When a red face isn't rosacea is everyones doctor checking?

[Rubydo1]

Hi Kate,

My derm diagnosed rosacea without any workup to rule out other diseases. It wasn't until I got chilblains that the drs ordered the whole series of connective tissue blood tests to R/O all the other stuff. And that was months after I was formally diagnosed with rosacea.

I have Raynauds there’s a connection?
What I have a lump that came up on my nose during cold weather and it won’t go away.
And I’ve had terrible chilblanes. Any other information would be useful .
Do you get raw sinuses? And sore mouth ?
Best wishes,
Melissa

[DocBaldreich]

The guaranteed way to diagnose rosacea

My dermatologist(s) said it is not rosacea, it's SD (I don't think so). Only one examined my face thoroughly and was still dubious about AR. All of them were quite frank, almost harsh: "there's no cure for that, get used to it, take antibiotics or have a laser treatment. Diet won't help. Nothing will help apart from the strict hygiene..." As if I looked or were dirty as a cavemen (cavewoman ) or a beggar. Doctors I encountered have been very depressing. Always in a hurry. 15 minutes of hasty doctor's small talk and then automatic prescriptions and "come back to see me in 3 months".
I am so glad I found this forum!

Hi,

Skin irritation and inflammation can produce a wide array of symptoms. Some can be itchy and irritating like eczema or SD. Some look more pronounced on the facial skin, such as rosacea - the disease of discussion here.

The striking feature that separates rosacea from other skin problems is that it results in a deep red coloration on the facial skin - a condition which is very common caucasian women of USA and Canada.

Exposure to extreme climates can cause flare ups..

This list speaks in details about the warning signs of rosacea you should be careful for and what preventive measures one can take.

Hope you see improvements in your conditions soon!!

[johnlivelife]

Thanks a lot

Thanks

[Brady Barrows]

My dermatologist(s) said it is not rosacea, it's SD (I don't think so). Only one examined my face thoroughly and was still dubious about AR. All of them were quite frank, almost harsh: "there's no cure for that, get used to it, take antibiotics or have a laser treatment. Diet won't help. Nothing will help apart from the strict hygiene..." As if I looked or were dirty as a cavemen (cavewoman ) or a beggar. Doctors I encountered have been very depressing. Always in a hurry. 15 minutes of hasty doctor's small talk and then automatic prescriptions and "come back to see me in 3 months".
I am so glad I found this forum!

15 minutes is probably more than most are reporting. I started a thread a long time ago about a five minute diagnosis (14 page thread), and many agreed that it was less than five minutes. I wrote an article about this subject as well.

[Brady Barrows]

Broken Links in this thread

Some of the links in this thread are broken so here are the updated links:

What to ask my physician?

Diagnosing Rosacea

What is involved with diagnosing rosacea?

Can You Get A Diagnosis For Rosacea On The Internet?

Diagnosing Rosacea In Five Minutes Or Less

[spacedkitty]

I'm seeing my gp next week. I have mild flushing and small visible blood vessels on cheeks and legs. Thought it might be roseaca but reading your stories not so sure now.

Think it could be this which has many causes?

https://www.healthline.com/health/telangiectasia#diagnosis

Not sure if it could be from taking codeine&paracetomal& caffeine painkillers for migraines frequently? Or from steroid inhaler for dustmite allergy. I also came off HRT last October. So perhaps its drug side effects. I also suspect i have SIBO but it could be coeliac disease as i have autoimmune genes.

I'm also pre-meopause i think from symptoms and doc just tested my FSH and was slightly high. Iron was finally normal tho so perhaps not coeliac? I've been taking probiotics.

[spacedkitty]

Oh yes, I was diagnosed the same way. Gave me Rozex metrogel and Tetracycline. Rozex doesn't work and Tetrasyl gave me side effects. Going to another dermatologist on Friday.

The thing is that is not only my face but other symptoms too which is why I've been to blood tests through another doctor, or two, who doesn't know what they're doing because my thyroid levels been coming down. Seeing an endocrinologist in June.

Last time I told the doc that why the reference values even exist if they don't give a **** until it's only under the references. Like people couldn't have symptoms with values close to it.

Oona

Even when its' under or over they dont give a **** in the UK anymore..

[ladycappuccino]

My dermatologist(s) said it is not rosacea, it's SD (I don't think so). Only one examined my face thoroughly and was still dubious about AR. All of them were quite frank, almost harsh: "there's no cure for that, get used to it, take antibiotics or have a laser treatment. Diet won't help. Nothing will help apart from the strict hygiene..." As if I looked or were dirty as a cavemen (cavewoman ) or a beggar. Doctors I encountered have been very depressing. Always in a hurry. 15 minutes of hasty doctor's small talk and then automatic prescriptions and "come back to see me in 3 months".
I am so glad I found this forum!

