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  • Nose pain?

    I've been 'living' with Rosacea types 1 and 4 since late 2015, but only since last month have I developed a strange nose problem. In essence, the bridge of my nose feels "tingly" and sometimes I feel like it's heavier than normal. It's at it's worst at nighttime (ditto for my general rosacea) or when I'm stressed. I noticed that if I pinch the top of my nose, like people stereotypically do when stressed, the tingling disappears momentarily. Perhaps I'm cutting off the blood flow to my nose?

    That's why I think it's something to do with the pressure of my blood. Stress = inc. blood pressure = dilation of capillaries = nerves get pinched/warm = pain ? N.B. my nose is always red due to the rosacea type 1 and I find it strange that it doesn't get worse when I feel the tingling pain.

    Has someone else experienced this and where does it lead? Please tell me this is not a precurser for type 3 or I'll probably die. I'm hoping it's a phase. Thanks.

    P.S. I only use distilled/purified water and Soolantra as my regimen.

  • #2
    I guess I'm the only one with the problem then.

    Anyway, the tingling has ceased for now. Meaning it lasted about 10 days or so since it began. No idea what caused it or why it ended so suddenly. Maybe because I've been drinking more water than a dehydrated camel. ;D

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    • #3
      Originally posted by BraceYourself View Post
      I guess I'm the only one with the problem then.

      Anyway, the tingling has ceased for now. Meaning it lasted about 10 days or so since it began. No idea what caused it or why it ended so suddenly. Maybe because I've been drinking more water than a dehydrated camel. ;D
      I get tingling, but it signals that I am about to have a big flush. Did you have any other symptoms like nose swelling.

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      • #4
        Originally posted by redtere View Post
        I get tingling, but it signals that I am about to have a big flush. Did you have any other symptoms like nose swelling.
        As far as I could tell, I didn't notice my nose swelling. I only had the tingling sensation and the feeling that there was a pressure on my nose. Made it seem 'heavy'. Sounds strange I know.

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        • #5
          F*ck me. This comes back every fortnight for like 5 days and it makes no sense. Still drinking lots of water, but that doesn't seem to stop it from tingling like crazy. It would be naive to only blame it on stress imho. I'd say stress aggravates it for sure, but it certainly doesn't start it off. If only I could tear those nerve endings out of my nose because I would.

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          • #6
            First time in over a month that the tingling feels like it's starting up again. Right before the holidays ffs.

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            • #7
              Originally posted by BraceYourself View Post
              First time in over a month that the tingling feels like it's starting up again. Right before the holidays ffs.
              Hi there I have a thing where my nose tingles and flushes every night. Like kfranke had said recently i think somewhere, I suspect what I have in my nose is really due to raynaud's / vasospasm and not so much rosacea. For me when I am having my period and my hormones are low, my nose is much warmer / stabler temp during the day and thus the nose flushing at night (when body temp naturally rises) is a lot less ... Versus when my estrogen is high during my cycle and my nose is like an iceberg during the day (I don't notice how cold it is unless I touch it) and then the rebound flushing at night is at its worst. That might be tmi, i don't know :p

              Glasses during the day/afternoon for me make it worse because they pinch off circulation to my nose, making it more starved for oxygen / blood (I'm not sure if this is technically correct of course but this is what it feels like!)

              Even if your nose doesn't flush per se, maybe it's a similar thing? My hands can tingle + get painful too from raynaud's, and they may or may not flush.

              I've found out that 800 mg ibuprofen timed right can help a lot. I get a lot of the pressure feeling still in my nose, but it looks better ....

              For me clonidine usage is what triggered my nose issues, so am trying to taper off it and onto nadolol (beta blocker). But I suspect other things might have a similar effect - very low carb diet, hypothyroid, caffeine, iodine deficiency, etc.

              For me my nose can go from ice cold (and being red) to very hot (and being red or extra red) within a few seconds.

              I'd be curious if you have Raynaud's / a "too cold" nose at times / if ibuprofen works for you / anything else!!

