Mirvaso user experience

[kahsern]

hello everyone. Has anyone normalized after using onreltea/mirvosa? It has been 13 days off and the blushing has subsided a bit but still far more red than my original baseline.

Hi Redrose,

I have just stopped using mirvosa yesterday and my symptoms have worsened. I have these beet red patches and burning sensations all over my face and in areas that i didn't have in the first place. Did you use any type of moisturiser / cream in the days after you stopped using it to ease the burning?

Im really worried at this point..

Cheers,

Mitchell

[Shikasta]

Hi Redrose,

I have just stopped using mirvosa yesterday and my symptoms have worsened. I have these beet red patches and burning sensations all over my face and in areas that i didn't have in the first place. Did you use any type of moisturiser / cream in the days after you stopped using it to ease the burning?

Im really worried at this point..

Cheers,

Mitchell

Hello Mitchell, I hope you've read by now the many Mirvaso stories...they tend to resolve the same way. About a two week cycle of rebounding: faith and patience required. I believe most if not all have returned to baseline. Stay calm and ride it out. Best wishes to you.

[kahsern]

Hello Mitchell, I hope you've read by now the many Mirvaso stories...they tend to resolve the same way. About a two week cycle of rebounding: faith and patience required. I believe most if not all have returned to baseline. Stay calm and ride it out. Best wishes to you.

Thank you for your response Shikasta. Much appreciated. Like you said, ill just ride this out.. Do you or anyone on here think that i could use an icepack on my face? Or would that just aggravate the skin more. My dermatologist is not back till Monday, so i have no one else to ask..

[Shikasta]

Thank you for your response Shikasta. Much appreciated. Like you said, ill just ride this out.. Do you or anyone on here think that i could use an icepack on my face? Or would that just aggravate the skin more. My dermatologist is not back till Monday, so i have no one else to ask..

I never used an ice pack during a rebound flush. The flushes I experienced were very extreme though and would prompt me to want to do something about them. Often I would go out to my car and sit in the air conditioning for awhile and this seemed to help at least psychologically because I was being proactive. But mostly I just had to let this powerful drug cycle through my system. Keeping calm was a challenge but also very important. You really are going to be ok and you will move on from this bad experience in the not too distant future. And then having found this forum you will learn about diet and other aspects of healing that you never otherwise would have found. Which is exactly what happened for me.

[davekelly]

Thank you for your response Shikasta. Much appreciated. Like you said, ill just ride this out.. Do you or anyone on here think that i could use an icepack on my face? Or would that just aggravate the skin more. My dermatologist is not back till Monday, so i have no one else to ask..

You see that scumbag you call a dermatologist .You should give him a piece of your mind .

Hes the one responsible for your suffering

[Mistica]

I'd advise you apply an icepack with gentle pressure as needed. A covered icepack. I wrap mine in five thick kleenex tissues.
Not everyone recovers from the hell induced by mirvaso. I didn't. It caused extreme vascular damage in my case.
However, I was a severe flusher prior to using this damn drug and while I had beaten the flushing back to a lesser severity, the 'problem' was still there and also the propensity to flush was easily triggered.
I managed to control the damage during the day, but not when I slept. I tried staying awake for as long as possible, but of course sleep deprivation further impacts the immune system and flushing.

Anyway, the fact is, the more you flush, the more you will flush. And the more flushing that occurs, the more damaged and dysfunctional the vessels will become. Angiogenesis will increase.
If you can control the flushing during the rebound, you will likely have more chance of walking away with less damage and less progression of your initial disease.

Icing has several benefits. Cooling constricts the vessels in a much safer way than with drugs.
Cooling reduces mast cell/histamine release, so it is a drug free anti inflammatory tool. Of course, you can overdo ice application and cause inflammation, so go carefully.
Cooling helps decrease the receptors which facilitate flushing.

Sucking on ice cubes also helps.

Now I am going to suggest something which may or may not help. I am in experimental stages myself and it would be impossible to say whether this is going to be helpful to you or not.
I am trying Intermittent Fasting. So, after my dinner at night, which is low carb, gluten free, rather like paleo... I don't eat for 14 to 16 hours. I am doing this a few times per week at the moment.
It has further reduced my flushing, BUT it has increased burning/buzzing episodes, something I have not had in ages. They are slowly decreasing. In my case, it is body wide.
The reason I mention IF in this thread, is that this experiment reminded me of the fact that when I was in absolute hell due to the mirvaso, I virtually gave up eating. I was so scared of food induced triggers adding to my burden, I barely ate and when I did, it was mostly raw vege and a bit of saturated fat.
Looking back, this was when the rebound faded out, but of course, this is correlation, not definite cause.

IF can help reset insulin sensitivity and who knows, what else might it help reset???

David of Iowa is currently trying a ketogenic diet. He is a flusher. Others here have dabbled in it as well, with benefits. There are comparisons with IF.

