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When a red face isn't rosacea is everyones doctor checking?

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  • #31
    Lupus is a possibility, but my symptoms are usually induced by stress,heat,alcohol,caffeine and eating which indicates Systemic Mastocytosis.

    My symptoms are: swelling of the hands,feet and face, chronic diarrhea,stomach pain,blodshot eyes,weightloss,joint pain,myalgia,malar rash+rash on chest,hands and feet,vertigo,vomiting,blurry vision and fatigue.

    Those are very common in Lupus but mine are triggered by the environment which is why i think its Mastocytosis. Both are uncommon diseases, Lupus is pretty rare in caucasian males and Systemic Mastocytosis affects about 1 in 1.000.000 people
    Last edited by Mogge; 16 April 2011, 12:41 PM.

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    • #32
      ah s*ht i just realized that Carcinoid Syndrome is more likely than both Lupus and Mastocytosis...

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      • #33
        I walked into my GP surgery complaining about a rash on my face,, he then tapped on the laptop showed me various photos of people with rosacea then said '' thats it thats what it is'' then perscribed me metrogel which ive been using now for about 6 weeks and has just dried my skin up

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        • #34
          I have never had any specific blood tests nor other check ups done, though I have some other symptoms. (Fatigue, foggy brain and digestive issues.)

          I am wondering, who do you ask to run those tests?

          My NHS GP didn't show any interest/knowledge, and the private dermatologist I consulted seems to be not aware of any tests neither...

          If someone who lives in the UK is reading this thread, I would greatly appreciate recommendations for a good private GP/specialist doctor who does run these kind of tests and is willing to investigate possible underlying illnesses.

          Many thanks.

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          • #35
            Originally posted by GiGi. View Post
            I have never had any specific blood tests nor other check ups done, though I have some other symptoms. (Fatigue, foggy brain and digestive issues.)

            I am wondering, who do you ask to run those tests?

            My NHS GP didn't show any interest/knowledge, and the private dermatologist I consulted seems to be not aware of any tests neither...

            If someone who lives in the UK is reading this thread, I would greatly appreciate recommendations for a good private GP/specialist doctor who does run these kind of tests and is willing to investigate possible underlying illnesses.

            Many thanks.
            Two recommendations:

            Professor Tony Chu, FRCP
            West London Dermatology Centre
            227-229 Chiswick High Road, Chiswick, W4 2DW

            Frank Powell, M.D.
            Consultant Dermatologist
            Regional Centre of Dermatology
            Mater Misericordiae Hospital
            Dublin, Ireland
            Leading European authority on rosacea

            Also these posts:

            What to ask my physician?

            What should I know about diagnosing rosacea?
            Brady Barrows
            Senior Member
            Last edited by Brady Barrows; 20 June 2011, 08:53 AM.

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            • #36
              Originally posted by Brady Barrows View Post

              Frank Powell, M.D.
              Consultant Dermatologist
              Regional Centre of Dermatology
              Mater Misericordiae Hospital
              Dublin, Ireland
              Leading European authority on rosacea
              Thank you Brady Barrows.

              This dermatologist I hadn't heard of yet. I will contact him to see if he does tests for underlying illnesses...

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              • #37
                sorry for the nebbie question for i am new here but what does p&p stand for?

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                • #38
                  Originally posted by vikinghammer2 View Post
                  sorry for the nebbie question for i am new here but what does p&p stand for?
                  it stands for pustules and papules

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                  • #39
                    awesome, thanks amethystice. now i gotta go google pustules and papules cause i don't know what that is either

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                    • #40
                      Hi everyone
                      I'm still not completely convinced that I have rosacea, but figured that what better place to find closure then a forum dedicated to rosacea
                      Background info:
                      17 year old male, asian and white, face has always been on the fair side, but always nicely tanned, super pale now since having acne (3 years and going)
                      My face has always had a tendency to blush, but now it is worse than ever. My face flushes when I am embarrassed, too warm and is sensitive to the sun (only within the last 6 months or so), have these little flesh colored bumps on my face, some have tiny black dots in them,, not a whole lot maybe half a dozen on the lower half of my face.
                      I took doxycline(sp?) for a month and retin a micro for a 6month span for acne. I guess it was all downhill after that.
                      Another thing: I don't feel a stinging or burning sensation when I flush, I mean I am aware that my face feels hot, but other times I'll have blushed without even realizing it and shocked at seeing myself in the mirror. I don't see any broken capillaries either so..?

                      I'd really like some help here as it's not easy dealing with this as a 17 year old already with an acne condition and high school environment!
                      YoungPain
                      Junior Member
                      Last edited by YoungPain; 26 November 2011, 06:33 AM.

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                      • #41
                        Has anyone got similiar symptoms to me as i cant seem to diagnose my condition.