              PS right now my nose is tingly / painful / too cold heh!
              Last edited by laser_cat; 19 December 2017, 09:04 PM.

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              • #8
                For me, the nose tingling is a lot less when I treat the demodex mites with almond oil/tea tree oil. You have to treat the hair as well really as just treating the face means the many mites in your hair will just migrate on to your face. Ears are a great place for mites to live as well.

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                • #9
                  Originally posted by laser_cat View Post
                  Hi there I have a thing where my nose tingles and flushes every night. Like kfranke had said recently i think somewhere, I suspect what I have in my nose is really due to raynaud's / vasospasm and not so much rosacea. For me when I am having my period and my hormones are low, my nose is much warmer / stabler temp during the day and thus the nose flushing at night (when body temp naturally rises) is a lot less ... Versus when my estrogen is high during my cycle and my nose is like an iceberg during the day (I don't notice how cold it is unless I touch it) and then the rebound flushing at night is at its worst. That might be tmi, i don't know :p

                  Glasses during the day/afternoon for me make it worse because they pinch off circulation to my nose, making it more starved for oxygen / blood (I'm not sure if this is technically correct of course but this is what it feels like!)

                  Even if your nose doesn't flush per se, maybe it's a similar thing? My hands can tingle + get painful too from raynaud's, and they may or may not flush.

                  I've found out that 800 mg ibuprofen timed right can help a lot. I get a lot of the pressure feeling still in my nose, but it looks better ....

                  For me clonidine usage is what triggered my nose issues, so am trying to taper off it and onto nadolol (beta blocker). But I suspect other things might have a similar effect - very low carb diet, hypothyroid, caffeine, iodine deficiency, etc.

                  I'd be curious if you have Raynaud's / a "too cold" nose at times / if ibuprofen works for you / anything else!!
                  Well I certainly cannot relate to the first part lol. I've never taken clonidine.

                  Cold nose? Frequently. Also cold hands, so it might be secondary Reynaud's but nothing serious like those quasi frostbite pics you can find.

                  Interesting to have hypothyroidism pop up, because I'm borderline (under) when I last got tested.

                  I'll study how the blood vessels in the nose work and see exactly what vein is causing it. Maybe that will help to ease symptoms by strategically pinching it down. If not, then I can try ibuprufen like you said works.

                  Originally posted by antwantsclear View Post
                  For me, the nose tingling is a lot less when I treat the demodex mites with almond oil/tea tree oil. You have to treat the hair as well really as just treating the face means the many mites in your hair will just migrate on to your face. Ears are a great place for mites to live as well.
                  Well I have subtype 1 so I doubt it's the mites.

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                  • #10
                    Yes I have subtype 1.

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                    • #11
                      For the last three weeks I've been completely avoiding caffeine (with considerable ease, I might add) but the nose flushing has once again returned. So that's not causing it.

                      Although nowadays the start of the pain is weaker and for some reason it disappears every few hours. When it first started it wouldn't stop for the whole day.

                      Another thing I've noticed is that pressure from acne on my nose is causing some of the 'pressure feelings' I get, due to the stretching of my skin along the bridge.

                      Comment


                      • #12
                        Update

                        After a few years of not having a reason to come back to this thread I think it's time that I gave a brief update regarding my nose tingling. I still have the pain and it comes more frequently than before but at the same time it goes away faster. So nowadays I have it maybe 8 days/month in a repeating cycle of a week break between 2-3 days of pain. Symptoms are a painful electric tingling sensation on the surface of my nose on the bridge, nostrils and upper sides. There's also the slight pressure inside my nose. This is normally accompanied by congestion which is a new symptom as of 2020. I now regularly need to blow my nose. Also, a while back I noticed that there were broken capillaries on the inside of my nostrils.

                        The only temporary relief is pinching the top of my nose, pressing my forehead, or a hot shower. Using the first two techniques the pain comes back within seconds after I stop applying pressure (assuming it relieved the pain in the first place) and a hot shower works for maybe 5 minutes afterwards.

