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  • Can We Put All of the Journal Articles in one Place?

    Edit: Some Day will get this whole thread organized - once enough articles have been added
    -mfm


    ================================================== ========================================
    So here's a quick question:

    I mentioned elsewhere that my flushing was triggered (read: likely caused) by using accutane. One part of me thinks that accutane made my body nearly incapable of producing acne, and instead it produces what could possibly be seb-derm, partially because my flushing follows a very splotchy pattern that looks more like a rash and extends far beyond my face onto my neck and chest - also, I guess you could say it resembles P&Ps but very mildly so.

    Anyway, all my derms are completely in the dark about any connection between accutane use and resulting permanent flushing. However, they are open-minded to any suggestions I have as long as they are backed by medical journals to which they can get copies to review for themselves. So, I was wondering if I could get links to journals supporting all of the possible hypotheses that have popped up somewhere on this site, including:

    1. SIBO causes rosacea, and you should use rifaximin if you breath-test positive for hydrogen, metronidazole if you test positive for methane).
    2. Hydroxychloroquine and Quinacrine (aka Plaquenil and Mepacrine) are effective for flushing caused or triggered specifically by accutane use.
    3. All of the other possible treatments that I've read about and forgotten, especially if they are specific to post-accutane flushing.

    Part of the reason I want to ask these things is that I've yet to take beta- or alpha-blockers everyday as I already have poor circulation and prefer taking them intermittently, as they are still effective for that. Plus I'm really not a fan of taking pills everyday that affect how I feel, and I'd rather deal with inflammatory or fungal/bacterial issues than just stop my blood from pumping to my extremities (again, while I got red in the face regularly before accutane, never did it spread beyond that or look like a rash - even though my acne was widespread).

    Regardless of my situation, I think anyone who doesn't have a Dr. Chiu (or Chen?) in their area would probably like to take all of these thoughts to their derms, as none of these hypotheses seem to be common knowledge. So, can we just put all of the more reputable Medical Journal articles in one convenient place so patients can take them out to docs?

  • #2
    Sounds like a good idea to me.

    I'll make this thread a stickie (stays near the top)

    so feel free to add any good ones to this thread that you may find.

    -mfm

    Comment


    • #3
      Here's a couple recent ones

      Advances in Understanding and Managing Rosacea: Part 1
      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3315879/

      Advances in Understanding and Managing Rosacea: Part 2
      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3315876/
      Attached Files
      Last edited by man_from_mars; 14 March 2013, 01:31 AM.

      Comment


      • #4
        How to promote and preserve eyelid health
        http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3484726/

        Current Trends in Intense Pulsed Light
        http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3390232/


        Optimizing Treatment Approaches in Seborrheic Dermatitis
        http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3579488/
        Attached Files

        Comment


        • #5
          Researchers explain how coal tar treats eczema

          Coal tar induces AHR-dependent skin barrier repair in atopic dermatitis

          http://www.jci.org/articles/view/656...8bcfeb630f5430
          Attached Files

          Comment


          • #6
            Hey guys,

            I'm working on a tool that will allow you to do this! Not only will all the research be in one place, it will be summarized and easy to understand, and it will super easy to filter by certain categories.

            For instance, you'll be able to search for rosacea and alcohol, or rosacea and SIBO, and get all the relevant research.

            Let me know if this sounds interesting to you Hopefully it will be a big help to some people!

            Comment


            • #7
              Originally posted by AlsoColor View Post
              Hey guys,

              I'm working on a tool that will allow you to do this! Not only will all the research be in one place, it will be summarized and easy to understand, and it will super easy to filter by certain categories.

              For instance, you'll be able to search for rosacea and alcohol, or rosacea and SIBO, and get all the relevant research.

              Let me know if this sounds interesting to you Hopefully it will be a big help to some people!
              That sounds interesting AlsoColor
              This site runs under vBulletin4.x - can you make it a plugin?

              Maybe post it up on http://vbulletin.org for testing

              -mfm

              Comment


              • #8
                No unfortunately it will have to be stand alone, because I want it to be really full featured, and eventually be able to cover other disorders!

                Some of the really awesome stuff I want to do wouldn't work as a plugin

                Originally posted by man_from_mars View Post
                That sounds interesting AlsoColor
                This site runs under vBulletin4.x - can you make it a plugin?

                Maybe post it up on http://vbulletin.org for testing

                -mfm

                Comment


                • #9
                  Originally posted by AlsoColor View Post
                  No unfortunately it will have to be stand alone, because I want it to be really full featured, and eventually be able to cover other disorders!

                  Some of the really awesome stuff I want to do wouldn't work as a plugin
                  oh well - thanks for the offer

                  Comment


                  • #10
                    I think such a resource would be great too, but we need to be thoughtful of copyright at the same time.

                    Many journals are funded through sales of articles, and even though sites that are for sufferers like this one aren't selling the articles, it still may be a grey area.

                    I don't have a solution but want to at least let everyone be thinking about being careful about how we treat the intellectual property of others.
                    Get Rosacea News here - https://rosacea-support.org

                    Comment


                    • #11
                      Thankfully we'll just be using information that's freely available on PubMed, and summarizing/interpreting it. We won't be hosting any copyrighted information on the site itself!

                      Also, are you guys interested in using a resource like this?

                      Originally posted by David Pascoe View Post
                      I think such a resource would be great too, but we need to be thoughtful of copyright at the same time.

                      Many journals are funded through sales of articles, and even though sites that are for sufferers like this one aren't selling the articles, it still may be a grey area.

                      I don't have a solution but want to at least let everyone be thinking about being careful about how we treat the intellectual property of others.

                      Comment


                      • #12
                        Originally posted by man_from_mars View Post
                        oh well - thanks for the offer
                        No problem! Hopefully we can be a resource for this board, when people want to reference research

                        Comment


                        • #13
                          Hey guys,

                          We've completed the first version of the tool! You can check it out on this post here:

                          http://www.rosaceagroup.org/The_Rosa...rch-on-Rosacea!

                          get excited!

                          Comment

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