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Neurogenic rosacea

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    Judworth
    Senior Member

  • Judworth
    replied
    Sorry! You already said it was 0.2 mg, I started low too, 0.5 mg for ages before I increased, you said symptoms are worse, in what way?

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  • Judworth
    Senior Member

  • Judworth
    replied
    What does did you start on?

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  • michellelarissa
    Junior Member

  • michellelarissa
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    Judworth
    Senior Member
    Judworth do you think an initial worsening is possible? my symptoms are getting worse and I don't know why. I really want the LDN to work!!

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  • michellelarissa
    Junior Member

  • michellelarissa
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    Judworth
    Senior Member
    Judworth thank you so much, that helps me a lot! I am going to take sublingual drops as well (based on water) and I want to start with 0,2 mg as I am really really sensitive and a little bit scared of side effects and hopefully I can increase the amount quite fast

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  • Judworth
    Senior Member

  • Judworth
    replied
    My Low Dose Naltrexone Journey (so far) - The Rosacea Forum (rosaceagroup.org)

    This link may be very helpful with qquestions!

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  • Judworth
    Senior Member

  • Judworth
    replied
    Hello again!

    I started on 0.5 mg (I have graves disease/overactive thyroid, so as LDN may interfere with that, I took it steady. Side effects were vivid dreams, slight headache and joint ache (went by about a month), Less is certainly more with this, what type are you taking? I found that Sublingual Drops were a game-changer for me! (they are without fillers) and dispensed with a dropper.

    Best of luck!

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  • michellelarissa
    Junior Member

  • michellelarissa
    replied
    Judworth
    Senior Member
    Judworth omg this is awesome, and this gives me so much hope, thank you! I am about to start LDN tomorrow (it took me quite a long time to get it in germany, it is pretty unknown here) and now I am really excited after reading about your success story! when did you see the first improvement? and how great thet your eyes are getting better as well!

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  • Judworth
    Senior Member

  • Judworth
    replied
    Originally posted by michellelarissa View Post
    Judworth
    Senior Member
    Judworth wow that's amazing! how fast have you seen results? and it has helped with flushing and burning pain? happy it has helped you both so very much!
    Hello! Absolutely! I have now repaired my damaged skin-barrier (with use of gentle products & serums) and the nerve pain has 100% gone! I flush from heat/the odd tipple, but it never goes into that hell of burning! My dry eyes are finally showing signs of improvement too. I didn't have them before rosacea!

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  • michellelarissa
    Junior Member

  • michellelarissa
    replied
    Judworth
    Senior Member
    Judworth wow that's amazing! how fast have you seen results? and it has helped with flushing and burning pain? happy it has helped you both so very much!

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  • Judworth
    Senior Member

  • Judworth
    replied
    Have to agree with you! 15 yrs of suffering a living hell with neurogenic rosacea, 2 mg nightly of LDN and 99% improvement! So pleased it has worked for you too!

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  • Judworth
    Senior Member

  • Judworth
    replied
    Originally posted by byron View Post
    I have suffered for over 8 years and tried literally everything, prescription and over the counter. Everyone is different so I can only speak to my own experience and hope it helps someone else. Things I have tried:
    metrogel
    finacea
    elidel
    mirvaso
    soolantra
    sulfur
    doxycycline
    oracea
    niacinamide
    acyclovir
    doxepin
    amtriptilin
    plaquenil
    remeron
    lyrica
    zoloft
    ketamine/amytriptileneointment
    hydroxyzine
    propranolol
    clonidine
    gabapentine
    I had numerous laser treatments and ipl, also botox injections. I don't think Ive left anything out. So nothing cured the only thing that helps is LDN, thats it. I take magnesium at a high dose and LDN, for me this is the only thing that has helped. I believe laser and ipl do not help at all, in fact, I think the reverse is true, certainly for neurogenic rosacea. I found clonidine to be awful causing rebound flushing and burning. I hope this is helpful and sorry its not more uplifting!

    Leave a comment:

  • byron
    Junior Member

  • byron
    replied
    I take 450mgs nightly, the only side effect is weird dreams!

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  • michellelarissa
    Junior Member

  • michellelarissa
    replied
    byron
    Junior Member
    byron how much ldn do you take daily? and how fast have you seen results? I am about to stark next week after having tried all the meds you mentioned as well and even some more... X

    Leave a comment:

  • byron
    Junior Member

  • byron
    started a topic Neurogenic rosacea

    Neurogenic rosacea

    I have suffered for over 8 years and tried literally everything, prescription and over the counter. Everyone is different so I can only speak to my own experience and hope it helps someone else. Things I have tried:
    metrogel
    finacea
    elidel
    mirvaso
    soolantra
    sulfur
    doxycycline
    oracea
    niacinamide
    acyclovir
    doxepin
    amtriptilin
    plaquenil
    remeron
    lyrica
    zoloft
    ketamine/amytriptileneointment
    hydroxyzine
    propranolol
    clonidine
    gabapentine
    I had numerous laser treatments and ipl, also botox injections. I don't think Ive left anything out. So nothing cured the only thing that helps is LDN, thats it. I take magnesium at a high dose and LDN, for me this is the only thing that has helped. I believe laser and ipl do not help at all, in fact, I think the reverse is true, certainly for neurogenic rosacea. I found clonidine to be awful causing rebound flushing and burning. I hope this is helpful and sorry its not more uplifting!
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