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Success with Red Light Therapy After Mirvaso Disaster

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  • Success with Red Light Therapy After Mirvaso Disaster

    Hi all,

    I just wanted to share this bit of info with everyone, as I think some may find it interesting. Maybe I'll even be able to help someone out there, too--hopefully.

    I've had rosacea for about 15 years (I'm 26). I've had it on my nose since I was about 12, then about 2 years ago it began progressing to my cheeks. So I visited my derm and he prescribed me Mirvaso. WORST MISTAKE OF MY LIFE. I used it once and I got horrible rebound redness and, consequently, my blood vessels opened up and my baseline redness worsened. That was a little over 6 months ago, last November. In the months that followed my life was a freaking wreck. I couldn't sleep because my face started flushing and burning every time I would lie down. I felt so hideous and disgusting and never wanted to go out. I developed terrible anxiety and had to miss some work. I was seriously so miserable that at times I wanted to die.

    Now I am no longer in that terrible state.

    Am I cured? Hell no. But my condition has significantly improved, to the point where I can function and SLEEP without constantly worrying about having a flare up or whether or not I look like $#!+. And I owe it to red light therapy.

    I've been using my light for about 2.5 months now, which isn't even that long, but for the past month or so I've been noticing improvements in my condition. I no longer get that terrible burning feeling during a flush. In fact, I rarely flush at all anymore, and when I do it is nowhere near as severe as it once was. As a result, my baseline redness on my cheeks is much better, to the point where I only have to cover it with a light sheer makeup most days.

    I'm still not entirely satisfied with where I'm at with my condition, but at least I'm not a miserable freaking wreck anymore. I intend to have a V-Beam treatment (or two) in the next few months or so to try and clear up more of the diffuse redness. On top of all this, I suddenly developed a strange looking rash on my forehead that wasn't there before I used Mirvaso. THAT'S still there, even 6 months later, and just as bad. At first I thought it was acne, but now I think it's something else, maybe seborrheic dermatitis. It just will not go away, and at this point that's even more annoying than the rosacea. Funny thing is, I didn't even use Mirvaso on my forehead. My advice? Stay away from that stuff. A few hours of rosacea free bliss is not worth the potential (extremely likely) damage it will cause you in the end.

    My God, these last 6 months have sucked so bad, and it's still not over yet. But again, at least it's better and I can stand to look at myself without bursting into tears.

    Bottom line is, RLT has helped, and I look forward to seeing more improvements from it in the next few months. Mirvaso victims, there is hope!

  • #2
    Originally posted by kfranke View Post
    Hi all,

    I just wanted to share this bit of info with everyone, as I think some may find it interesting. Maybe I'll even be able to help someone out there, too--hopefully.

    I've had rosacea for about 15 years (I'm 26). I've had it on my nose since I was about 12, then about 2 years ago it began progressing to my cheeks. So I visited my derm and he prescribed me Mirvaso. WORST MISTAKE OF MY LIFE. I used it once and I got horrible rebound redness and, consequently, my blood vessels opened up and my baseline redness worsened. That was a little over 6 months ago, last November. In the months that followed my life was a freaking wreck. I couldn't sleep because my face started flushing and burning every time I would lie down. I felt so hideous and disgusting and never wanted to go out. I developed terrible anxiety and had to miss some work. I was seriously so miserable that at times I wanted to die.

    Now I am no longer in that terrible state.

    Am I cured? Hell no. But my condition has significantly improved, to the point where I can function and SLEEP without constantly worrying about having a flare up or whether or not I look like $#!+. And I owe it to red light therapy.

    I've been using my light for about 2.5 months now, which isn't even that long, but for the past month or so I've been noticing improvements in my condition. I no longer get that terrible burning feeling during a flush. In fact, I rarely flush at all anymore, and when I do it is nowhere near as severe as it once was. As a result, my baseline redness on my cheeks is much better, to the point where I only have to cover it with a light sheer makeup most days.

