Mirvaso Positive Experiences

[GreenGables]

Scot: "Doc I appreciate it but I have excellent success with diet, AND, really this is an INFECTION, not acne, which stems from an auto-immune disorder triggered by consumption of accelerated genetic distance foods - and relates more to the large intestine than it does to pores or skin. I mean, these infections come from WITHIN, and begin as bacterial infections in the subdermal capillary bundles. You know I have tried at least 6 topicals over the years, and THEY SIMPLY DO NOT WORK. Plus, eliminating the flushing is like curing a cold by reducing one's body temperature - it is chasing the wrong thing. Eliminate the auto-immune disorder and the flushing will not happen in the first place."


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I don't understand what you were trying to accomplish by saying this to your dermatologist. Did you want an antibiotic for the "INFECTION" as you put it? Why not just ask for it? Ask to get tested for H. pylori or whatever it is you think you have.

As someone just as frustrated with the current non-curative treatments for rosacea, still...honestly, if I were a dermatologist and someone responded to "How is your rosacea doing?" with an accusatory paragraph like that, I would write them off as crazy and get them the hell out of my office, too...

[Starlite]

I don't understand what you were trying to accomplish by saying this to your dermatologist. Did you want an antibiotic for the "INFECTION" as you put it? Why not just ask for it? Ask to get tested for H. pylori or whatever it is you think you have.

As someone just as frustrated with the current non-curative treatments for rosacea, still...honestly, if I were a dermatologist and someone responded to "How is your rosacea doing?" with an accusatory paragraph like that, I would write them off as crazy and get them the hell out of my office, too...

It's a bit over the line to call Scot crazy for his understanding. His comments are based in sound science. I took away from his post that the Doctor was not attending to his personal needs but simply shilling for the pharmaceutical companies and if I were him I'd be looking for a different Doc.

[maskielli]

It's a bit over the line to call Scot crazy for his understanding. His comments are based in sound science. I took away from his post that the Doctor was not attending to his personal needs but simply shilling for the pharmaceutical companies and if I were him I'd be looking for a different Doc.

come on, if you were a doctor and youve just gotten your hands on mirvaso which is supposed to eliminate all redness your going to offer it no matter what, the patient might not even know about it. And again why even pay to see a derm if your not going to be in a cooperative spirit, sure you dont have to accept a new drug but it wasnt like he asked at any point for help with his rosacea, just tried to educate him with what the doctor would see as "internet" knowledge. But also, i have no doubt that the conversation didnt go like that at all, nobody would actually talk like that so conceited and passive aggressive.

[nat007]

It's a bit over the line to call Scot crazy for his understanding. His comments are based in sound science. I took away from his post that the Doctor was not attending to his personal needs but simply shilling for the pharmaceutical companies and if I were him I'd be looking for a different Doc.

Yep, I also read it like that
I'm sure that wasnt a word by word representation of his dialogue but that the dermatologist seemed disinterested in the more in depth findings of the patient and brushed over it repeatedly with an offer to start trying Mirvaso. Sounded to me like a non dedicated, disinterested dermatologist, not an off the rail patient
And interesting indeed that dermatologists are already briefed by Galderma to start pushing Mirvaso down their throats

[maskielli]

And interesting indeed that dermatologists are already briefed by Galderma to start pushing Mirvaso down their throats

You guys really have it out for the derms lol. Galderma the leading company in Rosacea treatment brings out a new topical (its only been one month), they tell the doctor it will eliminate all redness. Do you really expect the doctor to not offer Mirvaso when the negative side effects are still largely unknown to them unless they frequent this forum? Otherwise its just back to telling the patient to avoid triggers/sun or elect for some expensive laser. You shouldnt really expect a derm to be angling some naturalistic approach to treatment as they are just their to provide the standard treatments rather than experiment, if you want a holistic approach then see a naturopath or just learn what they know from reading about it on the internet.

[Starlite]

come on, if you were a doctor and youve just gotten your hands on mirvaso which is supposed to eliminate all redness your going to offer it no matter what, the patient might not even know about it. And again why even pay to see a derm if your not going to be in a cooperative spirit, sure you dont have to accept a new drug but it wasnt like he asked at any point for help with his rosacea, just tried to educate him with what the doctor would see as "internet" knowledge. But also, i have no doubt that the conversation didnt go like that at all, nobody would actually talk like that so conceited and passive aggressive.

This is quite stunning to have two different forum members making such personal attacks by calling Scot names. He must have hit a serious sore spot. The man did not go into his Derm and ask for support nor did he complain about redness and flushing. When the Doc inquired how his rosacea was doing, he reported is was improved and how he had done that. It is not practicing medicine to then push a prescription for the newest drug on the market when it was not necessary or requested... that is being a sales man.

[nat007]

You guys really have it out for the derms lol. Galderma the leading company in Rosacea treatment brings out a new topical (its only been one month), they tell the doctor it will eliminate all redness. Do you really expect the doctor to not offer Mirvaso when the negative side effects are still largely unknown to them unless they frequent this forum? Otherwise its just back to telling the patient to avoid triggers/sun or elect for some expensive laser. You shouldnt really expect a derm to be angling some naturalistic approach to treatment as they are just their to provide the standard treatments rather than experiment, if you want a holistic approach then see a naturopath or just learn what they know from reading about it on the internet.

