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  • Bad reaction to Soolantra?

    Hello everybody,

    I've been recently diagnosed with Rosacea, but the truth is that I've been living with skin issues since 2011 (really bad year for me)…

    In the beginning I thought it was just a regular acne case, so I started using anti-acnes and other typical treatments, nothing aggressive. Obvi this didn’t work so I went to my doctor for further information. My doctor told me I was suffering from atopic dermatitis and prx me corticoids when it seems very bad, and just to avoid sun. Aaaaand that has been my life since then. I’ve been avoiding sun and using corticoids for the last six years (but only 3 days maximum because I was aware of the side effects).

    The thing is that recently my “dermatitis” has become incontrollable, in the means that its really frequent and it is getting more red and expanding all over my cheek (I only have it on my right cheek). The last crisis was like this:

    Day 1 (not really bad)
    Dia 1.jpg

    Day 2 (little iching but ok)
    Dia 2.jpg

    Two days ago I went to a dermatologist specialist looking for a solution cause it was icthing more than ever. She told me about Demodex and how to kill them. She prx me Soolantra every night and Doxi 100 once a day.

    When I went to the clinic my face was like this:

    Dia 4.jpg


    After two days using Soolantra my face is much worse:
    ahora.jpg

    ahora2.jpg

    The pustules are reaching my mouth when this never ever happened before, and its hurting a lot. It's like my cheek is burning always… I’ve been really worry the past days and finally I have decided to contact my doctor and explain everything. She told me to stop the treatment, saying that this is an odd reaction, so now I don’t know if this was really a bad reaction, or maybe the demodex were actually dying... has anybody experience the same effects as me?

    My main concern is to discover if my problem is due to demodex or maybe just because of environmental issues… and what to do now to repair the damage caused by Soolantra (tomorrow I have to go to the office and I am really embarrassed...)

    Throught all this years I’been coping as well as I could, I am used to use make up to hide it and avoid going out the bad days, but I don’t know if I can live like this any longer even though I know this shouldn’t been that important…

    Please, I beg if someone have experienced this side effects with Soolantra let me know if they disspeared, when and how. I am not sure if I should do something to low the inflammation or just wait...

    Thank you in advanced

    PD: Apologies for my english, I am from Spain

  • #2
    Could be a Demodex die-off? See my thread.

    https://rosaceagroup.org/The_Rosacea...rate!-(w-pics)
    How I was cured from Demodectic / Demodex Rosacea (Types 1 & 2 & nearing 3), Seborrhoeic Dermatitis and Eczema

    Got a smartphone? Then please post a non-revealing pic of your face/skin to www.imgur.com, instead of using walls of text to describe it to us. It may be the best thing you've ever done!

    Comment


    • #3
      I've actually never used Soolantra, so I can't really provide any info on that aspect of your experience. But, I found myself so moved by your post that I felt compelled to respond.

      You've said: "I don’t know if I can live like this any longer even though I know this shouldn’t been that important…"

      It is important. I don't know why most folks treat skin issues as lesser medical situations. They're not. Skin health is an indicator of overall body/mind health. Skin health is tied into gut health, as well as other aspects. The skin is an organ, and that organ is inflamed. That is a serious issue.

      This is a serious health issue, and you are correct to feel the way you do. It is painful, itchy, upsetting, and crippling to your daily life. You health situation should be treated urgently and kindly, as you are suffering. Please, do not add more suffering to your situation, mentally/emotionally, by thinking that you are just being vain or shallow. You aren't. You are genuinely hurting, and I hope and pray with all that is within me that you find healing and total relief soon.

      Please, keep us informed.

      Blessings!!!

      Comment


      • #4
        Originally posted by JennAdeleK View Post
        I've actually never used Soolantra, so I can't really provide any info on that aspect of your experience. But, I found myself so moved by your post that I felt compelled to respond.

