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  1. Replies
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    Would ZZ do anything for my neurogenic rosacea? I...

    Would ZZ do anything for my neurogenic rosacea? I have zero spots, just nerve pain and oedema.
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    You?re so good Judy! I?ll contact them tomorrow....

    You?re so good Judy! I?ll contact them tomorrow. Thank you so much.
    Molly
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    I?m in Ireland and the pharmacy that supplies my...

    I?m in Ireland and the pharmacy that supplies my LDN said they could not get it. I phoned several other pharmacies and they all said the same.
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    I?m so delighted for you Judy. It shows that...

    I?m so delighted for you Judy. It shows that there is a suitable treatment for everybody out there!
    I could not get the drops unfortunately but I continue to look!
  5. Thread: Nose pain?

    by Momof
    Replies
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    3,692

    Yes I have developed this exact problem in the...

    Yes I have developed this exact problem in the last few months. It?s an intense pain either side of my nose in my sinus area. I am sneezing a lot more than usual and my nose usually needs a good blow...
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    That is amazing. Your benadryl experience ties in...

    That is amazing. Your benadryl experience ties in with what an intelligent GP said to me a few weeks ago-the edema is from an immune system reaction. I am on a trial of Montelukast and if that...
  7. Thread: forehead redness

    by Momof
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    293

    I wonder is it an immune reaction?

    I wonder is it an immune reaction?
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    The GPs look at the individual symptoms and treat...

    The GPs look at the individual symptoms and treat those rather than focusing on the diagnosis of rosacea. Dermatologists here only know how to treat type 2 and don?t know how to treat or ignore the...
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    The ?expert? dermatologists in this country know...

    The ?expert? dermatologists in this country know absolutely nothing about neurogenic rosacea. I have visited 4 ?experts?, to no avail. The GP has been far more helpful and intelligent in figuring...
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    Was that withdrawal from propranolol? What dose...

    Was that withdrawal from propranolol? What dose were you on?
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    Sinead, contact the doctor who prescribed you...

    Sinead, contact the doctor who prescribed you LDN. He will prescribe duloxetine or amitriptyline for your nerve pain if your regular doctor won?t. One of those will definitely help you. I was in...
  12. I would say she would be more inclined to...

    I would say she would be more inclined to prescribe amitriptyline or duloxetine for nerve pain than hydroxych. but it depends on what she has experience with.
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    I really think you should give the LDN more time,...

    I really think you should give the LDN more time, especially if the dermatologist is insisting on making you wait for nerve pain meds.
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    I?m going to see can I source the drops.

    I?m going to see can I source the drops.
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    No I haven?t tried accutane but I think I will...

    No I haven?t tried accutane but I think I will try a low dose. I am determined to get rid of the edema and I know it?s just a case of hitting on the right drug. I?m hoping to see a neurologist soon...
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    Fingers crossed for you!

    Fingers crossed for you!
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    Judy, It is so kind of you to take the time to...

    Judy,
    It is so kind of you to take the time to write. I am thrilled that you are so busy living your life again. That is what everybody on this forum wants. Do you think the sublingual drops are...
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    If you?re still here, how are you now?

    If you?re still here, how are you now?
  19. Replies
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    Yes apparently it works much better at night

    Yes apparently it works much better at night
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    Should you drop your dose?

    Should you drop your dose?
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    Thank you so much for that lasercat. Maybe I...

    Thank you so much for that lasercat. Maybe I should continue with NSAIDs and see how it goes. I tried 100mg doxy 2 years ago and I don?t think it helped but maybe swelling wasn?t as big an issue for...
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    Just looking for advice on the best way to treat...

    Just looking for advice on the best way to treat edema ( fluid build up). Pure neurogenic rosacea-absolutely no p&ps, no real flushing any more and nerve pain under control most of the time.
    The...
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    Could you go your gp? They really are better than...

    Could you go your gp? They really are better than the dermatologists- they look at the whole picture and think outside the box much more than the dermatologists.
    Propropnalol ( as well as...
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    You need to start 75 micrograms of Clonidine...

    You need to start 75 micrograms of Clonidine daily (3 x 25 micrograms) plus amitriptyline or duloxetine
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    I really hope you see improvement soon. If not,...

    I really hope you see improvement soon. If not, switch medication
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