So, as I said, not really the thread for a dietary discussion, but thought I would mention it as a possible aid seeing I was unwittingly practising IF when my mirvaso rebound finally ended. It was a HELLACIOUS ride and in my case, caused permanent vascular damage.

Anyone who is currently eating a high carb diet, and high dairy diet, may find increased side effects if they dive into a fast.

[Shikasta]

The reason I mention IF in this thread, is that this experiment reminded me of the fact that when I was in absolute hell due to the mirvaso, I virtually gave up eating. I was so scared of food induced triggers adding to my burden, I barely ate and when I did, it was mostly raw vege and a bit of saturated fat.
Looking back, this was when the rebound faded out, but of course, this is correlation, not definite cause.

I had forgotten about that episode in my mirvaso experience too. I had stopped eating for fear of instigating a flush. The flushes would come and go seemingly of their own volition and I could do nothing to control them.

I became fearful of eating and eventually adopted a very resticted diet which resulted in ketosis. I had no idea what was happening until I started looking up my symptoms such as the dry iron metal quality of taste I was having, as though my teeth were dry.

Since then I have increased slightly my carb intake because I didn't want to be in ketosis indefinitely. Eating less and only certain foods has definitely reduced the flushing and redness.

Mistica I'm so sorry you went through such hell. It seems like you are finding some meaningful solutions which we are all benefiting from reading about though and thank you for that.

[kahsern]

You see that scumbag you call a dermatologist .You should give him a piece of your mind .

Hes the one responsible for your suffering

Yeah ill be having words with him on Monday Dave.. The way that he prescribed me mirvaso was so nonchalant. Unbelievable.. I've also just booked in to see another specialist on Tuesday.

[kahsern]

I'd advise you apply an icepack with gentle pressure as needed. A covered icepack. I wrap mine in five thick kleenex tissues.
Not everyone recovers from the hell induced by mirvaso. I didn't. It caused extreme vascular damage in my case.
However, I was a severe flusher prior to using this damn drug and while I had beaten the flushing back to a lesser severity, the 'problem' was still there and also the propensity to flush was easily triggered.
I managed to control the damage during the day, but not when I slept. I tried staying awake for as long as possible, but of course sleep deprivation further impacts the immune system and flushing.

Anyway, the fact is, the more you flush, the more you will flush. And the more flushing that occurs, the more damaged and dysfunctional the vessels will become. Angiogenesis will increase.
If you can control the flushing during the rebound, you will likely have more chance of walking away with less damage and less progression of your initial disease.

Icing has several benefits. Cooling constricts the vessels in a much safer way than with drugs.
Cooling reduces mast cell/histamine release, so it is a drug free anti inflammatory tool. Of course, you can overdo ice application and cause inflammation, so go carefully.
Cooling helps decrease the receptors which facilitate flushing.

Sucking on ice cubes also helps.

Now I am going to suggest something which may or may not help. I am in experimental stages myself and it would be impossible to say whether this is going to be helpful to you or not.
I am trying Intermittent Fasting. So, after my dinner at night, which is low carb, gluten free, rather like paleo... I don't eat for 14 to 16 hours. I am doing this a few times per week at the moment.
It has further reduced my flushing, BUT it has increased burning/buzzing episodes, something I have not had in ages. They are slowly decreasing. In my case, it is body wide.
The reason I mention IF in this thread, is that this experiment reminded me of the fact that when I was in absolute hell due to the mirvaso, I virtually gave up eating. I was so scared of food induced triggers adding to my burden, I barely ate and when I did, it was mostly raw vege and a bit of saturated fat.
Looking back, this was when the rebound faded out, but of course, this is correlation, not definite cause.

IF can help reset insulin sensitivity and who knows, what else might it help reset???

David of Iowa is currently trying a ketogenic diet. He is a flusher. Others here have dabbled in it as well, with benefits. There are comparisons with IF.

So, as I said, not really the thread for a dietary discussion, but thought I would mention it as a possible aid seeing I was unwittingly practising IF when my mirvaso rebound finally ended. It was a HELLACIOUS ride and in my case, caused permanent vascular damage.

Anyone who is currently eating a high carb diet, and high dairy diet, may find increased side effects if they dive into a fast.

Thank you Mistica for the feedback. I have been using icepacks regularly now and that has eased the burning some what. Ill definitely take on board your advise on IF. My lifestyle is heavily revolved around fitness/bodybuilding and nutrition so i am very strict on what i put in my body.. I also follow a paleo diet.

Do you know of a site where i can post pictures and get some feedback? I really think i've done serious damage.. parts of my face where i put more of the cream looks like i have 2nd or 3rd degree burns. Did u apply any sought of moisturisers, gels to the affected areas in the days after you stopped with mirvaso?