Sure doctors can inform their patients about this new cream and suggest it to them. But this guy wrote down how he wasn't even interested in it and wanted to share his improvements with his derm (yes that is also part of a derms job, keeping a doctor-patient relationship and staying up to date with the course of their rosacea). Yet, the doctor seemed to sweep all that rather interesting info aside, as far as he described it in his post at least, and had Mirvaso on the check list.

Its reminding me a bit of the many derms I saw the first years, bright red and flushed, who kept trying to invent the wheel again and letting me go through another 3 months of antibiotics, despite me telling them the past derm already made me try that with adverse outcome (hence, more red and flushed). But because it was on their own check list I had to take it again so they could witness the outcome themselves. Some suggested steroid cream, despite that being really unwise for subtype 1 rosaceans. I had to use creams like rozex and despite that it made my skin burn they wanted me to try it a few more weeks anyway so they could be certain it was aother failed treatment option. So, a lot of derms actually don' listen well to their patients and work by simple 5 minutes in and out programs and check point treatment options. There is no real life experience with Mirvaso, yet derms are starting to suggest it to their patients already. Thats understandable but not per se the right thing to do, is it? My good derm doesnt trust it and says to wait with it, and fears a steroid like rebound. I think good derms are critical.

[Birdie]

Mirvaso Mud Sling

Well, I'm still hoping this thread will include positive feedback. Since
The release of this new " miraclemirvaso" some people have lost their
Manners. Mirvaso Mud Sling..... Sounds like a great afternoon drink.

[Starlite]

Well, I'm still hoping this thread will include positive feedback. Since
The release of this new " miraclemirvaso" some people have lost their
Manners. Mirvaso Mud Sling..... Sounds like a great afternoon drink.

Pirates everywhere love it.

Right you are.. and the point of the thread is.. *Positive Mirvaso Experiences.*

[Birdie]

In my last post I described the the painful side effects Mirvaso has seemingly caused. Here is some quick background information. I have been suffering from seborrheic dermatitis (scalp and face. and Rosacea (intermittent p&ps, and progressively worse persistent erythema). Both conditions present themselves all over my face -- the seb. derm. the usual spots plus splotches on my face; the rosacea redness all over my face including normal areas of cheeks, chin, and nose.). The redness is persistent but looks better some days than others. I can tell you the posts in this forum that claim severe rosacea don't hold a candle to the extreme all over redness I experience. During flares, edema (swelling), heat and ocular pain are all present and debilitating. I have tried all 'alternative' and evidence based remedies/medications except for Accutane. Daily Ketoconazole gel or foam and Oracea have kept both conditions under control for about 3yrs now. By under control, I mean no severe flares at all, flushing doesn't occur for me under most conditions and isn't nearly as severe as it had prior to the medications. But make no mistake about it, the erythema is NEVER gone and even on good days it is never just limited to cheeks or chin. It is almost everywhere on my face every day. Okay...

Mirvaso makes me really red immediately upon application as does any cream or product I apply to my face. The contact wearness wears off anywhere from 30mins to 1hour and then my skin, almost magically improves. Most days my face turns darn near PERFECT .. AMAZING ..at about the 3hr mark to the 8hr mark. Then still shows positive effects at the 12 hr mark sometimes lasting improvement to 24hrs later ..no joke! The first 7 days using this product the side effect of severe, painful flushing, with redness I haven't seen in years occured at around the 4-5 hour mark and lasted anywhere from 3yrs to 12+hours later!! Yikes!!!! It was depressing and I then gave up on Mirvaso out of fear that it was going to cause permanent damage. I did certainly experience rebound redness/flushing after stopping usage. About three days after stopping the rebound flushing/redness was pretty much gone and 3days ago I decided to try another round and .......Things are better!!!!! The flushing didn't occur on the first day of the second round I experienced perfect skin tone and no flushing or adverse effects at all --Miraculous!!! The second day after about the 4 hour mark ...BAM!! Flush, pain redness, but it only lasted about 1hr or so this time and after it was gone my skin returned to approximately 90% clear. Dang ...I can live with that!! Day 3 of second round, I woke up in the morning and my redness was pretty bad but not all that much worse than my 'baseline'. Mirvaso this day, never really cleared my past about 70% or so of normal redness......weird ...the only thing I did different is that I applied Mirvaso in the bathroom after a shower with very high humidity in the air --maybe it had an effect? -- not sure, though. Yesterday was day 4 or the second round and my skin cleared almost 100% again at about the 3hr mark!! The 5hr mark... BAM!!! Severe pain, redness, heat, etc. I was attending an international figure skating competition with my wife and it was cool in there but it felt like 200 degrees. I went in the bathroom, looked in the mirror, and saw it was definitely an abnormal flush (no trigger), and it looked bad but not nearly as bad as the previous flushes. It went away about 1hr later. After the flush my skin wasn't quite 100% improved but I'd say I looked about 70% better to the 10hour mark. After that I returned to normal, rotten, red skin ..maybe a little worse. I awoke this morning looking quite bad and I decided to not put it on today. The redness was some sort of rebound and worse than baseline by far. Oddly enough with not Mirvaso, about 3hours later, after waking, the redness is now gone and my skin looks a tad better than baseline. Weird.