        You've said: "I don’t know if I can live like this any longer even though I know this shouldn’t been that important…"

        It is important. I don't know why most folks treat skin issues as lesser medical situations. They're not. Skin health is an indicator of overall body/mind health. Skin health is tied into gut health, as well as other aspects. The skin is an organ, and that organ is inflamed. That is a serious issue.

        This is a serious health issue, and you are correct to feel the way you do. It is painful, itchy, upsetting, and crippling to your daily life. You health situation should be treated urgently and kindly, as you are suffering. Please, do not add more suffering to your situation, mentally/emotionally, by thinking that you are just being vain or shallow. You aren't. You are genuinely hurting, and I hope and pray with all that is within me that you find healing and total relief soon.

        Please, keep us informed.

        Blessings!!!
        I know you mean well, but have you researched Soolantra / Demodectic Rosacea? Do you know what a Demodex die-off is? The OP should continue using Soolantra as her symptoms are most likely that of a Demodex die-off, which is completely normal and a good sign.

        https://www.google.com/search?tbm=is...k1.H_aFYone_0A
        How I was cured from Demodectic / Demodex Rosacea (Types 1 & 2 & nearing 3), Seborrhoeic Dermatitis and Eczema

        Got a smartphone? Then please post a non-revealing pic of your face/skin to www.imgur.com, instead of using walls of text to describe it to us. It may be the best thing you've ever done!

        Comment


        • #5
          Hi,

          If your doctor diagnosed Atopic Dermatitis, did he/she discuss having an allergy skin patch test done. Your skin might be sensitive to a certain ingredient that's in lots of skin care/medical products...ie Soolantra. I had mine done and I know now that I have an allergy to Hydrocortisone, Limonene and Linalool.

          Comment


          • #6
            Originally posted by RedRecluse View Post
            I know you mean well, but have you researched Soolantra / Demodectic Rosacea? Do you know what a Demodex die-off is? The OP should continue using Soolantra as her symptoms are most likely that of a Demodex die-off, which is completely normal and a good sign.

            https://www.google.com/search?tbm=is...k1.H_aFYone_0A
            Yes! I also thought it was a demodex die-off but I wasnt sure and as my doc told me to interrupt the treatment... I'm seeing her today again to check what's going on with me...

            Also, I was wanting to ask you about another issue with rosacea, I read in your threat that you used to eat cannabis, I also used to eat/smoke weed and I havent smoke/eat it for almost a month... at this point I am not sure if the cannabis was doing good or bad for me, or maybe it is indifferent? Have you find out anything in this matter?

            Thank you soooo much!

            Comment


            • #7
              Originally posted by Countrygirl View Post
              Hi,

              If your doctor diagnosed Atopic Dermatitis, did he/she discuss having an allergy skin patch test done. Your skin might be sensitive to a certain ingredient that's in lots of skin care/medical products...ie Soolantra. I had mine done and I know now that I have an allergy to Hydrocortisone, Limonene and Linalool.
              Good call, I'm gonna ask for this test. I have like two doctors, one private that I pay (really expensive) and another from the goverment that I also pay with taxes jajajaj. The thing is that my private doctor cannot perform this test so I will ask my other doctor... the thing is that my appointemnt with the cheap doctor is not till 20/09 so it is gonna be a while.

              Thank you for your advice!

              Comment


              • #8
                Originally posted by AlbaVF View Post
                Yes! I also thought it was a demodex die-off but I wasnt sure and as my doc told me to interrupt the treatment... I'm seeing her today again to check what's going on with me...

                Also, I was wanting to ask you about another issue with rosacea, I read in your threat that you used to eat cannabis, I also used to eat/smoke weed and I havent smoke/eat it for almost a month... at this point I am not sure if the cannabis was doing good or bad for me, or maybe it is indifferent? Have you find out anything in this matter?

