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  • Questions about lasers for rhinophyma.

    Hi all.
    I have been diagnosed with early rhinophyma.
    I have been on antibiotics now for nearly a month and in that time my condition has gotten worse.
    I am looking around for laser treatments. But i'm not particularly informed on the subject.
    Ive read many times that c02 laser is the best for rhinophyma, so thats what ive been chasing after.
    Is this true? is it the right path to go down?

    The quotes ive received have differed vastly. And this is confusing for me.

    One c02 surgery in London said it would cost 2400+, for any c02 treatment.
    And today another surgery in the town which i live told me that it would be 400 pounds per treatment, and I would probably need to go two or three times.

    The surgery in question is http://www.wentworthclinic.co.uk/ - 400 pounds per treatment
    compared to http://www.profilecosmeticsurgery.co.uk/ - 2400 just to switch the machine on.

    Im more suspicious about the wentworth clinic. As i cannot find any before/after pictures on their site. Or any testimonials.
    Also, from what ive read i thought that c02 surgery was one off. And you would not go back for repeat treatments like other lasers. It would all need to be done in one treatment.
    And yet this clinic is telling me otherwise.

    Im really confused. Any help or information would be appreciated. thanks

  • #2
    Early rhinophyma

    Hello
    I have early rhinophyma, although I'm a female and that is relatively rare. Anyway, some experts suggest that low dose accutane (like 10 mg per day or something-I take 10 mg every other day) for a year to eighteen months followed by laser is the best treatment. You have to be off of the accutane for six months before doing laser, however. Personally I have treated my early rhinophyma through the low dose accutane, a strict diet (no sugar, no gluten, no dairy, no citrus, no alchol), and low level light therapy (all red). This has definitely helped me a lot, but the diet is a challenge. You might want to check out the low level light therapy forum on this site and see what you think. I have been told, however, that it is best to get the rhinophyma treated earlier rather than later. That said, I have decided to try the regimen I'm currently using to avoid spending thousands of dollars on lasers.
    Good luck and keep us posted on your progress,
    Queta
    "Do not go where the path may lead, go instead where there is no path and leave a trail."
    Ralph Waldo Emerson

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    • #3
      One more thing...

      I forgot to address your question about what type of laser. I don't know much about it, but I have a feeling (which could be wrong) that they only use the carbon dioxide method if you have later stage rhinophyma. How bad is your rhinophyma? How long have you noticed a change in your nose? Does it go up and down or stay enlarged all the time? When it is enlarged, does it feel hard to the touch or soft? Do you have any other swelling in your face (forehead, eyelids, cheeks, chin?) I ask because I have swelling in all those areas if I don't do all the things I mentioned above.
      Queta
      "Do not go where the path may lead, go instead where there is no path and leave a trail."
      Ralph Waldo Emerson

      Comment


      • #4
        Originally posted by queta View Post
        Hello
        I have early rhinophyma, although I'm a female and that is relatively rare. Anyway, some experts suggest that low dose accutane (like 10 mg per day or something-I take 10 mg every other day) for a year to eighteen months followed by laser is the best treatment. You have to be off of the accutane for six months before doing laser, however. Personally I have treated my early rhinophyma through the low dose accutane, a strict diet (no sugar, no gluten, no dairy, no citrus, no alchol), and low level light therapy (all red). This has definitely helped me a lot, but the diet is a challenge. You might want to check out the low level light therapy forum on this site and see what you think. I have been told, however, that it is best to get the rhinophyma treated earlier rather than later. That said, I have decided to try the regimen I'm currently using to avoid spending thousands of dollars on lasers.
        Good luck and keep us posted on your progress,
        Queta
        Hey, thanks for the info.
        I live in england, my doctor wants me to see a specialist to determine the best treatment. But on the NHS it will take 6 to 8 weeks just to see one and i feel at my wits end about it now.
        has your diet and accutane actually helped to thin the skin back out? or has it just stopped it from getting worse? nobody has given me this information to avoid dairy products and gluten etc. did your doctor tell you that?
        i dont suffer from acne anywhere, and although i always have open pores on my nose and stuff i practically never get spots. so its all very confusing for me.
        the low level light therapy you talk of. do you have that done at a clinic or what?
        please let me know, take care

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        • #5
          Originally posted by queta View Post
          I forgot to address your question about what type of laser. I don't know much about it, but I have a feeling (which could be wrong) that they only use the carbon dioxide method if you have later stage rhinophyma. How bad is your rhinophyma? How long have you noticed a change in your nose? Does it go up and down or stay enlarged all the time? When it is enlarged, does it feel hard to the touch or soft? Do you have any other swelling in your face (forehead, eyelids, cheeks, chin?) I ask because I have swelling in all those areas if I don't do all the things I mentioned above.
          Queta
          ive noticed a change in my nose for a couple of years now but people kept on telling me im paranoid. etc, until one day i looked in the mirror and totally freaked out.
          compared to most pictures on the net mine isnt too bad at all. generally it feels quite jelly like to the touch, apart from this one spot on the lower right side of my nose, which has literally come up over the last few days, has been more red than the rest and feels alot harder. and i think that when i wipe the oil away with a damp cloth it looks a little better for a while. the colour definately does. although im not certain on whether or not it actually helps the skin..

