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Mirvaso Positive Experiences

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  • #16
    some comments are slowly surfacing on facebook also


    Mirvaso Gel Coupon (Cost Reduction Card) now available

    On contact the Mirvaso works quickly and relieves the redness. Great stuff!
    Get Rosacea News here - https://rosacea-support.org

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    • #17
      The facebook comments can be very misleading!

      All of use have had some initial success and have been excited about it. I was very excited, thinking that rosacea would largely a thing of the past for me. But after a couple weeks reality set in and I suffered the same rebounds as most have.

      We can not and should not make decisions based on initial reactions. Taken out of context, all users have been "initially successful".

      Comment


      • #18
        Originally posted by David Pascoe View Post
        some comments are slowly surfacing on facebook also
        Also noticed this person just used a sample. I don't think responses are meaningful until they have used it for a while and then determined if they have resistance and/or rebounds. I want to be as positive about it as possible, but looking at short term results would be irresponsible.

        Comment


        • #19
          Originally posted by wiry View Post
          Also noticed this person just used a sample. I don't think responses are meaningful until they have used it for a while and then determined if they have resistance and/or rebounds. I want to be as positive about it as possible, but looking at short term results would be irresponsible.
          Essentially I agree with you. But " success" for many people is a temporary reprieve from symptoms
          For a special event.... Despite rebound. If indeed 16 million people in the USA have this chronic condition,
          Millions will be satisfied with a temporary fix and call it a "success.". ( IMO).

          Comment


          • #20
            Mirvaso was not released in Spain... so .. i am waiting for it...

            Comment


            • #21
              Originally posted by Birdie View Post
              Essentially I agree with you. But " success" for many people is a temporary reprieve from symptoms
              For a special event.... Despite rebound. If indeed 16 million people in the USA have this chronic condition,
              Millions will be satisfied with a temporary fix and call it a "success.". ( IMO).
              Well, who knows. It is very possible that after experiencing side effects, this person never uses it again (that seems to be typical for most people). So it may be a success for a few days only for all we know. To quote initial reactions is irresponsible if you ask me.

              If you look at the early users, we all had "success" and things were looking positive. Everyone in Europe/Canada was asking (begging/pleading) how to get the stuff. Then, all the rebounds came. People would not use it anymore. No one in Europe/Canada is even asking how to acquire it. In fact, they are relieved they were not guinea pigs.

              Comment


              • #22
                I haven't used it today because I am not going out in public.

                Baseline redness is the same as it always is. No rebound.

                I'm not an active poster on these forums, more of a lurker, but I'll keep you guys updated if I stop using Mirvaso.

                If I continue having positive experiences, it would just be like makeup to me. Not a cure, but something that helps me get through the day without looking like a tomato. And at least Mirvaso looks more natural than the sheer amount of makeup I'd have to pile on without it.

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                • #23
                  GreenGables,

                  That is great for you! That is exactly what I had hoped for, but it did not work out. Please keep us updated on your long term progress. My rebound was a bit delayed.

                  Comment


                  • #24
                    Mostly positive experience

                    In my last post I described the the painful side effects Mirvaso has seemingly caused. Here is some quick background information. I have been suffering from seborrheic dermatitis (scalp and face. and Rosacea (intermittent p&ps, and progressively worse persistent erythema). Both conditions present themselves all over my face -- the seb. derm. the usual spots plus splotches on my face; the rosacea redness all over my face including normal areas of cheeks, chin, and nose.). The redness is persistent but looks better some days than others. I can tell you the posts in this forum that claim severe rosacea don't hold a candle to the extreme all over redness I experience. During flares, edema (swelling), heat and ocular pain are all present and debilitating. I have tried all 'alternative' and evidence based remedies/medications except for Accutane. Daily Ketoconazole gel or foam and Oracea have kept both conditions under control for about 3yrs now. By under control, I mean no severe flares at all, flushing doesn't occur for me under most conditions and isn't nearly as severe as it had prior to the medications. But make no mistake about it, the erythema is NEVER gone and even on good days it is never just limited to cheeks or chin. It is almost everywhere on my face every day. Okay...