                Thank you soooo much!
                Firstly, doctors and dermatologists usually know nothing about Rosacea or Demodectic Rosacea, meaning the best information you will get is online from other sufferers. Please do not stop using Soolantra. Your doctor is incorrect to advise you to stop using it. Please keep using it at night. This way we can establish whether you are experiencing a Demodex Mite die-off, or a reaction to Soolantra. Like I've already said, a die-off is a very good thing; it means the product is working correctly. A die-off only lasts for a short while, as you can see in my thread, mine lasted about 3 days.

                During my years of struggling with Demodectic Rosacea, and not knowing exactly what it was that I had until the very end, I read through a lot of information. There are some skin issues that are caused by poor gut health, a common one is Seborrhoeic Dermatitis on the face. Gut health and immune system strength are directly related. I thought that eating cannabis had had an effect on my gut health which might have led to my skin condition. Then I realised that I had Demodectic Rosacea which is related to a Demodex Mite infestation, and not necessarily gut health. So no, I don't think using cannabis had any effect.
                How I was cured from Demodectic / Demodex Rosacea (Types 1 & 2 & nearing 3), Seborrhoeic Dermatitis and Eczema

                Got a smartphone? Then please post a non-revealing pic of your face/skin to www.imgur.com, instead of using walls of text to describe it to us. It may be the best thing you've ever done!

                Comment


                • #9
                  Originally posted by JennAdeleK View Post
                  I've actually never used Soolantra, so I can't really provide any info on that aspect of your experience. But, I found myself so moved by your post that I felt compelled to respond.

                  You've said: "I don’t know if I can live like this any longer even though I know this shouldn’t been that important…"

                  It is important. I don't know why most folks treat skin issues as lesser medical situations. They're not. Skin health is an indicator of overall body/mind health. Skin health is tied into gut health, as well as other aspects. The skin is an organ, and that organ is inflamed. That is a serious issue.

                  This is a serious health issue, and you are correct to feel the way you do. It is painful, itchy, upsetting, and crippling to your daily life. You health situation should be treated urgently and kindly, as you are suffering. Please, do not add more suffering to your situation, mentally/emotionally, by thinking that you are just being vain or shallow. You aren't. You are genuinely hurting, and I hope and pray with all that is within me that you find healing and total relief soon.

                  Please, keep us informed.

                  Blessings!!!
                  Wonderful post

                  Comment


                  • #10
                    I am assuming that when your doctor prescribed 'corticoids' for your atopic dermatitis that you mean corticoid steroids. You should be aware that taking steroids for long term may result in Facial corticosteroid addictive dermatitis (FCAD) or steroid rosacea.

                    There are reports that steroids used long term may result in demodectic rosacea:

                    "...the highest density of mites was found on the cheeks. A statistically significant increase in mites was found in all subgroups of rosacea, being most marked in those with steroid-induced rosacea...CONCLUSION: Increased mites may play a part in the pathogenesis of rosacea by provoking inflammatory or allergic reactions, by mechanical blockage of follicles, or by acting as vectors for microorganisms." [see end note 10 in this article]


                    "...Demodex folliculorum were also more frequently detected in patients who had previously been treated with topical corticosteroids (even in 91.9%), what was often followed by epitheloid granulomas..." [see end note 11 in this article]

                    If you read the long Soolantra thread in RF you will find that many report it gets worse before it gets better and Soolantra takes three to four months to see improvement. However, if you are suffering from an allergic reaction to Soolantra you obviously need to stop. Basically you have to be the judge of this and your physician should examine your reaction and determine if you should stop the Soolantra or not. Obviously, your physician is simply be cautious asking you to stop. One solution is to stop for a few days and let your skin heal and then apply a little Soolantra again to see if you have another bad reaction which may confirm you are reacting negatively to this treatment.

                    Taking steroids for many years makes skin extremely sensitive. Sometimes it is best to let your skin heal on its own for a few days.

                    Another option is to try the ZZ cream. Many have reported it works for them. You should always try a little dab in just one small area of your skin to see if you are allergic or react negatively to any new treatment, especially since your skin is so sensitive.
                    Brady Barrows
                    Blog - Join the RRDi


                    Comment


                    • #11
                      Originally posted by Weezer View Post
                      Wonderful post
                      Awwww... thanks, Weezer.