    I'm still not entirely satisfied with where I'm at with my condition, but at least I'm not a miserable freaking wreck anymore. I intend to have a V-Beam treatment (or two) in the next few months or so to try and clear up more of the diffuse redness. On top of all this, I suddenly developed a strange looking rash on my forehead that wasn't there before I used Mirvaso. THAT'S still there, even 6 months later, and just as bad. At first I thought it was acne, but now I think it's something else, maybe seborrheic dermatitis. It just will not go away, and at this point that's even more annoying than the rosacea. Funny thing is, I didn't even use Mirvaso on my forehead. My advice? Stay away from that stuff. A few hours of rosacea free bliss is not worth the potential (extremely likely) damage it will cause you in the end.

    My God, these last 6 months have sucked so bad, and it's still not over yet. But again, at least it's better and I can stand to look at myself without bursting into tears.

    Bottom line is, RLT has helped, and I look forward to seeing more improvements from it in the next few months. Mirvaso victims, there is hope!

    Congratulations kfranke!

    That is an awesome and totally inspirational post.
    I hope that it just keeps getting better and better for you
    Which RLT device are you using and for how many minutes?

    I am using the Smarter Lights Pure Red and alternate with their Dual Care which is both Red and Yellow Light which really seems to calm the flares.
    It is a slow process, but with patience, it will hopefully will pay off, and best thing, it is totally natural.

    I had a rash in my eyebrows that I think is seb derm.
    It seems to be responding to ACV, but you have to be persistent.
    I, too, was hoping that the RLT would help that also, but it does not seem to do anything, good or bad, to that reddened, flakey area.
    Dead sea salts seem to work for a time also, but I wasn't consistent enough.

    I would love to have the confidence to try laser treatment, but I am not there yet trust-wise.
    Here's to continued success and skin health,
    Bluedog

    Comment


    • #3
      Originally posted by Bluedog View Post
      Congratulations kfranke!

      That is an awesome and totally inspirational post.
      I hope that it just keeps getting better and better for you
      Which RLT device are you using and for how many minutes?

      I am using the Smarter Lights Pure Red and alternate with their Dual Care which is both Red and Yellow Light which really seems to calm the flares.
      It is a slow process, but with patience, it will hopefully will pay off, and best thing, it is totally natural.

      I had a rash in my eyebrows that I think is seb derm.
      It seems to be responding to ACV, but you have to be persistent.
      I, too, was hoping that the RLT would help that also, but it does not seem to do anything, good or bad, to that reddened, flakey area.
      Dead sea salts seem to work for a time also, but I wasn't consistent enough.

      I would love to have the confidence to try laser treatment, but I am not there yet trust-wise.
      Here's to continued success and skin health,
      Bluedog
      I actually use the exact same devices you do! SmarterLights, both pure red and dual care. I was using the dual care first, but I thought it seemed weak, so I purchased the pure red as well. I'm seeing better results with that, no question about it. I like having the amber light too, though, so I held on to both of them.

      I started out using my light at the recommended 90-180 seconds (about 2 minutes on each side of my face) but from everything I've read on here, that isn't nearly enough time. So in recent weeks I've been gradually adding time. I'm now at 4 minutes on each side of my face, every day. I am seriously so obsessed, I never miss a day. 😂 And consistency is key, so I'm going to keep at it until I see the maximum benefits. How long do you use your light for each day? I'm curious to know.

      And you say Dead Sea salt helped your seb derm? Can I ask where you purchased it from? I'm willing to give it a try because it's driving me insane. Also, what is ACV?😯

      Comment


      • #4
        Hey so which rlt do you suggest to try? The pure red or the red/Amber?
        I have led man red and amber and see tiny improvement but I have heard more good things about smarterlights. Who it be better to go the the one with both.