                    Mirvaso makes me really red immediately upon application as does any cream or product I apply to my face. The contact wearness wears off anywhere from 30mins to 1hour and then my skin, almost magically improves. Most days my face turns darn near PERFECT .. AMAZING ..at about the 3hr mark to the 8hr mark. Then still shows positive effects at the 12 hr mark sometimes lasting improvement to 24hrs later ..no joke! The first 7 days using this product the side effect of severe, painful flushing, with redness I haven't seen in years occured at around the 4-5 hour mark and lasted anywhere from 3yrs to 12+hours later!! Yikes!!!! It was depressing and I then gave up on Mirvaso out of fear that it was going to cause permanent damage. I did certainly experience rebound redness/flushing after stopping usage. About three days after stopping the rebound flushing/redness was pretty much gone and 3days ago I decided to try another round and .......Things are better!!!!! The flushing didn't occur on the first day of the second round I experienced perfect skin tone and no flushing or adverse effects at all --Miraculous!!! The second day after about the 4 hour mark ...BAM!! Flush, pain redness, but it only lasted about 1hr or so this time and after it was gone my skin returned to approximately 90% clear. Dang ...I can live with that!! Day 3 of second round, I woke up in the morning and my redness was pretty bad but not all that much worse than my 'baseline'. Mirvaso this day, never really cleared my past about 70% or so of normal redness......weird ...the only thing I did different is that I applied Mirvaso in the bathroom after a shower with very high humidity in the air --maybe it had an effect? -- not sure, though. Yesterday was day 4 or the second round and my skin cleared almost 100% again at about the 3hr mark!! The 5hr mark... BAM!!! Severe pain, redness, heat, etc. I was attending an international figure skating competition with my wife and it was cool in there but it felt like 200 degrees. I went in the bathroom, looked in the mirror, and saw it was definitely an abnormal flush (no trigger), and it looked bad but not nearly as bad as the previous flushes. It went away about 1hr later. After the flush my skin wasn't quite 100% improved but I'd say I looked about 70% better to the 10hour mark. After that I returned to normal, rotten, red skin ..maybe a little worse. I awoke this morning looking quite bad and I decided to not put it on today. The redness was some sort of rebound and worse than baseline by far. Oddly enough with not Mirvaso, about 3hours later, after waking, the redness is now gone and my skin looks a tad better than baseline. Weird.

                    Well, I consider Mirvaso a sucess!!! When I apply Mirvaso in the morning and put on my normal Mercier tinted moisturizer, my skin looks anywhere from pretty good to flawless like a movie star!! Wow ..except for flushing periods out of nowhere. When I just apply Mirvaso (without tinted moisturizer) I look anywhere from acceptable to really good with very slight (slight for me considering my condition) redness. A trend that I am noticing is that the longer I try Mirvaso the better! I have no idea the mechanisms involved for this but my flushing is getting better. Of course, I cannot say that if I stopped for good there wouldn't be any long term consequences ...for that I have to put my 'faith' in the research/FDA process. Okay, here are some tips for first time Mirvaso users ..especially with seb derm combination skin.

                    1. If you put on antifungals like ketoconazole daily, wait 1hr to apply Mirvaso. The times I haven't waited this long the Mirvaso has worked but with less effectivness.
                    2. Apply Mirvaso when skin has dried after washing.
                    3. Truly use a 'pea size' amount as instructed. It really doesn't come out in a spherical shape so this becomes a tad difficult to do. All I can say is to not try to see a visible layer of the stuff everywhere. Just put a small amount on your finger and spread it on a cheek and that side of face and if it looks like it's not spreading anymore put a very very little more on the area that needs it. I have NOT noticed better effectiveness with a more liberal application. I have actually, for me, noticed the opposite.
                    4. Avoid normal triggers. For me, Mirvaso exacerbates normal flushes quite a bit.

                    One thing is for sure, no treatment or makeup I have ever used even comes close to offering (even if temporary) such an improvement as Mirvaso. I tentatively consider it a success, and please don't get discouraged by the negative posts here.

                    Comment


                    • #25
                      Mirvaso is Mandatory it Appears

                      Well the Mirvaso "COST REDUCTION CARD" is not available for Non-Insured or Self-Insured Patients. Oh well.

                      Today's discussion with my Dermatologist:

                      Derm Doc: "And how is your Rosacea Scot?'

                      Scot: "I have made excellent progress without anti-biotics or any topicals. What I am finding is that my infections, and they are infections, are related to my body reacting to specific foods: Wheat, corn, alfalfa, soy, and canola oil - by eliminating these foods and promoting healthy intestine function, I have been able to completely eliminate my infections."

                      Derm Doc: "Well Scot I have a new topical for you to try, as it will eliminate all the redness."