                      I know I can't really weigh in regarding the Soolantra, due to my inexperience with it. But, rosacea is just such a a hard condition to deal with... I sometimes feel overwhelmed by what people experience with it.

                      Wishing everyone the very best!

                      Comment


                      • #12
                        Originally posted by Brady Barrows View Post
                        I am assuming that when your doctor prescribed 'corticoids' for your atopic dermatitis that you mean corticoid steroids. You should be aware that taking steroids for long term may result in Facial corticosteroid addictive dermatitis (FCAD) or steroid rosacea.

                        There are reports that steroids used long term may result in demodectic rosacea:

                        "...the highest density of mites was found on the cheeks. A statistically significant increase in mites was found in all subgroups of rosacea, being most marked in those with steroid-induced rosacea...CONCLUSION: Increased mites may play a part in the pathogenesis of rosacea by provoking inflammatory or allergic reactions, by mechanical blockage of follicles, or by acting as vectors for microorganisms." [see end note 10 in this article]


                        "...Demodex folliculorum were also more frequently detected in patients who had previously been treated with topical corticosteroids (even in 91.9%), what was often followed by epitheloid granulomas..." [see end note 11 in this article]

                        If you read the long Soolantra thread in RF you will find that many report it gets worse before it gets better and Soolantra takes three to four months to see improvement. However, if you are suffering from an allergic reaction to Soolantra you obviously need to stop. Basically you have to be the judge of this and your physician should examine your reaction and determine if you should stop the Soolantra or not. Obviously, your physician is simply be cautious asking you to stop. One solution is to stop for a few days and let your skin heal and then apply a little Soolantra again to see if you have another bad reaction which may confirm you are reacting negatively to this treatment.

                        Taking steroids for many years makes skin extremely sensitive. Sometimes it is best to let your skin heal on its own for a few days.

                        Another option is to try the ZZ cream. Many have reported it works for them. You should always try a little dab in just one small area of your skin to see if you are allergic or react negatively to any new treatment, especially since your skin is so sensitive.
                        Excellent advice! I agree with Brady... always patch test anything new on just a small portion of your skin. My derm recommends patch testing for at least 2 weeks before applying anything new to my whole face. I usually test on my lower right jawbone area... that way if I react, I can cover that up by wearing my hair down.

                        Comment


                        • #13
                          -
                          Brady Barrows
                          Blog - Join the RRDi


                          Comment


                          • #14
                            Originally posted by JennAdeleK View Post
                            Awwww... thanks, Weezer.

                            I know I can't really weigh in regarding the Soolantra, due to my inexperience with it. But, rosacea is just such a a hard condition to deal with... I sometimes feel overwhelmed by what people experience with it.

                            Wishing everyone the very best!
                            Thank you so much guys! Reading this really helped me struggling today at work (:

                            Since I've discovered my diagnosis I've been reading a lot about other people's experiences and I think it's quite encouraging, so glad I found this forum!

                            Comment


                            • #15
                              Originally posted by JennAdeleK View Post
                              Excellent advice! I agree with Brady... always patch test anything new on just a small portion of your skin. My derm recommends patch testing for at least 2 weeks before applying anything new to my whole face. I usually test on my lower right jawbone area... that way if I react, I can cover that up by wearing my hair down.
                              Hi everybody!

                              Well, my doctor saw me yesterday and came to the same conclusion as you, Brady Barrows. She wants me to rest my skin for this week and next monday I will try again Soolantra, but just a very little amount to see the reaction. (I'm already scared and I still got a week left jajaja)

                              I tested the cream over my wrist and nothing happened, so I think we can assume I am not allergic at all...

                              Just to get this straight, what's the difference btw the ZZ cream and the XFML cream? I though they were complementary like one is for the night to kill demodex and the other was for the mornings to calm the skin, but now I see that both of them are anti-demox. (Soooorry for all these questions!)

                              Comment

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