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SURVEY | Effectiveness of light therapy for rosacea and/or seborrheic dermatitis

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  • findingaway
    replied
    Originally posted by Rand627 View Post
    I'm thinking of 3 minutes on both cheeks and the nose. My eyes haven't been affected by rosacea and neither has my forehead. After the story you've just given me I'll probably do it once every 3 days. Maybe do 3 one day, 4 the next, 5 and so on? Who knows, I'll just have to call it by ear I suppose!

    Curious, do you use anything for eye protection? I know you're supposed to for infrared, but how about just red?
    Hi Rand,

    I have heard that when using infrared you should wear eye protection. But the Omnilux is FDA approved and says in the documents that it is completely safe and will not damage eyes - no eye protection needed.

    Saying that, the Red does tend to temporary blind me for a few minutes!

    Leave a comment:


  • Rand627
    replied
    I'm thinking of 3 minutes on both cheeks and the nose. My eyes haven't been affected by rosacea and neither has my forehead. After the story you've just given me I'll probably do it once every 3 days. Maybe do 3 one day, 4 the next, 5 and so on? Who knows, I'll just have to call it by ear I suppose!

    Curious, do you use anything for eye protection? I know you're supposed to for infrared, but how about just red?

    Leave a comment:


  • findingaway
    replied
    Originally posted by Melissa W View Post
    OK I hopefully fixed your link.
    I did try to take your survey but it wasn't cooperating for some reason. When I have more time I will try again but you might want to check it out as it just wasn't working when I tried to go to the next page.

    To answer your questions it can make your symptoms a bit flarey at first but I suggest doing less is more and better to go slow and build up gradually then doing too much at once.
    Thank you.

    Did you try and take the survey recently? I fixed it the other day as there was a problem.

    Leave a comment:


  • Melissa W
    replied
    OK I hopefully fixed your link.
    I did try to take your survey but it wasn't cooperating for some reason. When I have more time I will try again but you might want to check it out as it just wasn't working when I tried to go to the next page.

    To answer your questions it can make your symptoms a bit flarey at first but I suggest doing less is more and better to go slow and build up gradually then doing too much at once.

    Leave a comment:


  • findingaway
    replied
    Originally posted by Melissa W View Post
    Hi Moore,
    I have not had time to read this thread yet but I just caught your post and I see you went drinking after you used RLT and I just want to caution you that while RLT may be helpful in calming down your symptoms it will not be helpful if you continue to expsose yourself to your triggers.

    So, if alcohol is a trigger (and I know you mentioned it usually is not but it seems like it may be based on what you wrote) doing RLT will not allow you to drink as much as you want without suffering the side effects. You must use RLT in conjunction with avoiding your known triggers. Anyway, just thought I would add my opinion and feel free to ignore but thought it could be helpful for you. Good luck!

    Melissa

    ps moved this thread to the appropriate section btw.
    Hi Melissa,

    Alcohol isn't usually a trigger for me. If anything it makes me paler.

    Completely agree about avoiding triggers still. This I am doing. Some I don't seem to be able to avoid, like last night when I walked from out in the cold too a very warm pub! Grr.

    With RLT, did you experience any changes apart from anti-inflamatory response from the treatment? i.e. new red patches that come and go. Or a light worsening of symptoms before they then seemingly get better again?

    I looked better then I have done in a long time this morning, but after the shower, I then looked a little redder and the red had seemed to have spread. Two hours later and I look how I did when I first looked in the mirror - better then usual...

    PS - Would you be able to fix the link in the first post by any chance?

    PPS - If you haven't taken the survey already, it would be really good if you could as it will help build up enough responses to publish the results

    Thank you!
    Last edited by findingaway; 9 January 2011, 01:47 PM.

    Leave a comment:


  • Melissa W
    replied
    Hi Moore,
    I have not had time to read this thread yet but I just caught your post and I see you went drinking after you used RLT and I just want to caution you that while RLT may be helpful in calming down your symptoms it will not be helpful if you continue to expsose yourself to your triggers.

    So, if alcohol is a trigger (and I know you mentioned it usually is not but it seems like it may be based on what you wrote) doing RLT will not allow you to drink as much as you want without suffering the side effects. You must use RLT in conjunction with avoiding your known triggers. Anyway, just thought I would add my opinion and feel free to ignore but thought it could be helpful for you. Good luck!

    Melissa

    ps moved this thread to the appropriate section btw.

    Leave a comment:


  • findingaway
    replied
    Originally posted by Rand627 View Post
    Gosh dang I folded. I talked to the owner of the LEDman website and he let me get it the infrared/red model for the christmas price sale..so 120 bucks. I will definitely keep a log and let yall know how it goes.
    Good for you Rand!

    So what is going to be your routine?

    Here's my update:

    Day 7
    I used the device again yesterday (Day 6) for 8 minutes on each cheek (inc eye) and my forehead. All red. Immediately after, my face was definitely more red with some very distinct red marks. This was AM. This redness didn't subside much all day. I then went out drinking last night (I am suffering today!) and after my first pint, I was a little dismayed to see my face was redder on my cheeks. Usually alcohol seems to make my paler! Anyway, walked out i the cold to the next pub, which was boiling and flushed!

    RLT seems to make my skin more sensitive for a while after treatment. It's also worth noting that my eyes were quite sore yesterday and are not a great deal better today.

    Having said all of that. When looking in the mirror this morning, the red seems to have faded again. I would say the base redness is less. Not much, but enough to notice.

    I also dropped my Vit D3 intake down to 10,000IU while I wait for a test to check my levels again.

