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  • darren1
    replied
    Originally posted by davekelly View Post
    You see this is what Im trying to explain to people

    I. Mirvaso in its current Form is too strong

    2. Using this every day is recipe for Disaster . ( And in your case it only took 2 days to have you looking like this )

    Galderma do not care about us . And your case is further proof of that . And your scumbag dermatologist hasn't got a clue .
    A derm told me that Mirvaso is supposed to be used continually and that the people who have bad reactions to it are not using it correctly. I paid £200 to be told this. I don't trust doctors anymore.

    Leave a comment:


  • Tengu
    replied
    So far so good

    Hi all, this is my first post on Rosacea Forum.

    Some basic info: I'm 32-year-old woman and my face has been red since I was 12-13 I guess? So pretty much my whole juvenile and adult life. As a child I suffered from atopic eczema, as a teenager from couperosa/rosacea & acne and now as an adult "only" rosacea. So long history with bad skin I'd say! My rosacea seems to be the subtype 1.

    I got tired of being red recently and bought Rosazol from the pharmacy, but apparently I'm allergic to metronidazole since I got a really really terrible reaction that took several days to calm down. So I went to the dermatologist and she gave me the official diagnosis of rosacea. The derm put me on antibiotics (Tetralysal) for 3 months, which made maybe a little difference, I felt like some of the redness was perhaps reduced and that I didn't flush so easily, but it's hard to tell really. After the antibiotics she recommended Mirvaso cream for the symptoms. I told her I'd read only bad stories of Mirvaso online, and she somehow hesitantly stated that actually she and her colleagues weren't so excited about Mirvaso either. But she said that only after I brought up the subject, which I find a little strange - maybe she just didn't want to make me prejudiced against Mirvaso or smthng? She also told that probably the best option for me would be laser treatment, but right now I'm unfortunately broke so that has to wait a while.

    So I started using Mirvaso, this was three weeks ago. I don't put Mirvaso on every day, but every other day or so, so I don't know how much this is affecting the outcome. I was really nervous about the possible rebound, and actually I got a mild rebound after first couple of times, but the rebounds only lasted for the next morning-midday and then gradually faded away, and were nothing I couldn't cover up with mineral make up (I use Lily Lolo, which is not even super heavy make up). And the interesting thing is that I don't get the rebounds anymore! When I had the only rebounds so far (after two first applications) I experienced burning sensations as well and was a little bit worried since that's not normal for me, but those sensations stopped along with the rebounds.

    When I apply Mirvaso, it takes about one hour to kick in, and I achieve the best look in about three hours after applying. My nose stays red longest, which is a little annoying since it's also big and ugly, but it turns pale as well eventually. LUCKILY. The effect lasts for, I don't know, maybe 7-10 hours...? If I wash my face, the redness returns as well, but if I don't wash my face, I can be quite happily pale-palish all day. And even when it starts wearing out, it doesn't do it suddenly, or cause any sudden flushing (at least not yet...), so it just really gradually changes from pale to normal, then normal pinkish, pink and so on. Nothing extreme, even in the end, and nothing worse than my normal baseline redness.

    So right now it seems like Mirvaso is actually working for me, and I have to say that I really like it as well. I love being normal without make up, haha...

    I will return to this thread later and update my Mirvaso experience, I hope it stays like this but of course you never know, especially hearing you guys' stories. I'm aiming for the laser treatment, but only when I'm better off financially. I also cut most of the wheat and all dairy products from my diet two weeks ago, which might affect the outcome, just that you know.

    Anyway it's nice to be on this forum, and thanks for those brave ones who endured through this wall of text

    Leave a comment:


  • julien420
    replied
    Originally posted by kfranke View Post
    I had the exact same experience. I used this Hitler cream one time (ONE TIME) last November and to this day I am still paying the price. I used to have slight redness on my nose and cheeks. Dermatologist prescribed me Mirvaso; didn't warn me that it could do any real damage. He just said I might experience rebound flushing but that it would go away quickly. HA. It lasted weeks! Every night my face would get so red, sometimes purple. That part of the nightmare has ended, thankfully, but I still flush more easily than I did before, especially when I sleep, and I now have redness in areas that I didn't before using Mirvaso. This is after ONE application, people. I am going to give it a year to the day that I used Mirvaso, and if I am still not satisfied with the way I look I'm going to look into laser treatments. Not looking for a silver bullet. Just an improvement, for God's sake.

