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Mirvaso has been approved by the FDA.

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    Debhemsley
    Junior Member

  • Debhemsley
    replied
    Originally posted by Debhemsley View Post
    Yes you just have an online consultation with pharmacy2u and they might then approve mirvaso then you can order. They are an online company based in Leeds. Therefore I did not have to pay for private prescription costs as well as the cost of mirvaso. The problem is they are out of stock so now debating with the negative feedback on a Mirvaso do I go ahead with pharmavy2u but they will contact me first to let me know when in stock so I can make a decision then.
    I have found out that it has not been approved by nice and they are looking at it in July so as things stand you cannot get it on NHS prescription but can as a private prescription. Though with the cost of the private prescription and the chemists cost it is still cheaper through pharmacy2u

    Leave a comment:

  • Debhemsley
    Junior Member

  • Debhemsley
    replied
    Originally posted by Vovin View Post
    Does ordering from Pharmacy2u mean you don't need a prescription? My friend is going to London this summer and he could pick me up some.
    Yes you just have an online consultation with pharmacy2u and they might then approve mirvaso then you can order. They are an online company based in Leeds. Therefore I did not have to pay for private prescription costs as well as the cost of mirvaso. The problem is they are out of stock so now debating with the negative feedback on a Mirvaso do I go ahead with pharmavy2u but they will contact me first to let me know when in stock so I can make a decision then.

    Leave a comment:

  • Vovin
    Senior Member

  • Vovin
    replied
    Originally posted by Debhemsley View Post
    Apparently not on nhs approved list in birmingham. Only two options open
    1 private prescription cost 17.50 plus £43 cost
    Or
    Pharmacy2u at £55 cost works out cheaper. They have run out of stock

    Is it worth the cost I am wondering.
    Does ordering from Pharmacy2u mean you don't need a prescription? My friend is going to London this summer and he could pick me up some.

    Leave a comment:

  • Debhemsley
    Junior Member

  • Debhemsley
    replied
    Tried to get on nhs told no

    Apparently not on nhs approved list in birmingham. Only two options open
    1 private prescription cost 17.50 plus £43 cost
    Or
    Pharmacy2u at £55 cost works out cheaper. They have run out of stock

    Is it worth the cost I am wondering.

    Leave a comment:

  • nat007
    Senior Member

  • nat007
    replied
    Originally posted by fauxmccoy View Post
    thanks, nat, for the kind words and sharing your own experience. i felt kind of bad for posting what i did because i know it was off topic and a rant at that. somehow, just reading that one completely insensitive comment on the daily mail article (combined with the return of my stinky clothing a few hours ago) kind of just set me off, i guess. normally, that's the stuff i would keep to myself, so i really do appreciate your words. i think one of the nicest things about this place is knowing that we are not alone. not matter what any one of us has experienced with our conditions personally, with the medical community, and how we face the world, there are others who have experienced the same.

    blessings upon you
    ~cheryl
    Big hug for you Cheryl! Yeah I agree, its lovely to have a community like this one where people can vent, share experiences and tips and failures etc. I hope tomorrow will be a better day for you (and I know all about the washing powder problem; I need to rewash all the clothes I get back from my sister after she borrowed it, twice, to get the chemical stench out of it)

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  • fauxmccoy
    Senior Member

  • fauxmccoy
    replied
    thanks, nat, for the kind words and sharing your own experience. i felt kind of bad for posting what i did because i know it was off topic and a rant at that. somehow, just reading that one completely insensitive comment on the daily mail article (combined with the return of my stinky clothing a few hours ago) kind of just set me off, i guess. normally, that's the stuff i would keep to myself, so i really do appreciate your words. i think one of the nicest things about this place is knowing that we are not alone. not matter what any one of us has experienced with our conditions personally, with the medical community, and how we face the world, there are others who have experienced the same.

    blessings upon you
    ~cheryl

    Leave a comment:

  • nat007
    Senior Member

  • nat007
    replied
    Thanks for sharing your memories and 'rant' fauxmmcoy. So sorry to read about your moms .. well don't even know how to nicely say it. I think a lot of people here can relate and went through something similar; either with parents, siblings, friends or even partners. I developed my rosacea age 19 out of nowhere but it took 6 long years before my own mother and sister started to take it serious. Before that they just gave me a lot of pseudo psycho nonsence about wanting to be sick, exagerating the redness, being vein, obsessive etc. Refusing to put the heating down when I visited, just not showing much love and consolation. So lonely, so heart breaking. I find that you can tell people a hundred times that a flushed face for us feels like it's on fire, on acid, on well whatever superlative you can think of, but they still don't get it or take it serious.