[kfranke]

My dermatologist checked me for lupus before diagnosing me with rosacea. The test came back negative, and I have been responding well to some rosacea treatments (such as red light therapy and Soolantra) so while I'm pretty sure I actually do have rosacea...it still worries me sometimes, to think there's a possibility that it might be something else.

Certainly everyone's doctor should be checking to make sure there isn't some other underlying condition. It's the responsible thing to do!

[lleae]

My dermatologist looked at me for no more than five seconds before telling me I had rosacea, acne and combination skin.

[AlenaCena]

This thread is exactly what has me worried. My dermatologist diagnosed Rosacea within seconds without checking anything. Despite the strange occurrence of it following trauma which doesn't seem too common (I was choked unconscious doing martial arts, my face turned red as the blood and facial veins were obviously put in a ton of stress, some redness stayed and got worse) they didn't listen and just said "Oh it happens with age" and I said, "it never occured at all until I got choked out and my face turned red" but they wouldn't listen. Now most of the general Rosacea triggers and even the P/P's don't apply to me, but I'm treating it like it's Rosacea.

Just an update and to show the importance of knowing what you have, I saw a Rosacea specialist with 20 years of treating and research under his belt, and made the appointment saying "Trying to treat Rosacea" as the reason. The second I came in he was confused and wondered where the Rosacea patient was. He looked at me and told me I absolutely do not have Rosacea, he's seen thousands of cases over decades and it's simply not it. And it's not caused by being choked, ever. It was thinned skin due to Steroid Creams, and thankfully, he caught that because the General Practitioner who 'diagnosed' me with Rosacea prescribed steroid cream. The most alarming was that the general practitioner gave me Metrogel which I understand is meant to help Pimples, and I have absolutely zero of those.

[AlenaCena]

This thread is exactly what has me worried. My dermatologist diagnosed Rosacea within seconds without checking anything. Despite the strange occurrence of it following trauma which doesn't seem too common (I was choked unconscious doing martial arts, my face turned red as the blood and facial veins were obviously put in a ton of stress, some redness stayed and got worse) they didn't listen and just said "Oh it happens with age" and I said, "it never occured at all until I got choked out and my face turned red" but they wouldn't listen. Now most of the general Rosacea triggers and even the P/P's don't apply to me, but I'm treating it like it's Rosacea.

[Melania]

I've been to dermatologists in three different countries starting when I was 16, and I'm now 41.
When I first started going to them, they didn't know a lot about eczema and dermatitis and the treatment course was antibiotics and cortozone creams. (Not much has changed)
Even then I knew foods and hormones were triggers or the cause of the skin eruptions.

I've had dermatologists tell me it's not rosacea and dermatologists tell me it is. One things for certain out of the more than 30 dermatologists I've seen in my life time, no two have had the same things to say.
However last time I was at one, she did look up patronizing and say, yes we now know hormones can affect eczema...as if her telling me that made a whit of difference to what I have already known.

In the UK, where they have now said it is rosacea, I have had no other tests. The dermatologists I've seen refuse to accept other countries diagnosis of food allergies. They refuse to take into consideration what I'm saying, about my upper eye lid cracking (it's been cracking there my whole life, so much so I've a deep scar) and the bubbling around my eyes, and over my brows.

In the end, I think a they've learnt mo about the what some skin problems are, they seem to have bunched the rest as rosacea. Which appears to me to be a blanket term, covering a huge amount of things.

My daughter who is a nurse, says that Drs aren't taught that the patients themselves know their chronic condition and it's ins and outs better than they would.

[Sally]

This is a postscript to my ‘heads up’ about Cocamidopropyl Betaine (CAPB) which causes me to have severe contact dermatitis. And I feel has probably been confused with other skin disorders in the past.

I dismissed Cocamide MEA on Cetaphil’s Restoraderm body wash the other day, as it wasn't quite the above offending ingredient, but unfortunately after a small application of this stuff I came out in a ghastly itchy rash that I know will persist for weeks. Luckily I didn’t put it on my face.

I have looked on the internet and cross-referenced the ingredients in any body wash, shampoo, conditioner etc. that has caused me bad irritation in the past, and it seems as though Cocamidopropyl Betaine, or Cocamide MEA, is the common denominator.

It's used as a foaming agent and it's in loads of products!

[nat007]

I made an inventory (or tried to) of most other medical conditions which can cause rosacea-like symptoms, such as facial flushing, burning and redness.
It includes symptom description, images of diseases and comparisons with rosacea symptoms, to hopefully make it easier for rosacea patients -or those suffering from facial flushing- to inform themselves about other illnesses that can cause similar/overlapping symptoms. Hope I didn't make mistakes, if so fee free to say so.

http://scarletnat.blogspot.fr/2014/05/other-conditions-that-cause-facial_29.html