    Anyone else have a similar experience? Any suggestions as to what I and others like me should do to heal? This was honestly one of the worst mistakes of my life so far. If only I could turn back the clock and tell myself to throw the cream in the trash!
    Real sorry to hear about your awful expeirence with this poison . I just pray that Rhofade ( due out in May) will be different otherwise the show is over folks , because we will be stuck with Redness and Flushing for ever .

    Leave a comment:


  • kfranke
    replied
    Mirvaso is the devil...STAY AWAY!

    Originally posted by Pilatuna View Post
    Please be very careful when using Onraltea.
    I have a mild case of Rosacea and usually during the winter months can get a bit worse.
    I was prescribed with Onraltea by my dermatologist. The first day I used it, I felt fine during the day, however, during the evening I started to experience awful redness and flushing. I have never had such a red face, it is awful. It feels almost like a bad sun burn. I regret that I didn’t read anything about it before I started using it. I should have stopped the very first day. Becasue I thought my skin needed time to adjust to the new medication, I used it for 3 days….What a mistake. It got worse each day.
    I have not use it now for 5 days and I am still getting the redness, flushing and burning sensation in my face. This happens mostly in the evenings but during the day I have had a couple of flare ups. I regret so very much to have used it. It did not help me at all. What was a very mild case of Rosacea now feels it is not mild anymore. I truly hope this flushing, redness and burning sensation goes away for good. I feel very upset that my dermatologist nor the farmacist warned me of these possible effects and told me to stop it immediately if they happen.
    To everyone who is reading this forum, please be very very careful with Onraltea.
    I had the exact same experience. I used this Hitler cream one time (ONE TIME) last November and to this day I am still paying the price. I used to have slight redness on my nose and cheeks. Dermatologist prescribed me Mirvaso; didn't warn me that it could do any real damage. He just said I might experience rebound flushing but that it would go away quickly. HA. It lasted weeks! Every night my face would get so red, sometimes purple. That part of the nightmare has ended, thankfully, but I still flush more easily than I did before, especially when I sleep, and I now have redness in areas that I didn't before using Mirvaso. This is after ONE application, people. I am going to give it a year to the day that I used Mirvaso, and if I am still not satisfied with the way I look I'm going to look into laser treatments. Not looking for a silver bullet. Just an improvement, for God's sake.

    Anyone else have a similar experience? Any suggestions as to what I and others like me should do to heal? This was honestly one of the worst mistakes of my life so far. If only I could turn back the clock and tell myself to throw the cream in the trash!

    Leave a comment:


  • MonicaL
    replied
    New User Need Help!!

    Hi all! Hope I'm doing this right...never been on a forum before! So my Derm gave me Mirvaso and Ivermectin cream. I'm noticing the rebound redness that everyone is talking about. Also it takes more and more to make me not red, when I first started it I only needed a little. HOW do I help the rebound redness once I stop Mirvaso. (Been on it for 3 weeks) the Ivermectin cream seems to help a little with the bumps. But not 100% makes them go away. Does it take awhile? What else is there? I've heard of Rosacea LTD. I'm so tired of wasting my money AND I'm tired of being embarrassed of my face and being in pain when I really have a flashing attack. PLUS all of a sudden 3 days ago my chest blew up in bumps. I used to think I was just ok looking for a 37yr old haggard mom of 2!! But now I loath seeing my face in the mirror.

    Leave a comment:


  • Pilatuna
    replied
    Onraltea

    Please be very careful when using Onraltea.
    I have a mild case of Rosacea and usually during the winter months can get a bit worse.
    I was prescribed with Onraltea by my dermatologist. The first day I used it, I felt fine during the day, however, during the evening I started to experience awful redness and flushing. I have never had such a red face, it is awful. It feels almost like a bad sun burn. I regret that I didn’t read anything about it before I started using it. I should have stopped the very first day. Becasue I thought my skin needed time to adjust to the new medication, I used it for 3 days….What a mistake. It got worse each day.
    I have not use it now for 5 days and I am still getting the redness, flushing and burning sensation in my face. This happens mostly in the evenings but during the day I have had a couple of flare ups. I regret so very much to have used it. It did not help me at all. What was a very mild case of Rosacea now feels it is not mild anymore. I truly hope this flushing, redness and burning sensation goes away for good. I feel very upset that my dermatologist nor the farmacist warned me of these possible effects and told me to stop it immediately if they happen.
    To everyone who is reading this forum, please be very very careful with Onraltea.