    Leave a comment:


  • Rand627
    replied
    Gosh dang I folded. I talked to the owner of the LEDman website and he let me get it the infrared/red model for the christmas price sale..so 120 bucks. I will definitely keep a log and let yall know how it goes.

    Leave a comment:


  • Rand627
    replied
    I have tried probiotics but only for like..a week at a time. I'll get a bunch later on as I really love yogurt. May as well get the probiotic kind!

    And yeah, I really want to try RLT. The only issue is money. If I get it and don't like it it's 130 dollars down the drain. Can't really sell it on ebay, there's no market for it. Do you ever get burning on your ears and if so, did the RLT help?

    And something interesting to note. I got a prescription from my doctor for retina cream .025. I had used it in the past for acne and it seemed like it had help. I have been getting little micro pimple things around the top half of the cheeks underneath the eye and around the mouth. None on the cheeks.

    The cream has already completely cleared up both areas. Only issue is I used too much (reccomended at once a day, used it twice for 3 or 4 days) and I'm getting some peeling. Gonna push it back to 3 times a week and see if that's enough. It's amazing how fast my body responded to it. Kind of like when I was on accutane, it only took 3 or 4 days for my acne to completely clear up after I had been on it a few times before.
    Last edited by Rand627; 8 January 2011, 05:13 PM.

    Leave a comment:


  • findingaway
    replied
    Originally posted by Rand627 View Post
    Yep. I started getting acne at..13 years old or so. Didn't really care about it till my parents insisted I see their friend. She's not a doctor by any means but she gave me facials. Didn't really like them, but I wanted to listen to my parents. I eventually got doxycycline from the cosmeticians nurse. Didn't really do much. After about 2 or 3 years of this same routine I finally went to a derm. She put me on retina and tetracycline. Didn't work..and after about 6 months of that I got on accutane. Went on 3 high dose course of accutane. Totals to about a year and a third on 80mg of accutane. Which is quite a bit.

    Don't have a single bit of family history of rosacea, I'm a guy and I'm only 19. I don't have a single risk factor for rosacea. Looked it up online and saw that many other people had the exact same condition as I did. I went to my derm about the problem (the one who prescribed me the accutane) and she REFUSED to believe it had anything to do with the accutane. She said it was because of my family history. Even though I had none, haha.

    So yeah, it's definitely possible that I would have developed it without the accutane. But it's much more likely that the accutane caused it. A least, in my opinion it is.

    What's interesting to me is if someone who has your type of rosacea, whatever it may be, versus people like me who have accutane induced rosacea. Will RLT help both of us? It seems like it's helping you, but who knows if it would help me. I think i'm gonna start a topic and ask if any accutane induced flusher has tried it.
    Rand,

    That's arwful to have it so young. But I'm comvinced you will find something that works. Being young, your body is much more able to repair itself and it sounds like you've thrown your body out of balance with all the drugs.

    Have you tried probiotics? Say Kefir? Might help with your overall health as antibiotics tend to wipe out the bad and good bacteria.

    I think RLT could work for you. The mechanism in which it works would be the same for us both, regardless of the cause. From all the reading and reports and discussions with people, I have only ever heard of one report where RLT had a detrimental effect (the amazon review you posted a link to earlier in this tread) and even then I would guess some medication they were on interefered with the process!! Like NSAIDs do!

    Leave a comment:


  • Rand627
    replied
    Seems like it hit a plateau to be honest. Can't say I've seen improvement over the past few weeks.

    And yeah, monitors have CCFL backlights in them. They are florescent bulbs.

    Leave a comment:


  • mrsmoof
    replied
    Originally posted by Rand627 View Post
    Haha..I recycled a bunch of cans this morning and went in to exchange the little ticket for money. Nothing much happened to be honest. Although I am beginning to wonder whether or not my monitor is affecting me. Always seems like I get red when I'm on it.
    your monitor? Also, how is your skin overall on the Mepacrine? Still improving?

    Leave a comment:


  • Rand627
    replied
    Haha..I recycled a bunch of cans this morning and went in to exchange the little ticket for money. Nothing much happened to be honest. Although I am beginning to wonder whether or not my monitor is affecting me. Always seems like I get red when I'm on it.

    Leave a comment:


  • mrsmoof
    replied
    HI Rand.. been in the supermarket lately? I had to ask!

    Leave a comment:


  • Rand627
    replied
    Yep. I started getting acne at..13 years old or so. Didn't really care about it till my parents insisted I see their friend. She's not a doctor by any means but she gave me facials. Didn't really like them, but I wanted to listen to my parents. I eventually got doxycycline from the cosmeticians nurse. Didn't really do much. After about 2 or 3 years of this same routine I finally went to a derm. She put me on retina and tetracycline. Didn't work..and after about 6 months of that I got on accutane. Went on 3 high dose course of accutane. Totals to about a year and a third on 80mg of accutane. Which is quite a bit.

    Don't have a single bit of family history of rosacea, I'm a guy and I'm only 19. I don't have a single risk factor for rosacea. Looked it up online and saw that many other people had the exact same condition as I did. I went to my derm about the problem (the one who prescribed me the accutane) and she REFUSED to believe it had anything to do with the accutane. She said it was because of my family history. Even though I had none, haha.

    So yeah, it's definitely possible that I would have developed it without the accutane. But it's much more likely that the accutane caused it. A least, in my opinion it is.

    What's interesting to me is if someone who has your type of rosacea, whatever it may be, versus people like me who have accutane induced rosacea. Will RLT help both of us? It seems like it's helping you, but who knows if it would help me. I think i'm gonna start a topic and ask if any accutane induced flusher has tried it.

    Leave a comment:

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