                      Scot: "Doc I appreciate it but I have excellent success with diet, AND, really this is an INFECTION, not acne, which stems from an auto-immune disorder triggered by consumption of accelerated genetic distance foods - and relates more to the large intestine than it does to pores or skin. I mean, these infections come from WITHIN, and begin as bacterial infections in the subdermal capillary bundles. You know I have tried at least 6 topicals over the years, and THEY SIMPLY DO NOT WORK. Plus, eliminating the flushing is like curing a cold by reducing one's body temperature - it is chasing the wrong thing. Eliminate the auto-immune disorder and the flushing will not happen in the first place."

                      Derm Doc: "Nonsense, ...now, this Mirvaso Gel is not cheap, but it will eliminate the flushing and you will have a lower occurrence of sores. I am writing you a prescription for Mirvaso Gel, so go and get some and try it out. Very good to see you, and everything looks good. See you next time."

                      So I guess Mirvaso Gel was mandatory and I was not given the memo.

                      This is why false medical knowledge persists. Pharmaceutical companies, produce product which addresses the wrong condition, does not apply to the underlying causes, and is enforced through blind fashion market push dogma (and I know a fashion market push, as I work in that industry) which blocks the ability of people to get the message of real success into the minds of the technical professionals.

                      This is called ignorance. It is an action, it is willful and it is pervasive.






                      .
                      Last edited by Scot Viking; 22 October 2013, 03:09 AM.

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                      • #26
                        Supplement

                        As a supplement to my previous message. If Mirvaso eliminates redness, then this is certainly a good thing.

                        My only objection is that in our grappling with this disease - Market Pushes should NOT:

                        1. should not whipsaw our understanding of the malady mercilessly and en masse, simply on the revenue plans of large pharmaceutical companies, nor

                        2. should not divert attention of the sufferers at large into dead end cul-de-sacs of distraction which prevent actual progress towards understanding the true nature of this auto-immune disorder and its causes.

                        But for those who are getting redness reductions. Awesome to hear.

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                        • #27
                          Wow Scot, I can not believe this happened. Just stunned.

                          Comment


                          • #28
                            Originally posted by Scot Viking View Post
                            Scot: "Doc I appreciate it but I have excellent success with diet, AND, really this is an INFECTION, not acne, which stems from an auto-immune disorder triggered by consumption of accelerated genetic distance foods - and relates more to the large intestine than it does to pores or skin. I mean, these infections come from WITHIN, and begin as bacterial infections in the subdermal capillary bundles. You know I have tried at least 6 topicals over the years, and THEY SIMPLY DO NOT WORK. Plus, eliminating the flushing is like curing a cold by reducing one's body temperature - it is chasing the wrong thing. Eliminate the auto-immune disorder and the flushing will not happen in the first place."
                            .
                            I really hope you dont speak like that lol. Also why even pay to see a derm when youve seemingly made progress yourself.

                            Comment


                            • #29
                              Originally posted by Scot Viking View Post
                              As a supplement to my previous message. If Mirvaso eliminates redness, then this is certainly a good thing.

                              My only objection is that in our grappling with this disease - Market Pushes should NOT:

                              1. should not whipsaw our understanding of the malady mercilessly and en masse, simply on the revenue plans of large pharmaceutical companies, nor

                              2. should not divert attention of the sufferers at large into dead end cul-de-sacs of distraction which prevent actual progress towards understanding the true nature of this auto-immune disorder and its causes.

                              But for those who are getting redness reductions. Awesome to hear.
                              I agree with you Scot. The thing is, if we the consumers seek out medical doctors, we will
                              Get an " industry" response--- for the most part. If we seek help in more alternative direction naturopaths
                              i.e. etc.... We could have a conversation like the one you were trying to engage with
                              Your MEDICAL doctor. My experiences with the medical community ( autoimmune issues, degenerating
                              Spine disease) is to always have a script shoved in my face. I imagine your experience will be the
                              New normal for mirvaso as it was with doxy and oracea etc.... My derm is pretty good, not great. And
                              As I have an appointment coming up, I'm sure she will talk the mirvaso talk. I'm sure if I told her
                              The progress I was making with paleo and bone broth she would say, " Wonderful!" Next patient please!"
                              birdie

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                              • #30
                                I also just want to briefly add that this forum is a great resource for " the medical industry" ---
                                If a person chooses to go that route with meds, topicals etc.... But also fantastic resource
                                For " natural approaches" to relieving rosacea. It is up to each " consumer" of this forum
                                To determine the route best for them.

                                That being said, I'm hoping more positive experiences with mirvosa/mirvaso are accounted for here.
                                Anyone with success, please reply. We need the feedback.

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