    Leave a comment:


  • DanRosa
    replied
    Originally posted by Littlelassie View Post
    I used Mirvaso for three days. The first day I used too much (still less than the recommended amount). I was very pale and it looked abnormal, and lasted for 6-8 hours. The second two days I used less and started to see signs of rebound when it would wear off. Honestly I didn't believe in a "rebound", I'm not sure why. I especially didn't think I would be someone that had a rebound. A day after I stopped the mirvaso, I flushed really badly. That was the first time I've ever really flushed. It has been 5 days since I've used any mirvaso and I still have been getting flushy/extra red when I get too warm or eat something spicy. Those are normal triggers for people who typically flush, but I didn't flush before this. I'm hoping that if I'm gentle on my skin and avoid getting too warm things will settle out and go back to how there were before. My advice is just to be careful. Take it slow and don't use too much. Hopefully a lot of people can still benefit from this, but I'm too scared to try it again. If I get a good baseline picture (when my skin is looking normal) I will post some pics. I have some with the mirvaso on and 1 during the flush (my husband was impressed with the redness and felt the need to document).
    Hello Littlelassie, today I find myself in the exact same situation, I wasn't a typical "flusher" but now after using mirvaso I am, big time! I've used it for only five days, nose only, and I noticed that something wasn't right.
    Five days have psssed without using it, and I'm still flushing like never before, my question is do you remember how long it took for you to get back to normal after stopping with the mirvaso?
    Thank you

    Leave a comment:


  • andyb
    replied
    mirvaso

    Hi all. Just joined the site this morning.

    Turns out that i am a rare success story (so far) of mirvaso. Ive been using it for around 4 weeks and its worked wonders.

    I have redness / flushing across my nose and cheeks which i jave had for around 10 years or so. Found Mirvaso online and gave it a go. Firstly just on my nose and it worked well, reducing the redness on my nose and somehow making my cheeks appear slightly less red too. It appeared to work for 3 or 4 days atleast! Which was a little weird but great at the same time. Hopefully i dont experience any rebound like you guys have.

    Ive found by using a small amount of mirvaso twice a week along with my usual skin care routine its made a real difference. Dermalex twice a day morning and night keeps my skin calm. Not sure if this helps to calm my skin post Mirvaso use ?

    Anyway. Hi everyone. Really interesting finding this website. Good luck to all

    Leave a comment:


  • tim333
    replied
    miravaso

    I eosh i would've done research before trying this product. I only used for a couple weeks and not every day, but i do feel like my skin is worse now. Havent used for 2 weeks and wont again. Ive been having burning sensations and am not sure if its from the miravaso.

    Leave a comment:


  • samoht
    replied
    hi everyone....

    i tried mirvaso now for the first time....
    first day i almost couldn't see an improvement in the redness i felt that everything despite the red cheeks got whiter but the cheeks stayed the same....strange. i didn't have any rebound effects or stinging or whatever. i thought i wouldn't use it for 2 days just to look what happens...nothing happend.
    today i used it again and i have the same reaction....redness stays almost the same.... no stinging or rebound till now.

    i've been to two dermatologists. both gave me mirvaso...one of them told me that with ipl i would get rid off the redness (maybe 2-3 treatments). the other one told me that it's not possible to laser it...because the surface would be too big and it is difficult to get an evenly surface because the lasers can only laser small spots...

    i'm not really sure about everything....
    mirvaso sounds like a really dangerous medication and i'm not sure if i should use it despite of not having any bad reactions....till now...maybe they come in the near future.
    and what about the laser...is it true that it is difficult to laser it...? i only got reddish cheeks...no pimples.

    Leave a comment:


  • wiry
    replied
    You previously mentioned that your rosacea has been consistently getting worse. Mirvaso is known to do that over time.