        Comment


        • #5
          Originally posted by RaymondS View Post
          Hey so which rlt do you suggest to try? The pure red or the red/Amber?
          I have led man red and amber and see tiny improvement but I have heard more good things about smarterlights. Who it be better to go the the one with both.
          I, personally, have had amazing success with The Pure Red from SmarterLights. I can't say enough positive things about it.

          Comment


          • #6
            Originally posted by RaymondS View Post
            Hey so which rlt do you suggest to try? The pure red or the red/Amber?
            I have led man red and amber and see tiny improvement but I have heard more good things about smarterlights. Who it be better to go the the one with both.
            I definitely suggest the pure red. You're most likely to see results from that quicker. I bought the dual care first, with the red and amber lights, and while it did help, it seemed weak compared to the pure red. That's just my experience, though. But if I were you I'd go ahead and start out with the red, as that is what is most known to help with rosacea. With SmarterLights there's a 90 day trial, so if it doesn't work you can always send it back.

            Sidenote: I'm wondering, does anyone on here know anything about green light therapy? I've heard that it can also help rosacea and am debating purchasing one of those as well. I just want to know if it's worth it first. 😕

            Comment


            • #7
              Originally posted by kfranke View Post
              I definitely suggest the pure red. You're most likely to see results from that quicker. I bought the dual care first, with the red and amber lights, and while it did help, it seemed weak compared to the pure red. That's just my experience, though. But if I were you I'd go ahead and start out with the red, as that is what is most known to help with rosacea. With SmarterLights there's a 90 day trial, so if it doesn't work you can always send it back.

              Sidenote: I'm wondering, does anyone on here know anything about green light therapy? I've heard that it can also help rosacea and am debating purchasing one of those as well. I just want to know if it's worth it first. 😕
              Thanks for all your info on the RLT, kfranke.
              I took a break from RLT as my skin was so aggravated from food triggers (I have mast cell disorder) and am now gradually easing back into it.
              I know that the Pure Red has the better wavelength for skin healing, but I found it was giving me all these little red, almost breaks in the skin/spots on my forehead where there is no rosacea, so I backed off thinking I was damaging my skin.

              So, I think I will progress to more Pure Red and avoid the light on the forehead and see how it goes.
              I got my dead sea salts from the health food store.
              ACV is apple cider vinegar. You need to get the organic one with the "mother on it".
              I use it straight with a quitip.

              Take care, Bludog

              Comment


              • #8
                Great thanks for the info. I'm trying prolite green at the moment just started.
                Do hippy think there is a big difference between quality amongst products like led man vs prolite vs smarterlights pure red.,? I have prolite and led man red and amber but I have heard good things with pure red..? So maybe is height quality and the right wavelengths?

                Comment


                • #9
                  Originally posted by RaymondS View Post
                  Great thanks for the info. I'm trying prolite green at the moment just started.
                  Do hippy think there is a big difference between quality amongst products like led man vs prolite vs smarterlights pure red.,? I have prolite and led man red and amber but I have heard good things with pure red..? So maybe is height quality and the right wavelengths?
                  Awesome. You'll have to let us know if you have any success with the green light.

                  Honestly, I don't think it really matters which device you use as long as it emits wavelengths within the correct range. I've read that the magic number as far as wavelengths go for treating rosacea is 633nm. My device is 630nm, and it's worked great for me (and has for many others as well) so I think that as long as your device is somewhere within that range you should be fine.

                  Just got back from a dermatologist appointment. Even he said he could tell my rosacea has improved a lot since the last time I was in there 3 months ago. In fact, he focused more on treating the seborrheic dermatitis that I have going on on my forehead, as he said it looks like I am steadily getting my rosacea under control. Oh, the joys of having skin issues..

                  Comment


                  • #10
                    That's a great report from the derm, kfranke!

                    It shows that even rosacea skin can heal and that the RLT can promote this process

                    I even got bold enough to use the Pure Red during a food flush and it definitely helped so I am getting more confident with the RLT each day.