Thanks again

[davekelly]

Thank you Mistica for the feedback. I have been using icepacks regularly now and that has eased the burning some what. Ill definitely take on board your advise on IF. My lifestyle is heavily revolved around fitness/bodybuilding and nutrition so i am very strict on what i put in my body.. I also follow a paleo diet.

Do you know of a site where i can post pictures and get some feedback? I really think i've done serious damage.. parts of my face where i put more of the cream looks like i have 2nd or 3rd degree burns. Did u apply any sought of moisturisers, gels to the affected areas in the days after you stopped with mirvaso?

Thanks again

Put your pictures up on Twitter ,U-Tube ,

These scumbags (Galderma + Doctors who prescribe it ), cant keep getting away with this .

[kahsern]

I'd advise you apply an icepack with gentle pressure as needed. A covered icepack. I wrap mine in five thick kleenex tissues.
Not everyone recovers from the hell induced by mirvaso. I didn't. It caused extreme vascular damage in my case.
However, I was a severe flusher prior to using this damn drug and while I had beaten the flushing back to a lesser severity, the 'problem' was still there and also the propensity to flush was easily triggered.
I managed to control the damage during the day, but not when I slept. I tried staying awake for as long as possible, but of course sleep deprivation further impacts the immune system and flushing.

Anyway, the fact is, the more you flush, the more you will flush. And the more flushing that occurs, the more damaged and dysfunctional the vessels will become. Angiogenesis will increase.
If you can control the flushing during the rebound, you will likely have more chance of walking away with less damage and less progression of your initial disease.

Icing has several benefits. Cooling constricts the vessels in a much safer way than with drugs.
Cooling reduces mast cell/histamine release, so it is a drug free anti inflammatory tool. Of course, you can overdo ice application and cause inflammation, so go carefully.
Cooling helps decrease the receptors which facilitate flushing.

Sucking on ice cubes also helps.

Now I am going to suggest something which may or may not help. I am in experimental stages myself and it would be impossible to say whether this is going to be helpful to you or not.
I am trying Intermittent Fasting. So, after my dinner at night, which is low carb, gluten free, rather like paleo... I don't eat for 14 to 16 hours. I am doing this a few times per week at the moment.
It has further reduced my flushing, BUT it has increased burning/buzzing episodes, something I have not had in ages. They are slowly decreasing. In my case, it is body wide.
The reason I mention IF in this thread, is that this experiment reminded me of the fact that when I was in absolute hell due to the mirvaso, I virtually gave up eating. I was so scared of food induced triggers adding to my burden, I barely ate and when I did, it was mostly raw vege and a bit of saturated fat.
Looking back, this was when the rebound faded out, but of course, this is correlation, not definite cause.

IF can help reset insulin sensitivity and who knows, what else might it help reset???

David of Iowa is currently trying a ketogenic diet. He is a flusher. Others here have dabbled in it as well, with benefits. There are comparisons with IF.

So, as I said, not really the thread for a dietary discussion, but thought I would mention it as a possible aid seeing I was unwittingly practising IF when my mirvaso rebound finally ended. It was a HELLACIOUS ride and in my case, caused permanent vascular damage.

Anyone who is currently eating a high carb diet, and high dairy diet, may find increased side effects if they dive into a fast.

Mistica... Can i send you some pictures and get your feedback? I feel that our symptoms are very similar. I'd be grateful. My email is djkahsern@yahoo.com

[kahsern]

Hello Mitchell, I hope you've read by now the many Mirvaso stories...they tend to resolve the same way. About a two week cycle of rebounding: faith and patience required. I believe most if not all have returned to baseline. Stay calm and ride it out. Best wishes to you.

Hi Shikasta.. Is it ok if i also send you some pictures and get your feedback? It'd be appreciated. My email is djkahsern@yahoo.com

[DS77]

Negative experience for me. Only applied a pea sized amount on one part of my face (upper right cheek) and washed it off after 45 minutes after reading this thread. My skin never went paler but since this episode I've gone from rarely flushing to flushing on average twice a day now and I've got red patches on the opposite side of my face very low down on my cheek. I'll be honest and say I'm not sure whether this is all down to the physical impact of Mirvaso; after panicking and washing it off I read all sorts of horror stories and this has increased my general anxiety over flushing to the point where I'm struggling to control it. 7 weeks on now and I'm wondering if I'll ever get back to pre Mirvaso levels of redness/flushing on my face.

[Shikasta]

Hi Shikasta.. Is it ok if i also send you some pictures and get your feedback? It'd be appreciated. My email is djkahsern@yahoo.com

It might be hard to tell from pictures. Has the flush intensity started to diminish a little yet?

[kahsern]

It might be hard to tell from pictures. Has the flush intensity started to diminish a little yet?

I used Dermaveen face wash and moisturising cream and saw improvements on the 5th day, but i'm like 12 days in and the redness is still there and in areas that it wasn't before. I got prescribed Advantan-fatty ointment but i am hesitant to use it at this point. Frustrating.. I'll give another update in a week or so