thought it would take ~2 weeks! I tried to add a vasodilator to the...
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    i think with severe cases, laser might ......

    i think with severe cases, laser might ... create new blood vessels. That's just how it made mine worse - creating new blood vessels. I don't think a doc will ever say "no" to a rosacea patient,...
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    Yeah, with the MSM i went back to baseline. The...

    Yeah, with the MSM i went back to baseline. The big things that I did not go back to baseline were: clonidine and laser. Thank goodness I never used Mirvaso (thanks to things like this forum, I was...
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    MSM can thin the blood. It made my...

    MSM can thin the blood. It made my flushing/burning worse, consistently.

    If I take high dose aspirin, i get red dots all over my legs, I think blood leaking from capillaries, but they clear up if...
  19. Coping methods are personal. It is admirable that...

    Coping methods are personal. It is admirable that you re-evaluated yours and decided what needed to change to better enrich your life. But, do not write in a way that suggests others are not trying...
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    I see. Thanks for pulling those out. "On the...

    I see. Thanks for pulling those out.

    "On the one hand, the immunosuppressive properties of tacrolimus might facilitate overgrowth of follicular Demodex in susceptible patients, as suggested by the...
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    Do you know why this doesn't seem to happen (I...

    Do you know why this doesn't seem to happen (I think..) with plaquenil or methotrexate (or other anti-inflammatories)?
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    Do you use the topical or.. ?

    Do you use the topical or.. ?
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    The dosage is by weight as far as I know. when I...

    The dosage is by weight as far as I know. when I was ~115 pounds, I was rx'ed 200 mg x2 / day M-F, and 200 mg 1x / day Sat, Sun. = 2400 mg / wk. I was weighed at the appt it was rx'ed. I am maybe 10...
  24. Thread: THC Pills

    by laser_cat
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    There are partial opioids like tramadol or...

    There are partial opioids like tramadol or suboxone that are "easier" to get. My pain doc who i think is brilliant - has strongly encouraged me to be on low dose opioid bc of this "beautiful" effect....
  25. Thread: THC Pills

    by laser_cat
    Replies
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    311

    It's a vasodilator so titrate really slowly. It...

    It's a vasodilator so titrate really slowly. It helped with cold, hot, cold-> hot sensation (and also flushing). However worsened my "time of day" flaring. If you try, I would treat it like any other...
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