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  • #16
    The thing to also be aware of is reflective light/UV. Even if you are not exposed to the sun directly you can still be exposed to reflective light/UV.

    On really sunny days, I keep my blinds closed now. I'm assuming, for me, it's a result of the Doxycycline. I'm hoping it will pass in time. I really miss my garden

    Happiness is a choice.

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    • #17
      Wow, thanks all for the replies. I really was thinking lately I'm going crazy!! But like I said: my skin can be calm all day when I'm inside with the curtains closed when the sun is shining bright and after a short while outside I'm red and swolen and burning for the rest of the day and night. No exaggeration.

      I wear normal hats but the first thing I'm going to do right now is order a speacial hat. Maximum sunproof factor! After my latest IPL round (had two in total over the last 2 years) I had an extreme reaction, like a major sunburn and I had to take medication to calm things down. Both specialists (the IPL-doc and my dermatologist) concluded I'm photosensitive. So that might explain things.

      Good for you Friday that you are doing better, finally. So your skin does accept a sunscreen now? Don't even dare THINKING about putting anything on my face.. Have seb derm as well, which makes my skin even more intollerant.

      So I will order a good hat, stay out of the sun, no more IPL and hope things will get better in the fall I suppose? I'm really scared going out right now. Honestly: today I needed out in the afternoon, something really important, it's about 110 degrees fahrenheit here right now and bright, bright sunshine. So I wrapped a polyester/cotton white blouse over my face and biked through town like that: people thought I was an Arabic terrorist! But back home it's bingo again: swollen, red, burning. So assume the light polyetsre is no proper protection either.


      Thanks again..
      Natalja

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      • #18
        Hi, im exactly like you, even when i wear SPF 60 i can still get a red flush and this is not even from staying in the sun as I avoid it. I think the heat factor is a big part of it, but if i dare let my skin near the sun even with Sun cream on, i feel a burn instantly. This is the part I cant stand, to think i can never go in the sun again

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        • #19
          Im the same after 4 IPL's, extremely sun sensitive even if i use 60spf and a cap. I am waiting for winter lol. I'm probably gonna start low-dose Accutane next month and i know that med makes you sun sensitive, but will it be as crazy as after IPL you think?

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          • #20
            Ok, I ordered a hat from coolibar and also the Avene sunmilk for intollerant skin. If I can't tollerate it, I'll let you know.

            I wonder: this UVA radiation; does it also affect rosacea skin when you are sitting inside? I mean: does it go through glass and is it just as damaging then? And do some of you also have problems with fluorescent lights? I have, but I'm not sure what type of lighting would be ok for us? So I can ask my employer to change the lights in the office I'm hopefully soon will be working?
            ;)

            Natalja.

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            • #21
              Originally posted by natalja
              ... I wrapped a polyester/cotton white blouse over my face and biked through town like that: people thought I was an Arabic terrorist!
              I do this too, and think that! I use really big silk scarves now. I've bought some hat pins and can secure the scarf and role it up or down as needed. This doesn't provide a lot of protection, but it is better than nothing.

              I've got to say, this affliction does turn us into 'eccentric' people. I'm cool with that.

              Happiness is a choice.

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              • #22
                In regards to scarves, Coolibar has a whole range of clothes, hats and scarves/shawls that are supposed to block 97% UV - I've been thinking one of the shawls would be handy, haven't ordered one yet but strongly considering it.
                Diane
                Vancouver Island, BC

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                • #23
                  Yeah, Twickle, cool or not? 8)
                  We do have to become numb to other people's looks, stares and remarks I suppose. People ask me often: are you hot or what??

                  Wow, good tip Keisha! I just ordered my coolibar hat and payd 3 times it's price to get it delivered asap in Holland

                  Will call them and ask if this scarf can come as well with it: otherwise I have to pay that delivery costs again! Wow, did you see that masks they have? Bit much..I think I try it with the hat and perhaps the scarf as well first. But great site, thanks so much.

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                  • #24
                    Pffff.. the order wasn't through yet, so the girl from Coolibar just added the scarf I picked to it. It's a nice one, from what I can see on the website, in a nice light blue colour ("aqua"). Will see how it goes and post some fun pics perhaps, me wrapped al up, lol

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                    • #25
                      The Coolibar site is great! I love Internet shopping!!

                      Here's where I got my big hats (1922 Wide Brim Straw, I have two -- just in case ) from:

                      http://www.ediehats.ca/

                      Happiness is a choice.

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                      • #26
                        Originally posted by Twickle Purple
                        The thing to also be aware of is reflective light/UV. Even if you are not exposed to the sun directly you can still be exposed to reflective light/UV.
                        totally agree. i am sure what happened to me last year was that i was getting burnt even though i was wearing sunscreen and a hat b/c of the light that was bouncing up off the sand or water and hitting my face that way. I'm still vulnerable to this this year (I wouldn't go to the beach on a full sunny day) but it's still a lot better.

                        b/c of the reflective light problem, i think that thos of us with extremely light-sensitive skin have to go on trying to find some sunscreen that we can tolerate and that actually does block the sunlight!

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                        • #27
                          with the sun/shade it can be a combination of factors of why ppl's faces are flushing..