                        As I've commented elsewhere on this forum I finally decided to focus my derm's attention on this issue and she advised me to check with my doctor as she had no clue what was causing it. Well my doctor gave me two nasal sprays and a special type of paracetamol to see what works in order to tackle the root of the issue. One spray targets allergies, namely Avamys which contains cortisol, and Sofrasolone which targets non-allergic rhinitis. My brand of paracetamol is Sinutab Forte and is supplemented by a nasal decongestant called Pseudoephedrine (HCL). So far I've only been on these 3 medications for two weeks so it's too early to say what works and what doesn't.

                        Earlier this week I went to see my derm again and presented her with my theory which is that I've got some type of non-allergic, chronic rhinosinusitis caused by rosacea. The reason I think rosacea is the culprit is because of the broken capillaries inside my nose. Broken or dilated capillaries can swell the inner passageways of the nose and cause inflammation creating further issues such as congestion as the body tries to fight it. This is basically what rhinitis is (or is that rhinosinusitis/sinusitis??) which just so happens to have a paper written about its connection with rosacea. I'm not sure about the paper's validity but it's an interesting theory nonetheless: https://www.researchgate.net/publica...ntrolled_Study. Anyways, we talked about it and she brought up allergies and although I told her about my doctor's medication plan she insisted on a test for group 1+2 house dust mites and mold allergies. I personally don't think an allergy is behind this, particularly since it ignores rosacea as a factor, but I'll update this thread with the results when I get them.

                        Finally, I'd like to ask once again if ANYONE else out there is experiencing something similar regarding your nose, especially if you suffer from phenotypes 2,3 or 6 (persistent erythema, telangiectasia or ocular symptoms).
                        Last edited by BraceYourself; 11 February 2021, 09:14 PM.

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                        • #13
                          I don't recall anyone mentioning your particular nose issue, but I do recall that Violetsareblue started a thread that resulted in eight pages of posts here at RF about a special type nose flushing and Lizzy added her thoughts, while elegantsquatlobster said she also suffers from this nose flushing phenomenon so I started this thread to list the different treatment protocols offered. Wish I could be of more help to you.

                          Chronic rhinosinusitis (CRS) is listed as one of the systemic cormorbidities in rosacea.
                          Last edited by Brady Barrows; 12 March 2021, 02:46 AM.
                          Brady Barrows
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                          • #14
                            Originally posted by BraceYourself View Post
                            After a few years of not having a reason to come back to this thread I think it's time that I gave a brief update regarding my nose tingling. I still have the pain and it comes more frequently than before but at the same time it goes away faster. So nowadays I have it maybe 8 days/month in a repeating cycle of a week break between 2-3 days of pain. Symptoms are a painful electric tingling sensation on the surface of my nose on the bridge, nostrils and upper sides. There's also the slight pressure inside my nose. This is normally accompanied by congestion which is a new symptom as of 2020. I now regularly need to blow my nose. Also, a while back I noticed that there were broken capillaries on the inside of my nostrils.

                            The only temporary relief is pinching the top of my nose, pressing my forehead, or a hot shower. Using the first two techniques the pain comes back within seconds after I stop applying pressure (assuming it relieved the pain in the first place) and a hot shower works for maybe 5 minutes afterwards.

                            As I've commented elsewhere on this forum I finally decided to focus my derm's attention on this issue and she advised me to check with my doctor as she had no clue what was causing it. Well my doctor gave me two nasal sprays and a special type of paracetamol to see what works in order to tackle the root of the issue. One spray targets allergies, namely Avamys which contains cortisol, and Sofrasolone which targets non-allergic rhinitis. My brand of paracetamol is Sinutab Forte and is supplemented by a nasal decongestant called Pseudoephedrine (HCL). So far I've only been on these 3 medications for two weeks so it's too early to say what works and what doesn't.