                        Hi im 25 years old and have a condition which came on around adolence.I have constant red cheeks that cover the whole area of cheeks and have a red nose.this redness started out as light pink and has now become permanent and the color is now dark red.I am very sensitive to hot/cold and my face can burn with me having a malar complexion.I also get red rashes on upper body, arms and around knees.My skin can also become red when exposed to heat and alcohol makes the flushing and redness a lot worse.I also have constant redness in side of eyes and redness can become worse while looking at a screen for too long or rubbing them as sometimes i feel like there is sand in my eyes.My vision has also become blurred.I also suffer from excessive sweating and sweat during light exertion, walking.
                        I also experience sharp sudden pains in my chest when i breath in deeply and i have to change my body position and take small breathes and they pass.I can also get pains in my lungs and these csan also be sharp too.Occasionaly i get sharp paralazing pains in rectum and these can be quite intense and pass after a few seconds.

                        My theory is that call these symptoms relate to an auto immune disease.I have been to a endoconologist and he tested me for carcinoid cancer and pheos which are adrealan tumours.He tested my urine with 24hr tests and my thyroids and both came back fine.Last week i also went to get tested for diabietes and the nurse said that the blood tests, test for thyroids and covered everything.
                        My question is would lupus show up on a standard blood test for diabietes or on a thyroid test or is there any specific test for lupus.Also can anyone help me with my condition and does anyone know if my symptoms are like lupus or an auto immume disease?I dont have any pastules, raised skin or red spots on face , my skin is smooth but red and can become imflammed on exposure to hot and my complexion can become much redder on exposure to cold.I also have a shy personality and can flush easily.
                        The only time my cheeks turns pale is when i feel sick or when ive taken stimulants like speed and mdma.does anyone know why this is?is this a hormonal problem or does anyone know a supplement that will help with the redness.i just have red cheeks with a red nose,redness on neck and upper body wit no bumps or roughness.any help would b welcome as i dont know why i turn pale.Any replies would be welcome.

                        Thanks

                        John

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                        • #42
                          What to believe?

                          I was originally told I had rosacea then told I didn't! My derm sent me to a medical derm (after about 4 laser trts.) who ordered a 24hr urine panel to check for multiple problems. He said everything was normal, that I "just fkush" He did rec. I start trying Cetirizine 10/day for a week, then increase 1 pill a week for 4 weeks. So week 4 I would be taking 40mg a day for 1 week. I have not done this. Afraid I will be too tired.

                          I have had 6 non purpuric treatments. Vbeam and Gemini. . My doctor said I can schedule every 6 weeks! That it is not necessary to wait. Whether or not I'm improving I don't know. I don't know if I am having rebound flushing or the regular flushing . I have had the past 3 treatments close together so I don't know....There are so many questions with this enitre treatment , it is so frustrating. I did have an improvement after the laser for many months but I noticed it happening and I went back. My derm left so now I see the director of the practice who has changed the treat to Vbeam and Excel. I had 2 treatment so far and i have another appt Fri. He recomends trying 4 -6 trts. 4 weeks apart. So far, no improvement. I still flush somedays, some mild, some severe. I could not get a straight answer from him about whether this is "rebound flushing" or I just STILL flushing! I feel confused because if you read in these forums it says..WAIT bet. treatments, you need to heal?? But he is rec. them close together??? Any advice. Thanks

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                          • #43
                            I'm 16 and I've had this problem develop from about 8 years old. My mum keeps saying she doesn't think it is rosacea but it's getting worse. What do you think? I am so sick of looking orange when I cover it up with makeup.

                            Photo on 15-02-2012 at 10.46.jpg

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                            • #44
                              Emlarkin, you skin is red in exactly the same areas as mine. Im 19 years old, male but my skin is a complete red mass where as yours seems to have small white areas around your redness.

                              Im in two minds as to whether I have Rosace or Sebbhoric dematisis, my face is cold at 2am to 6am, feels normal no tingling, or heat, cold & normal. I believe thats due to the body temperature decreasing naturally at that time, worst is 6pm to 11pm. Do you feel the same?

                              I also dont sweat on my face anymore :?

                              Joe.

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                              • #45
                                Same for me, the worst is in the evening, usually gets really hot and red almost like it's burning. When it's not so red there are white splotches in between but if its flushing then it completely covers my cheeks and sometimes under my chin. No my face doesn't sweat really. I would say it is rosacea as looking at some of the seborrhoeic dermatitis information, it is not affected by diet whereas I get worse when eating hot food like curries or too many fatty foods.

                                It is generally best first thing in the morning but as soon as I get too hot I will flush for hours after. So embarrassing and no one understands that I'm NOT blushing! It's good to know other people understand here.

                                Emma

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