                          Sunlight is comprised of the entire spectrum from shortwave X rays, micro, gamma rays, visible light to loooooong infrared & radio waves. The latter after 1064nm start to heat the water in your skin causing local dilation. So it's not just the UV's but the light itself.

                          In terms of the shade, if it's warm outside shade will help but not stop the dilation process. Anything above 72 degrees begins the vessel expanding, & the more time one spends outside the more stress is placed on the bv. Hence why you may be ok outside for a time, but be beet red when you come in.

                          I have been able to tolerate absolutely nothing on my face for years skin care wise, at least not daily. Just the occasional cleanser every couple of weeks....I mixed my own "creme" of safflower oil, some jojoba (about a 3:2 ratio), a dash of dimethicone, zinc oxide, & some Cory mineral makeup for tint. You can get a lot of this at


                          I recommend snowdrifts dimeth because it's pure.

                          I was astounded it actually calmed my face down & it covered a lot of my redness.It's not ideal in texture though & is best applied w/a foundation brush.As a warning it is extremely hard to get off , I had to do saff/jojoba oil 3 times & a cleanser! but for the time it was on it helped.

                          There are only 4 sunscreens which block the whole spectrum-2 chemical (Parasol & Anthelios) & 2 physical (zinc, titanium). Physical are the only things which won't irritate our faces. And even better, zinc specifically reflects infrared which tempers some local dilation when hit by sun.

                          The makeup I described will act like a sunscreen, but I wouldn't recommend it for prolonged exposure.

                          I've also had 35 Yags & do daily red light tx, & have stopped the latter for months at a time finding I get much more sensitive to things. My face is still capable of pain.

                          If you're already burning, your skin is telling you "im injured" & your epidermis is down. It needs to rebuild which takes 6-8 weeks of nothing but water for skincare. You can try the creme, but the cleansing to get it off may be counterproductive. Plus if pre-burning it may not like the oils. Last note this makeup will block light txs so it has be off if using the lamps.

                          Anyway I hope this helps someone!
                          My weapons :

                          Aura/Lyra lasers-70+txs
                          RLT (DPL)
                          Modified OCM using; microfiber cloth, jojoba/safflower oil, & cool water
                          Everyday Minerals
                          Bare Minerals Primetime
                          Linda Sy Oatmeal & Goodskin All Calm Cleanser
                          Replenix Green Tea Serum
                          homemade moisturizer w/dimethicone
                          Ester C, NSI brand SOD
                          Thera Tears supplement & PF gel drops

                          "Mornie utúlië (darkness has come)..Believe and you will find your way.
                          Mornie alantië (darkness has fallen)..A promise lives within you now."

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                          • #28
                            Thanks K.,

                            good tip! What do you think: before I buy the whole lot should I just start using a drop of safflower oil to see if it makes my skin burn? So far everything irritates it, especially jojoba oil. It just starts burning as soon as I apply it, even on a little piece of skin at my jawline!

                            Gosh, wish we could just swop skins. Order some new skin and ask for one with an olive tone and no hidden problems

                            And is it possible to only use zinc and dimethicone, since it blocks uv and the dimethicone moisturises?

                            Natalja

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                            • #29
                              Originally posted by natalja
                              Thanks K.,

                              good tip! What do you think: before I buy the whole lot should I just start using a drop of safflower oil to see if it makes my skin burn? So far everything irritates it, especially jojoba oil. It just starts burning as soon as I apply it, even on a little piece of skin at my jawline!

                              Gosh, wish we could just swop skins. Order some new skin and ask for one with an olive tone and no hidden problems

                              And is it possible to only use zinc and dimethicone, since it blocks uv and the dimethicone moisturises?

                              Natalja
                              Hi Nat

                              well, I find my skin hates stuff pure (because then you're using it 100% strength), & doesn't like too many ingredients. So just testing the oils may be like eating the salt in a recipie ;) I've burned to jojoba too but sometimes it calms-go figure.. Zinc & dimeth help to counteract irritation so when mixed w/the oils may decrease reaction to them. So I'd make the full creme & test a spot of that. Granted it's opaque so you can't judge by looks rather than how it feels.

                              I've tried straight dimeth & my skin didn't like it...It does "coat" things (i.e. anti-frizz serum) so I think neat & too much inteferes w/skin breathing.

                              You could do just the zinc/dimeth thing, but unless the zinc oxide is clear (Z-Cote), you'll look like casper the ghost. And the dimethicone is rather viscous so the oils help make it more spreadable. But for you since your skin hates jojoba so much maybe just zinc/dimethicone & the cory are better for you to start.

                              Either way I had to use saff/jojoba first as a makeup remover to gently try & get it off.

                              Best of luck!
                              My weapons :

                              Aura/Lyra lasers-70+txs
                              RLT (DPL)
                              Modified OCM using; microfiber cloth, jojoba/safflower oil, & cool water
                              Everyday Minerals
                              Bare Minerals Primetime
                              Linda Sy Oatmeal & Goodskin All Calm Cleanser
                              Replenix Green Tea Serum
                              homemade moisturizer w/dimethicone
                              Ester C, NSI brand SOD
                              Thera Tears supplement & PF gel drops

                              "Mornie utúlië (darkness has come)..Believe and you will find your way.
                              Mornie alantië (darkness has fallen)..A promise lives within you now."

                              Comment

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