    So sorry for your struggles, at least people here will understand you, lets be grateful that we live in the age of internet :/

    Leave a comment:

  • fauxmccoy
    Senior Member

  • fauxmccoy
    replied
    Originally posted by nat007 View Post
    Exactly! And if that person who wrote that had looked up the amounts of money that go to cancer research each year, compared to the measle few bucks that go to rosacea research (or even eczema /psoriasis research), he/she would think again to state such rubbish. I bet he/she doesn't suffer from a painful debilitating skin condition in the first place, those people always shout loudest.
    one of the most difficult aspects of this condition is how i relate to my mom an RN who has had numerous extra courses on dermatology. she just doesn't get it. she never did. when i was growing up every family member had allergies ranging from moderate to severe, out of 3 kids -- one had eczema and the other two clearly had the beginnings of rosacea. everyone but my mom had sensitive skin.... BUT because she did not suffer from such things it carried no weight on her shopping decisions. we all got laundry detergents that aggravated our various conditions and home fragrance things that sent us to allergy hell. skin care was non existent in her world ... we were supposed to use plain old soap and water. she bought only deodorant soap which i was clearly allergic to and no moisturizer. sunscreen was not even available and it gets to 120F/49C in the summers here. i could not wait to start earning cash and was by age 12, just to improve my own lot in life. the first thing i bought was a decent facial cleanser and sunscreen. above all people, you would have thought she would know better or at least care a little bit more.

    even now that i am 50 and she is in her late 70s this is a source of irritation. her comments on how red or flushed i am at any given point just make me redder and she truly doesn't get it when i try to tell her that it is extremely painful. just before christmas she broke her pelvis and ribs in a nasty fall and i loaned her some garments that were helpful. i left my own family to care for her 24/7 for 2 months. this was manageable because my children are in their teens and my mom only lives a mile from us. last night, she returned these things, saying she had washed them ... well, i could tell that by the reek of the detergents and dryer sheets. i could not even bring them into my home and had to put them in the laundry immediately.

    sorry to get lost on a rant -- but it backs up what you are saying. people who have no experience with this really haven't a clue even if they are in the medical profession. even having a family member who suffers does not always get the message across.
    fauxmccoy
    Senior Member
    Last edited by fauxmccoy; 17 April 2014, 07:09 PM.

    Leave a comment:

  • nat007
    Senior Member

  • nat007
    replied
    Originally posted by fauxmccoy View Post
    that's just pathetic. this person is saying that skin (the bodies largest organ) is undeserving of medical treatment. just plain ignorance, as you said. mind you, i would not touch mirvaso with the proverbial 10 foot pole, but it is not as if a skin medication has been approved at the expense of life saving meds for other conditions. it is not an either/or scenario. in the US, there has been a series of PSAs (public service announcements) about rosacea aired on TV stations. i am glad to see this -- anything that helps the public to understand this disease or that helps them recognize that they may have the condition is a good thing.

    i had a great uncle who i adored who died, literally, from complications of severe psoriasis. after he died, the hardest part was the aftermath, when my aunt was still cleaning uncle freddie's skin flakes from nooks and crannies for years. would this commenter not want meds approved that ease psoriasis as well? i don't think i can stand to read this article and comments.
    Exactly! And if that person who wrote that had looked up the amounts of money that go to cancer research each year, compared to the measle few bucks that go to rosacea research (or even eczema /psoriasis research), he/she would think again to state such rubbish. I bet he/she doesn't suffer from a painful debilitating skin condition in the first place, those people always shout loudest.