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          • #6
            oops sorry, and no i dont get any swelling anywhere else on my face. the occassional bump on my forhead and really dry skin around my nose (perhaps due to antibiotics) but thats about it.
            in a way i wish the rest of my face was as red as my nose so the difference was less noticeable :p

            Comment


            • #7
              questions on rhinophyma

              Hello
              The accutane, diet, and low level light therapy did help my skin thin out again. It reversed my condition, not just kept it from getting worse. In terms of the diet, a doctor did not tell me that. I learned about that through my own research and through trial and error. It appears that some rosacea sufferers have small intestinal bacterial overgrowth (SIBO). This causes an inflammation in the body which shows up on the face. For more info, search SIBO on this site and read the threads. I have found from my own experience that diet makes the largest difference, but it is tough. It's worth it not to be self-conscious all the time about my face, however. Anyway, docs have not been helpful for me at all. To be honest with you, I know more about rosacea than my derm because I have spent so much time reading about the topic. The diet link is really unknown to most derms at this time because that is not emphasized in med school, but there are some studies that support it. Check out the other info on this forum to learn more about it.

              In terms of the low level light therapy, I got my lamp on-line for $600. It is an all-red Acne Lamp with three heads. I like it but I'm not sure if it would work for you or not because it helps all areas of my face except sometimes I think that it makes my nose more reactive. In fact, lately I have been covering up my nose while using it because I'm worried about that aspect. Other people, however, have used the low level light therapy with great success so I'm not sure what to say about that.

              Queta
              "Do not go where the path may lead, go instead where there is no path and leave a trail."
              Ralph Waldo Emerson

              Comment


              • #8
                Hello,

                I don't know if this helps but while I was receiving some argon laser treatment from my doctor a couple of days ago we started talking about treatment for more advanced forms of roseacea. She said that argon is best for my stage of rosacea (lots of flushing with a few open pores that are just starting to become more visible) but from my understanding of her explanation - for people with more severe swelling and/or disfigurement carbon dioxide is better - it vaporises the water in the skin cells - this effectively makes the nose smaller. Because this involves restructuring the surface of the nose, I'd imagine that it would be extremely important to get an experienced doctor. I'd be tempted to ask the Profile people why they are charging so much more than Wentworth. Also I've been warned against clinics that are run by doctors and surgeons but use nurses to perform the laser treatment - you should make sure an appropriately qualified doctor performs the laser treatment.

                It sounds like you would benefit from an initial consultation - these are usually a lot cheaper and the doctor doing the laser can properly assess whether it is suitable for you, explain the details and take you through some before and after photos.

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                • #9
                  Have you considered seeing a dermatologist privately? Your GP can refer you to one of the consultants at a private hospital. You can usually get an appointment much, much quicker, although expect to pay at least £50. I definitely think you should see a dermatologist for evaluation before proceeding.

                  Best wishes

                  Helena

                  Comment


                  • #10
                    Originally posted by sparrow-legs View Post
                    Have you considered seeing a dermatologist privately? Your GP can refer you to one of the consultants at a private hospital. You can usually get an appointment much, much quicker, although expect to pay at least £50. I definitely think you should see a dermatologist for evaluation before proceeding.

                    Best wishes

                    Helena
                    thats a good idea, i'd need to go back and hassle my GP some more though. if its only 50 pounds thats fine.

                    ive just been speaking to another clinic.
                    they tell me they can treat rhinophyma with radiosurgery.
                    no idea what that is either -_-

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                    • #11
                      My advise would be to post a question on the ask the doctor section on the rosacea support forum. CO2 lasers is a significant laser that if I remember correctly will leave a white area on the nose. My advise would not be to rush into treatment but do your research and get referred to the best person you can.
                      http://rosacea-support.org/community/viewforum.php?f=38

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                      • #12
                        Hi John, I doubt you'll read this 12 year's on but was wondering what the outcome of your experience has been as I'm currently going through the same issues that you have had.

                        Thanks

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                        • #13
                          Originally posted by 42505 View Post
                          Hi John, I doubt you'll read this 12 year's on but was wondering what the outcome of your experience has been as I'm currently going through the same issues that you have had.
                          Thanks
                          I doubt if John will respond as well. Phenotype 5 is the most successfully treated rosacea phenotype and if you scroll down to the subheading 'Treatment' in this post you will find a list of options.
                          Last edited by Brady Barrows; 4 June 2020, 08:27 PM.
                          Brady Barrows
                          Blog - Join the RRDi


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