                    What did your derm recommend for the seb derm?

                    Blessings and continued success,
                    Bluedog

                    Comment


                    • #11
                      Yes will let you know about green light!
                      My red is led man and his is 650nm so I might order the pure red and it looks a lot more powerful than the led man led. I light Amber light but the most studied benefits are all from red so best stick to that.
                      I have some broken caps I'm hoping might help. And there's a website that there's a huge thread about using Green tea before led to enhand the benefits.

                      Comment


                      • #12
                        I keep emailing but no reply from the company yet? As I'm in Australia the core and socket is not compadable. So I'm trying to ask them how can I use it with just the head only that they ship. Could it fit into a desk lamp with a e27 socket? Want to make sure the light itself can be screwed into our light fittings.

                        Comment


                        • #13
                          Originally posted by RaymondS View Post
                          I keep emailing but no reply from the company yet? As I'm in Australia the core and socket is not compadable. So I'm trying to ask them how can I use it with just the head only that they ship. Could it fit into a desk lamp with a e27 socket? Want to make sure the light itself can be screwed into our light fittings.
                          Have you considered getting a universal adapter for the red light so that it will be compatible with the plugins? I bought one for when I travel globally/overseas...

                          https://www.amazon.com/gp/product/B0...?ie=UTF8&psc=1

                          Comment


                          • #14
                            Green Tea and RLT

                            Originally posted by RaymondS View Post
                            Yes will let you know about green light!
                            My red is led man and his is 650nm so I might order the pure red and it looks a lot more powerful than the led man led. I light Amber light but the most studied benefits are all from red so best stick to that.
                            I have some broken caps I'm hoping might help. And there's a website that there's a huge thread about using Green tea before led to enhand the benefits.
                            I have heard about the green tea thing. According to a few studies done in the last several years, soaking your face in green tea for 20 minutes before using the red light is supposed to make it work significantly faster. I'm actually testing that out right now, on the left side of my face, the side where my rosacea is being more stubborn. I soak a cotton pad in green tea and let it sit on the affected area for 20 minutes, then I do my RLT. I only started this a few days ago, so I can't report whether it has made a difference or not. Here's to hoping, though!

                            Comment


                            • #15
                              Originally posted by Bluedog View Post
                              That's a great report from the derm, kfranke!

                              It shows that even rosacea skin can heal and that the RLT can promote this process

                              I even got bold enough to use the Pure Red during a food flush and it definitely helped so I am getting more confident with the RLT each day.

                              What did your derm recommend for the seb derm?

                              Blessings and continued success,
                              Bluedog
                              Bluedog,

                              Thank you for your kind words! I am so glad the pure red seems to be working for you too. For me, this was more or less how it progressed...

                              April: I started using my red light during the first week of April. For about the first two weeks or so, I saw no benefits whatsoever and was becoming very frustrated. But I persisted, and within about 3 weeks I THOUGHT I noticed myself flushing a little less. But the change was so minor that I wrote it off as wishful thinking.

                              May: Despite my frustration I continued to use the light once every day, and by about the middle of May I could definitely confirm that I was flushing less. It happened only about once or twice a week unless I encountered one of my triggers. (Like getting into a car that's been sitting in 100 degree weather all day. Dear GOD, I would light up so fast it wasn't even funny. It didn't matter how hard I blasted the AC. I was done. DONE.) This was a huge improvement, though, as before then I used to flush at least once a day, especially in the evening.

                              June: Now the benefits are really kicking in. I think I've flushed maybe once this entire month, and even then it wasn't all that bad. As a result of my flushing less, the redness on my cheeks is fading. It's probably about 90% gone on the right side of my face, actually. The left side is being more stubborn.

                              So...I guess what I'm trying to say is, it really does take time. Here's to hoping you continue to have success with your RLT as well!

                              -Katie

                              P.S. My derm prescribed me Elidel for the seb derm. For 75 bucks, it had better be worth it!

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