Well, I consider Mirvaso a sucess!!! When I apply Mirvaso in the morning and put on my normal Mercier tinted moisturizer, my skin looks anywhere from pretty good to flawless like a movie star!! Wow ..except for flushing periods out of nowhere. When I just apply Mirvaso (without tinted moisturizer) I look anywhere from acceptable to really good with very slight (slight for me considering my condition) redness. A trend that I am noticing is that the longer I try Mirvaso the better! I have no idea the mechanisms involved for this but my flushing is getting better. Of course, I cannot say that if I stopped for good there wouldn't be any long term consequences ...for that I have to put my 'faith' in the research/FDA process. Okay, here are some tips for first time Mirvaso users ..especially with seb derm combination skin.

1. If you put on antifungals like ketoconazole daily, wait 1hr to apply Mirvaso. The times I haven't waited this long the Mirvaso has worked but with less effectivness.
2. Apply Mirvaso when skin has dried after washing.
3. Truly use a 'pea size' amount as instructed. It really doesn't come out in a spherical shape so this becomes a tad difficult to do. All I can say is to not try to see a visible layer of the stuff everywhere. Just put a small amount on your finger and spread it on a cheek and that side of face and if it looks like it's not spreading anymore put a very very little more on the area that needs it. I have NOT noticed better effectiveness with a more liberal application. I have actually, for me, noticed the opposite.
4. Avoid normal triggers. For me, Mirvaso exacerbates normal flushes quite a bit.

One thing is for sure, no treatment or makeup I have ever used even comes close to offering (even if temporary) such an improvement as Mirvaso. I tentatively consider it a success, and please don't get discouraged by the negative posts here.

Hi billyraybar,

Thanks a lot for the time and detail in this report. If mirvaso works for you, that's great. Keep
Us updated. As you know, it is very controversial the " success" and side effects of this product. Your
Input is appreciated very much.

[GreenGables]

It's a bit over the line to call Scot crazy for his understanding. His comments are based in sound science. I took away from his post that the Doctor was not attending to his personal needs but simply shilling for the pharmaceutical companies and if I were him I'd be looking for a different Doc.

There's nothing wrong with his comments, but in context of this supposed word-for-word conversation, the derm asks a simple question and gets a monologue. It wasn't what he said, it was how he said it, it was completely out of normal human conversation.

If he was having an online forum conversation...sure...one question and a whole non-stop paragraph might be okay. But in person, who talks like that? If he actually said all that in person, I doubt anyone would really be able to decipher the content of his message unless he spoke really slowly.

Anyway, I really think we should direct this back to positive Mirvaso experiences, I'm not sure why Scot jumps in with his tirade about his dermatologist who didn't listen to him. There's already a 54 page thread of people complaining if anyone wants to join in on that bandwagon.

[Scot Viking]

I really hope you dont speak like that lol. Also why even pay to see a derm when youve seemingly made progress yourself.

Indeed I do. And we all should have a grasp on this subject like that, and the gumption to do our own research - and when we have a success - state it. I was a lifeguard during my early years and have a lot of sun damage and have iffy patches removed from my skin every 6 months. Why would seeing a dermatologist conflict with having your own knowledge? it does not.

[Scot Viking]

I agree with you Scot. The thing is, if we the consumers seek out medical doctors, we will
Get an " industry" response--- for the most part. If we seek help in more alternative direction naturopaths
i.e. etc.... We could have a conversation like the one you were trying to engage with
Your MEDICAL doctor. My experiences with the medical community ( autoimmune issues, degenerating
Spine disease) is to always have a script shoved in my face.

Yes, I have had knock-down drag out fights with my physician for using 1950's guidelines on the thyroid gland for instance and lowering my T4/T3 without asking me or having me report symptoms and conducting a discussion. He just phoned in a lower T4/T3 to my pharmacy because of one blood stat, compared to a 1970 chart. Then I gain 20 lbs in two months and he tries to accuse me of cutting back on my running and workouts. Which is baloney. So I cite my pulse of 48 and my body temp of 97.6 and my low energy and tell him....

...he is wrong. Return me to my optimal physical dosage. And he did.

[Scot Viking]

But also, i have no doubt that the conversation didnt go like that at all, nobody would actually talk like that so conceited and passive aggressive.

This was unwarranted and low class ugly. How you regard and treat others is the greatest indicator of conceit. A lesson one learns in a life spent focused on the positive. With that I will bow out and let it shift back to positive experiences. Sorry to have troubled you with my experience.

[Starlite]

This whole thing seriously pissed me off. I'm sorry this went on Scot. I've enjoyed your posts. Don't let a few fools stop you from sharing.