Neurogenic rosacea

[byron]

I have suffered for over 8 years and tried literally everything, prescription and over the counter. Everyone is different so I can only speak to my own experience and hope it helps someone else. Things I have tried:
metrogel
finacea
elidel
mirvaso
soolantra
sulfur
doxycycline
oracea
niacinamide
acyclovir
doxepin
amtriptilin
plaquenil
remeron
lyrica
zoloft
ketamine/amytriptileneointment
hydroxyzine
propranolol
clonidine
gabapentine
I had numerous laser treatments and ipl, also botox injections. I don't think Ive left anything out. So nothing cured the only thing that helps is LDN, thats it. I take magnesium at a high dose and LDN, for me this is the only thing that has helped. I believe laser and ipl do not help at all, in fact, I think the reverse is true, certainly for neurogenic rosacea. I found clonidine to be awful causing rebound flushing and burning. I hope this is helpful and sorry its not more uplifting!

[michellelarissa]

byron how much ldn do you take daily? and how fast have you seen results? I am about to stark next week after having tried all the meds you mentioned as well and even some more... X

[byron]

I take 450mgs nightly, the only side effect is weird dreams!

[Judworth]

I have suffered for over 8 years and tried literally everything, prescription and over the counter. Everyone is different so I can only speak to my own experience and hope it helps someone else. Things I have tried:
metrogel
finacea
elidel
mirvaso
soolantra
sulfur
doxycycline
oracea
niacinamide
acyclovir
doxepin
amtriptilin
plaquenil
remeron
lyrica
zoloft
ketamine/amytriptileneointment
hydroxyzine
propranolol
clonidine
gabapentine
I had numerous laser treatments and ipl, also botox injections. I don't think Ive left anything out. So nothing cured the only thing that helps is LDN, thats it. I take magnesium at a high dose and LDN, for me this is the only thing that has helped. I believe laser and ipl do not help at all, in fact, I think the reverse is true, certainly for neurogenic rosacea. I found clonidine to be awful causing rebound flushing and burning. I hope this is helpful and sorry its not more uplifting!

[Judworth]

Have to agree with you! 15 yrs of suffering a living hell with neurogenic rosacea, 2 mg nightly of LDN and 99% improvement! So pleased it has worked for you too!

[michellelarissa]

Judworth wow that's amazing! how fast have you seen results? and it has helped with flushing and burning pain? happy it has helped you both so very much!

[Judworth]

Judworth wow that's amazing! how fast have you seen results? and it has helped with flushing and burning pain? happy it has helped you both so very much!

Hello! Absolutely! I have now repaired my damaged skin-barrier (with use of gentle products & serums) and the nerve pain has 100% gone! I flush from heat/the odd tipple, but it never goes into that hell of burning! My dry eyes are finally showing signs of improvement too. I didn't have them before rosacea!

[michellelarissa]

Judworth omg this is awesome, and this gives me so much hope, thank you! I am about to start LDN tomorrow (it took me quite a long time to get it in germany, it is pretty unknown here) and now I am really excited after reading about your success story! when did you see the first improvement? and how great thet your eyes are getting better as well!

[Judworth]

Hello again!

I started on 0.5 mg (I have graves disease/overactive thyroid, so as LDN may interfere with that, I took it steady. Side effects were vivid dreams, slight headache and joint ache (went by about a month), Less is certainly more with this, what type are you taking? I found that Sublingual Drops were a game-changer for me! (they are without fillers) and dispensed with a dropper.

Best of luck!

[Judworth]

My Low Dose Naltrexone Journey (so far) - The Rosacea Forum (rosaceagroup.org)

This link may be very helpful with qquestions!

[michellelarissa]

Judworth thank you so much, that helps me a lot! I am going to take sublingual drops as well (based on water) and I want to start with 0,2 mg as I am really really sensitive and a little bit scared of side effects and hopefully I can increase the amount quite fast

[michellelarissa]

Judworth do you think an initial worsening is possible? my symptoms are getting worse and I don't know why. I really want the LDN to work!!

[Judworth]

What does did you start on?

[Judworth]

Sorry! You already said it was 0.2 mg, I started low too, 0.5 mg for ages before I increased, you said symptoms are worse, in what way?