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  • Neurogenic rosacea

    I have suffered for over 8 years and tried literally everything, prescription and over the counter. Everyone is different so I can only speak to my own experience and hope it helps someone else. Things I have tried:
    metrogel
    finacea
    elidel
    mirvaso
    soolantra
    sulfur
    doxycycline
    oracea
    niacinamide
    acyclovir
    doxepin
    amtriptilin
    plaquenil
    remeron
    lyrica
    zoloft
    ketamine/amytriptileneointment
    hydroxyzine
    propranolol
    clonidine
    gabapentine
    I had numerous laser treatments and ipl, also botox injections. I don't think Ive left anything out. So nothing cured the only thing that helps is LDN, thats it. I take magnesium at a high dose and LDN, for me this is the only thing that has helped. I believe laser and ipl do not help at all, in fact, I think the reverse is true, certainly for neurogenic rosacea. I found clonidine to be awful causing rebound flushing and burning. I hope this is helpful and sorry its not more uplifting!

  • #2
    byron how much ldn do you take daily? and how fast have you seen results? I am about to stark next week after having tried all the meds you mentioned as well and even some more... X

    Comment


    • #3
      I take 450mgs nightly, the only side effect is weird dreams!

      Comment


      • #4
        Originally posted by byron View Post
        I have suffered for over 8 years and tried literally everything, prescription and over the counter. Everyone is different so I can only speak to my own experience and hope it helps someone else. Things I have tried:
        metrogel
        finacea
        elidel
        mirvaso
        soolantra
        sulfur
        doxycycline
        oracea
        niacinamide
        acyclovir
        doxepin
        amtriptilin
        plaquenil
        remeron
        lyrica
        zoloft
        ketamine/amytriptileneointment
        hydroxyzine
        propranolol
        clonidine
        gabapentine
        I had numerous laser treatments and ipl, also botox injections. I don't think Ive left anything out. So nothing cured the only thing that helps is LDN, thats it. I take magnesium at a high dose and LDN, for me this is the only thing that has helped. I believe laser and ipl do not help at all, in fact, I think the reverse is true, certainly for neurogenic rosacea. I found clonidine to be awful causing rebound flushing and burning. I hope this is helpful and sorry its not more uplifting!
        SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


        *Vit D3,Theratears Omega 3.



        *LDN since October 2018.

        *REN skincare range. TARTE cosmetics.

        *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

        *Yearly IPL treatments until 2009.

        * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



        History of Hyperthyroidism (Graves) Lichen Planus (oral)
        PROUD TO BE DIFFERENT






        .

        Comment


        • #5
          Have to agree with you! 15 yrs of suffering a living hell with neurogenic rosacea, 2 mg nightly of LDN and 99% improvement! So pleased it has worked for you too!
          SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


          *Vit D3,Theratears Omega 3.



          *LDN since October 2018.

          *REN skincare range. TARTE cosmetics.

          *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

          *Yearly IPL treatments until 2009.

          * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



          History of Hyperthyroidism (Graves) Lichen Planus (oral)
          PROUD TO BE DIFFERENT






          .

          Comment


          • #6
            Judworth wow that's amazing! how fast have you seen results? and it has helped with flushing and burning pain? happy it has helped you both so very much!

            Comment


            • #7
              Originally posted by michellelarissa View Post
              Judworth wow that's amazing! how fast have you seen results? and it has helped with flushing and burning pain? happy it has helped you both so very much!
              Hello! Absolutely! I have now repaired my damaged skin-barrier (with use of gentle products & serums) and the nerve pain has 100% gone! I flush from heat/the odd tipple, but it never goes into that hell of burning! My dry eyes are finally showing signs of improvement too. I didn't have them before rosacea!
              SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


              *Vit D3,Theratears Omega 3.



              *LDN since October 2018.

              *REN skincare range. TARTE cosmetics.

              *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

              *Yearly IPL treatments until 2009.

              * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



              History of Hyperthyroidism (Graves) Lichen Planus (oral)
              PROUD TO BE DIFFERENT






              .

              Comment


              • #8
                Judworth omg this is awesome, and this gives me so much hope, thank you! I am about to start LDN tomorrow (it took me quite a long time to get it in germany, it is pretty unknown here) and now I am really excited after reading about your success story! when did you see the first improvement? and how great thet your eyes are getting better as well!

                Comment


                • #9
                  Hello again!

                  I started on 0.5 mg (I have graves disease/overactive thyroid, so as LDN may interfere with that, I took it steady. Side effects were vivid dreams, slight headache and joint ache (went by about a month), Less is certainly more with this, what type are you taking? I found that Sublingual Drops were a game-changer for me! (they are without fillers) and dispensed with a dropper.

                  Best of luck!
                  SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


                  *Vit D3,Theratears Omega 3.



                  *LDN since October 2018.

                  *REN skincare range. TARTE cosmetics.

                  *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

                  *Yearly IPL treatments until 2009.

                  * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



                  History of Hyperthyroidism (Graves) Lichen Planus (oral)
                  PROUD TO BE DIFFERENT






                  .

                  Comment


                  • #10
                    My Low Dose Naltrexone Journey (so far) - The Rosacea Forum (rosaceagroup.org)

                    This link may be very helpful with qquestions!
                    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


                    *Vit D3,Theratears Omega 3.



                    *LDN since October 2018.

                    *REN skincare range. TARTE cosmetics.

                    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

                    *Yearly IPL treatments until 2009.

                    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



                    History of Hyperthyroidism (Graves) Lichen Planus (oral)
                    PROUD TO BE DIFFERENT






                    .

                    Comment

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