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  • Photos of my Flush

    Photos of my evening flush (principally nose) :



    I flush with meals, emotion, sport, sun, cold, wind, exercise. But also i always flush at the same time the evening, 6 a.m.
    This evening flush is accompagned with fatigue.

    I also have red/purple and cold hand/feet (like raynaud but not the white fingers thing).

    I was tested for lupus and carcinoid ans it's not that.

    Do anybody have the same symptoms ?

  • #2
    Originally posted by Ryohiku View Post
    Photos of my evening flush (principally nose) :



    I flush with meals, emotion, sport, sun, cold, wind, exercise. But also i always flush at the same time the evening, 6 a.m.
    This evening flush is accompagned with fatigue.

    I also have red/purple and cold hand/feet (like raynaud but not the white fingers thing).

    I was tested for lupus and carcinoid ans it's not that.

    Do anybody have the same symptoms ?
    do you get it on weekends too?

    Comment


    • #3
      Originally posted by opare View Post
      do you get it on weekends too?

      yes the weekend too, but probably a little less marked.
      not working (less stress) and sleeping well certainly helps.

      Comment


      • #4
        Originally posted by Ryohiku View Post
        yes the weekend too, but probably a little less marked.
        not working (less stress) and sleeping well certainly helps.
        yes that was my thought regarding stress. and/or maybe work infront of a Computer.

        Comment


        • #5
          Ryohiku

          I used to suffer from the same types of symptoms and a lot more.

          I addressed my syndrome with diet, fasting, trying to modify the gut flora (not the same thing as avoiding food triggers) and supplements.

          My three main supplements, that I depend upon are the following:
          Niacinamide, vitamin C (in the form of ascorbic acid and I also take sodium ascorbate).
          Iodine. (I don't recommend anyone supplement with iodine without doing a lot of research first because in people who have thyroid disorders, or are predisposed to them, iodine can complicate matters).

          I also use topical niacinamide in a special gel.


          I see you are acquainted with mast cell activation disorder, in which case you should understand the theory behind the use of niacinamide and vitamin C.

          Quercetin is also favoured by some people. I tried it years ago and found it didn't suit me, but I have wondered about testing it again. I do have concerns about Quercetin though as some studies show it has some nasty side effects.

          Niacinamide has a number of actions, including reducing oxidative stress. It also reduces mast cell degranulation, which in turn reduces oxidative stress.
          It has an inhibitory effect on nerves to some degree.
          I have found these supplements to be extremely effective, but not a cure. I still have symptoms, but they are reined in. (Taken along with the rest of my regime).

          Vitamin C has similar activities.

          Here are a few studies:

          http://www.sjkdt.org/article.asp?iss...;aulast=Namazi

          https://www.karger.com/Article/Abstract/231265

          https://journals.plos.org/plosone/ar...l.pone.0033805


          Magnesium deficiency increases mast cells, so it might be worth while assessing whether you get enough in diet?

          https://pubmed.ncbi.nlm.nih.gov/2447...liver-of-rats/

          https://pubmed.ncbi.nlm.nih.gov/6445...eficient-rats/

          https://science.sciencemag.org/content/126/3262/29

          I supplement with magnesium periodically and find it helpful. Too much causes flushing as magnesium is vasodilative.
          Different forms of magnesium have different effects and in my case, a low dose in drops is less likely to cause vasodilation.


          Incidentally, I am consulting an immunologist tomorrow who specializes in mast cell activation disorder. I am not confident he can improve upon my current regime (And I don't want to take script drugs), but I have extreme reactions to some medications which are a concern, so I am hoping for some kind of plan to address those.

          If I learn anything useful about MCAD in general which may help anyone here, I will make a post.
          Previous Numerous IPL.
          Supplements: High dose Niacinamide, Vit K2, low dose Vit A. Moderate Dose Vit C, Iodine, Taurine, Magnesium. Mod- dose B's. Low dose zinc. Testing Quercetin.

          Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA 2%, ethyl ascorbate 2%.

          Treating for gut dysbiosis.(This is helping).
          Previous GAPS diet. Have now introduced lots of fibre.
          Fermented Foods. Intermittent fasting -16-18 hours.
          Oral Colostrum. Helps reduce food reactions.

          Comment


          • #6
            Same symptoms

            Hello, I feel the same symptoms. I'm tired of the face getting really red in the cheek area and very searing, plus my hands are red sometimes

            Comment


            • #7
              Originally posted by Jenia View Post
              Hello, I feel the same symptoms. I'm tired of the face getting really red in the cheek area and very searing, plus my hands are red sometimes
              Have you ruled out Erythromelalgia?
              Brady Barrows
              Blog - Join the RRDi


              Comment


              • #8
                What treatments have you used thus far ? Any success.

                Comment


                • #9
                  Flushing

                  Originally posted by Ryohiku View Post
                  Photos of my evening flush (principally nose) :



                  I flush with meals, emotion, sport, sun, cold, wind, exercise. But also i always flush at the same time the evening, 6 a.m.
                  This evening flush is accompagned with fatigue.

                  I also have red/purple and cold hand/feet (like raynaud but not the white fingers thing).

                  I was tested for lupus and carcinoid ans it's not that.

                  Do anybody have the same symptoms ?

                  Comment

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