    Leave a comment:


  • SBD1212
    replied
    I've been using Mirvaso since I was diagnosed with Rosacea and love it. It improves my baseline redness for about 6-12 hours and helps reduce flushing. I don't think I have ever noticed rebound flushing from it, but even so, I couldn't function without it. My face is so red after showering in the morning that I wouldn't be able to function at work for hours while my face was calming down. But with mirvaso, I put it on and 30 minutes later I look like a normal person again. Not to mention, when trying a new product for my rosacea, often times my skin gets inflamed and worse in appearance (until it improves on its own or I stop the product and try something else). At these times, Mirvaso is awesome because it can hide the redness/inflammation enough to get you through the work day or while out with friends so you don't look horrible all day.

    Leave a comment:


  • Laura41
    replied
    Mirvaso

    Originally posted by •Velvet•Lilac• View Post
    Hi, everyone! Hopefully this is going to land in the correct thread since I am a new member and a first time poster. I have many questions regarding rosacea itself as it has been plaguing me severely for the past five months but I felt like I have to chime in my 2 cents on Mirvaso first - because it's effects were unbelievable and not in a good way either.

    In a moment of desperation I used it three days ago as my face once again flushed completely red. I got it just a little over a month ago - I read all of the negative reviews and it wasn't a product I just slapped on my face without informing myself about it first. In fact there were so many negative reviews online that I refused to even try it at first. I only kept it because of the "you never know" situation.
    That said - moment of desperation - I put it on.
    In approximately an hour to an hour and a half I noticed it working. For the first time in a few months I've seen my face the way it was suppose to look like - not ghostly pale, no problems with the colour being uneven. It kind of felt like a miracle. I was quietly dreading the side effects - but for the time being I felt ecstatic. After 8 hours the cream started to slowly wear off and I noticed very small patches of red again. Very little patches - I thought if this is "it" it is really not so bad. Afterwards I went to bed.

    What I woke up with is a different story entirely. My face was burning red in places it has never been before. The red wasn't just "red" it was so red it looked half purple. Blotchy, stinging. As the day progressed my redness only got worse.
    Day two - I still woke up redder than ever before but the redness subsided after a few hours - then came back again. I didn't flush like I normally would ( where you feel a slight warning 5 seconds before it happens ) - I just looked at myself and saw my face tomato red - or it started with a little red spot that spread all over my cheeks/nose within an hour.
    Day three - the situation looks like it calmed down a little - I'm really-really-really hoping this was it as far as the side effects go.

    Conclusion: I would never touch Mirvaso again with a 10 ft. pole regardless of my desperation.

    If there are people who find it useful/helpful - that's great - good luck to you, though!
    Hi, this is my first time posting. I found this web site/forum and have just been reading the posts for awhile, but I saw yours and wanted to respond. I had a similar experience but not as severe as yours. I too was given the cream by one dermatologist who recommended it, I was also afraid to use it but like you out of desperation and the hope to look normal I used it. At first, I thought it was great, my face almost looked normal, I barely had to use any makeup at all. Then after it started to wear off I flushed worse than I had before I used the Mirvaso. My face also felt hot like I had a fever. That subsided by the next day, I went down to my usual redness. I used it two or three more times since then, I just wanted to look normal and the flushing afterwards I didn't think was too bad. The last time I used it was when I went out to dinner and noticed the medicine started wearing off and I looked like an idiot, I was half red and half white, all blotchy, I looked worse than if I was all red. I also believe that my face looks worse now because I used that, I am convinced it left permanent marks on my face. I've been to a new dermatologist since then and when I told him I used Mirvaso a few times, even he said he doesn't like the stuff and doesn't recommend it. I just hope enough people read these posts and don't try it like we did.

    Leave a comment:


  • nat007
    replied
    It's not just normal medical studies that turn out to be heavily funded and influenced by the pharmaceuticals, now new research shows that almost 80 percent of meta-analyses in the review ALSO had some sort of industry tie, either through sponsorship, which the authors defined as direct industry funding of the study, or conflicts of interest, defined as any situation in which one or more authors were either industry employees or independent researchers receiving any type of industry support (including speaking fees and research grants).

    http://www.salon.com/2015/10/25/how_...ium=socialflow

    No doubt this is how Mirvaso got its reviews and study results out there.

    Leave a comment:


  • TinyDancer
    replied
    20/20

    We should get a show like 20/20 to do a show about this exposing the harm caused by galderma and Mirvaso.

    Leave a comment:

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