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  1. Replies
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    Not yet, which one should I start with please? ...

    Not yet, which one should I start with please? They are quite pricey, now I have raised my LDN dose to 2.5 mg I very rarely flush!

    I would like to soften the look of the thread veins.

    Thanks...
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    I spent too much on a very well-respected derm,...

    I spent too much on a very well-respected derm, who just kept giving me meds that made my condition worse!

    IPL was okay for a while and then suddenly made things much worse! RLT the same!!
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    Most GP's and derms IMO have not heard and indeed...

    Most GP's and derms IMO have not heard and indeed do not recognise neuropathic rosacea, sadly it's up to US to inform and educate!!

    J
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    You are certainly not alone my friend! This...

    You are certainly not alone my friend!

    This can be one of the most lonely and misunderstood diseases going!

    J
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    Hello again I meant ME as in I/myself, I get...

    Hello again

    I meant ME as in I/myself, I get side effects to all meds!

    So glad that you have your telephone consultation!
    sublingual drops, (without the fillers) were the best option for me,...
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    My burning mouth has completely gone since using...

    My burning mouth has completely gone since using LDN; I also have ocular rosacea and my eyes are much improved too!

    https://www.renskincare.com/

    Have a look at that link, search for the...
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    Wow! It depends what dose you are on, they...

    Wow!

    It depends what dose you are on, they set up an account online for you and you order when required.
    LDN lasts for 90 days in the fridge.

    J
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    They should email you re your consultation (by...

    They should email you re your consultation (by phone) you can always chase them.

    J
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    [QUOTE=Rubydo1;351180] Everyone is different,...

    Everyone is different, I started on a very, very low dose of 0.5 mg and increased VERY slowly (less is certainly more with LDN).

    When your face flushes less and isn't so reactive, everything calms...
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    [QUOTE=Rubydo1;351175] Yes, a year now, I am...

    [QUOTE=Rubydo1;351175]


    Yes, a year now, I am up to 2.5 mg (increased VERY slowly) flushing and nerve pain is reduced by 90% (I have neuropathic rosacea).

    J
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    .........and expensive! Chris Steele (GP on...

    .........and expensive!

    Chris Steele (GP on this morning) was trying to get this licenced!
    ]
    Good luck!

    J
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    As this is an unlicensed drug you won't get an...

    As this is an unlicensed drug you won't get an NHS doctor to prescribe it.

    If you go to the start of this thread and look for posts by Fiugs she kindly explains just how to obtain a private...
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    Dear Fiona Always lovely and encouraging to...

    Dear Fiona

    Always lovely and encouraging to read your posts!

    I have increased my dose of LDN to 2.5 mg and will stay at this again for a while to see how things go.

    I use REN products which...
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    LDN One year on!

    Hello all

    Well I have reached the one year mark! smile: I take 2mg and have this powerful little drug to thank (plus friends on here) for the 90% reduction in flushing!

    It has completely...
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    Demodex mites ?

    Hello all

    I have responded really well to LDN and knocked my flushing and nerve pain down by about 85%! YAY!

    However, I still have what I can only describe as a pressure or activity...
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    Have had rosacea for over 15 yrs, dietary changes...

    Have had rosacea for over 15 yrs, dietary changes don't help much (apart from the obvious spicy foods and booze!!)

    I have had a water softener for years, so our water is kind to the face.

    I...
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    Thank you for your reply. I have had laser in...

    Thank you for your reply.

    I have had laser in the past, over a few years (just a short-term fix) and certainly not the best choice for neuropathic rosacea!

    I don't have redness as such, the...
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    Wow! Brady that's some info thank you! I would...

    Wow! Brady that's some info thank you!

    I would not attempt any kind of laser treatment again as for neuropathic rosacea it is so problematic!

    A topical cream to reduce the look would be a good...
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    Thank you both. It's not redness, it's just...

    Thank you both.

    It's not redness, it's just the look of the thread veins I want help with, I just want something that will nourish and plump my skin..............perhaps it's just not possible???...
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    proskin the rosacea cream by mama nature

    Hello all

    Now that my flushing is under control, (thanks to LDN), I am looking at something to help with the look of my skin.

    I do have a lot of thread veins and would like your opinion on the...
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    I actually ordered just ONE from Littlewoods...

    I actually ordered just ONE from Littlewoods catalogue, it was very pricey, but has been worth every penny!

    Non-irritant and keeps my face cool, plus you don't get 'bed hair' either!

    J
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    100% silk pillow ccase!

    Hello all

    Keep forgetting to mention this addition to my arsenal/fight against rosacea!

    I purchased a 100% mulberry silk pillow case, it's cool to the touch and very soft, really aids a...
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    Glad that you are still finding improvements on...

    Glad that you are still finding improvements on LDN my friend!
    As you said, we are all as different as our conditions are!

    I cannot believe that it is almost a year that I started my LDN...
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    Things going really well here; still on 2 mg of...

    Things going really well here; still on 2 mg of the drops. rarely flush and even emotional flushing is way down!

    It will be a year for me on 25th October, don't think anymore that 2 mg is...
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    Oh you poor thing! I know that thyroid issues...

    Oh you poor thing!

    I know that thyroid issues can further complicate rosacea!!

    Never give up hope my friend, these particular LDN drops (although vile to taste) have been a game-changer for me....
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