    Leave a comment:

  • fauxmccoy
    Senior Member

  • fauxmccoy
    replied
    Originally posted by spuggylegs View Post
    A few ignorant comments as well such as "Embarrassing maybe but life threatening No. So why is it being offered through the nhs when cancer drugs are being with held. Prorities first not vanity first and life second"
    that's just pathetic. this person is saying that skin (the bodies largest organ) is undeserving of medical treatment. just plain ignorance, as you said. mind you, i would not touch mirvaso with the proverbial 10 foot pole, but it is not as if a skin medication has been approved at the expense of life saving meds for other conditions. it is not an either/or scenario. in the US, there has been a series of PSAs (public service announcements) about rosacea aired on TV stations. i am glad to see this -- anything that helps the public to understand this disease or that helps them recognize that they may have the condition is a good thing.

    i had a great uncle who i adored who died, literally, from complications of severe psoriasis. after he died, the hardest part was the aftermath, when my aunt was still cleaning uncle freddie's skin flakes from nooks and crannies for years. would this commenter not want meds approved that ease psoriasis as well? i don't think i can stand to read this article and comments.

    Leave a comment:

  • nat007
    Senior Member

  • nat007
    replied
    Originally posted by spuggylegs View Post
    A few ignorant comments as well such as "Embarrassing maybe but life threatening No. So why is it being offered through the nhs when cancer drugs are being with held. Prorities first not vanity first and life second"




    Yeh some pretty ignorent comments indeed. Also someone saying rosacea is so easily treated with laser, so nobody has to despair anymore having rosacea. Right.... I tried posting a comment too but can't for some reason, can't either select 'best rated' or like something because then the page goes straight up to the top of the article. If anyone else can comment, perhaps try to refer people to this forum for more information and patient reviews on Mirvaso?

    Leave a comment:

  • nat007
    Senior Member

  • nat007
    replied
    Originally posted by Tomas View Post
    I think Nat is looking at the COMMENTS at the end. They are hardly all from Galderma.
    Examples:
    radar, london, 22 minutes ago
    I cleanse my face with organic apple cider vinegar in the night making my skin even redder but the following day all the redness is gone. I try to avoid touching my face at all cost and when I can feel the itchiness of a papule forming I wash my face with a wash containing selenium sulfide 2.5 % for a few days. It's very drying so I don't abuse it but now my skin is normal looking. I wouldn't say its completely cured but a massive visible improvement and the the rosacea is very much under control and no longer taking over my face. It beats antibiotics that destroy your inner flora giving space for more problems.


    Read more: http://www.dailymail.co.uk/health/ar...#ixzz2z8dyGnRw
    Follow us: @MailOnline on Twitter | DailyMail on Facebook
    Yep!! Sorry for not clarifying that better, but like Tomas says, I meant the reader comments below. It won't load all the comments for some reason on their website (might be my browser), but earlier I read someone else warning about Mirvaso rebound in that comment section. And to read the forums about this. Good advice imo.

    Leave a comment:

  • spuggylegs
    Senior Member

  • spuggylegs
    replied
    A few ignorant comments as well such as "Embarrassing maybe but life threatening No. So why is it being offered through the nhs when cancer drugs are being with held. Prorities first not vanity first and life second"




    Leave a comment:

  • spuggylegs
    Senior Member

  • spuggylegs
    replied
    Originally posted by nat007 View Post
    In this article Mirvaso is promoted today for the UK market. There are some interesting readers comments below the article

    http://www.dailymail.co.uk/health/ar...l-redness.html
    some of the comments really tug at the heart strings.
    I live in the UK, and i will not be trying this product, i have had experiences with the eye drops, so its a big NO NO for me

    Leave a comment:

  • Tomas
    Senior Member

  • Tomas
    replied
    Originally posted by Andy33 View Post
    You reckon the comments are done by Galderma ?
    I think Nat is looking at the COMMENTS at the end. They are hardly all from Galderma.
    Examples:
    radar, london, 22 minutes ago
    I cleanse my face with organic apple cider vinegar in the night making my skin even redder but the following day all the redness is gone. I try to avoid touching my face at all cost and when I can feel the itchiness of a papule forming I wash my face with a wash containing selenium sulfide 2.5 % for a few days. It's very drying so I don't abuse it but now my skin is normal looking. I wouldn't say its completely cured but a massive visible improvement and the the rosacea is very much under control and no longer taking over my face. It beats antibiotics that destroy your inner flora giving space for more problems.


    Read more: http://www.dailymail.co.uk/health/ar...#ixzz2z8dyGnRw
    Follow us: @MailOnline on Twitter | DailyMail on Facebook

    Leave a comment:

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