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  1. I think I'll ask for duloxetine since it doesn't...

    I think I'll ask for duloxetine since it doesn't make you fat lol

    The secretary hasn't been passing my messages on to the derm for me :/
  2. I'll just say to her that I need nerve pain...

    I'll just say to her that I need nerve pain medication?
  3. Why so?

    Why so?
  4. How to get GP to prescribe something for neurogenic rosacea?

    I thought I was seeing my derm on the 2nd of this month but in reality I won't see her til the 15th. I emailed saying I had to stop clonidine as it was making me worse but she never responds.

    I'm...
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    Did u end up trying it?

    Did u end up trying it?
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    I'll take it for a bit longer but I'm not hoping...

    I'll take it for a bit longer but I'm not hoping it'll do anything for me anymore. I think my hormones are playing a role because my constant pain was mostly gone with LDN but when I took my break...
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    But not heat? That's my trigger

    But not heat? That's my trigger
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    Documenting PRP and propranol journey.

    I will be starting propranol and getting my second PRP session next weekend.

    My first PRP did nothing.
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    Well this will be my final update to this thread....

    Well this will be my final update to this thread. LDN did not work for me unfortunately. My next experiment will be with propranol though my hopes for it are not high given the failure that clonidine...
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    I'm on ldn now but it doesn't work for me. I...

    I'm on ldn now but it doesn't work for me. I really hope it works for you because I know that for others It's like a miracle! Do u want to add those meds or start taking them instead of what u take...
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    Is there even hope for laser damage?

    My rosacea is a result of damage for IPL and has completely destroyed my life. I haven't left the house since the treatment in July apart from dermatologist appointments. It is agony physically and...
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    Never knew you could get that! Thus far taking it...

    Never knew you could get that! Thus far taking it at night has done nothing for me anyway
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    Hopefully this will turn things around for me too...

    Hopefully this will turn things around for me too then! I'm taking it in liquid form
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    Firstly, I'd like to apologise for constantly...

    Firstly, I'd like to apologise for constantly unpdating this thread lol.

    I just realised I have been taking my LDN in the morning this whole time. I will start trying to have it at night and I...
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    Lowering the dose was doing me no good...

    Lowering the dose was doing me no good unfortunately. I upped it to 3.5ml the other day and had a lot of relief but i don't think it's actually the LDN doing anything tbh. Just coincidentally having...
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    LDN dose: 4ml What is there to tell. I'm...

    LDN dose: 4ml

    What is there to tell. I'm currently sitting here with the right side of my face bright red, purple, swollen boring. When I breath the warm air burns my top lip. Back to square one....
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    Perhaps I am just forgettinf how bad the...

    Perhaps I am just forgettinf how bad the nervepain actually was lol I definitely cried from it at times. It was very painful. I'm so glad the LDN worked for you, I know you suffered for a long time x
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    Yeah it's good that has lessened. Although I...

    Yeah it's good that has lessened. Although I would take nerve pain over redness and flushing any day
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    I thunk LDN actually has taken care of the nerve...

    I thunk LDN actually has taken care of the nerve pain. It's just the constant redness and painful flushes now :( I'll need to fund a new GP. Mine probably won't go against the derm
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    I have to wait til December :(

    I have to wait til December :(
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    Still taking 2.0 ml LDN. Also undergoinf worst...

    Still taking 2.0 ml LDN. Also undergoinf worst flare thus far
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    1 month on LDN Dose: 2ml Side effects:...

    1 month on LDN

    Dose: 2ml

    Side effects: none

    Effects: None.

    I'm sorrt ro say that while I initially though LDN was reducing my flushing, this doesn't seem to be the case. LDN has had no...
  23. How soon did you see a reduction

    How soon did you see a reduction
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    LDN still at 1.0 I went for any eyelash...

    LDN still at 1.0

    I went for any eyelash appointment a couple of days ago, wearing a mask and didn't flush at all! Skin is still red though.

    Getting PRP tpday but am feeling quite scared in case...
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    Institute of dermatologists! That's provided we...

    Institute of dermatologists! That's provided we don't go back into lockdown :(
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