                            Earlier this week I went to see my derm again and presented her with my theory which is that I've got some type of non-allergic, chronic rhinosinusitis caused by rosacea. The reason I think rosacea is the culprit is because of the broken capillaries inside my nose. Broken or dilated capillaries can swell the inner passageways of the nose and cause inflammation creating further issues such as congestion as the body tries to fight it. This is basically what rhinitis is (or is that rhinosinusitis/sinusitis??) which just so happens to have a paper written about its connection with rosacea. I'm not sure about the paper's validity but it's an interesting theory nonetheless: https://www.researchgate.net/publica...ntrolled_Study. Anyways, we talked about it and she brought up allergies and although I told her about my doctor's medication plan she insisted on a test for group 1+2 house dust mites and mold allergies. I personally don't think an allergy is behind this, particularly since it ignores rosacea as a factor, but I'll update this thread with the results when I get them.

                            Finally, I'd like to ask once again if ANYONE else out there is experiencing something similar regarding your nose, especially if you suffer from phenotypes 2,3 or 6 (persistent erythema, telangiectasia or ocular symptoms).
                            Sort of, maybe. I had intense pressure / pain on the bridge of my nose - almost like the bones were changing the force was so much. This was decided by doctors to be unrelated to rosacea / rosacea meds. I also had a lot of pressure against my teeth, and like a pole was ramming through the top of my head. I got several dderm/neuro opinions and they said it was the combination of recently increased cymbalta, mirtazapine (which are synergistic in norepinephrine) and benadryl (which can exacerbate fight/flight/heart rate). My symptoms overall were very similar to pheochromocytoma which is a tumor which continually cranks out adrenaline (heart rate, headache, etc).

                            That's probably not helpful for you. I do have a second thing which I call "lymph bubbles" that were moving around my face. Like dense water bubbles. I could feel one go from my cheek to under my nose - and there was so much pressure under my nose, like a lymph bubble was trapped or something. I did not say this to doctors because I sensed I would come across .... crazy. After antibiotics (flagyl) which move the lymph around in the face, the pressure in my nose is less but not gone. Flagyl also decreased my persistent redness. But I will rebound from it. I dont know if another antibiotic would have been just as good or better - just flagyl kicks in the fastest I think out of antibiotics. I know antibiotics are controversial on here with their side effects but I honestly don't care about their side effects at this point. (My doctors are fine with it too, saying sometimes indefinite flagyl is the only thing that works for people. Was told to take a high dose probiotic and monitor for pins/needles in my feet.)

                            I don't know if that helps you at all. Nose to me indicates inflammation more than anything else (nerves, blood vessels). I had an MRI of my sinuses which were clear.

                            Good luck.
                            Last edited by laser_cat; 12 February 2021, 03:15 PM.

                            Comment


                            • #15
                              Originally posted by BraceYourself View Post
                              After a few years of not having a reason to come back to this thread I think it's time that I gave a brief update regarding my nose tingling. I still have the pain and it comes more frequently than before but at the same time it goes away faster. So nowadays I have it maybe 8 days/month in a repeating cycle of a week break between 2-3 days of pain. Symptoms are a painful electric tingling sensation on the surface of my nose on the bridge, nostrils and upper sides. There's also the slight pressure inside my nose. This is normally accompanied by congestion which is a new symptom as of 2020. I now regularly need to blow my nose. Also, a while back I noticed that there were broken capillaries on the inside of my nostrils.

                              The only temporary relief is pinching the top of my nose, pressing my forehead, or a hot shower. Using the first two techniques the pain comes back within seconds after I stop applying pressure (assuming it relieved the pain in the first place) and a hot shower works for maybe 5 minutes afterwards.

                              As I've commented elsewhere on this forum I finally decided to focus my derm's attention on this issue and she advised me to check with my doctor as she had no clue what was causing it. Well my doctor gave me two nasal sprays and a special type of paracetamol to see what works in order to tackle the root of the issue. One spray targets allergies, namely Avamys which contains cortisol, and Sofrasolone which targets non-allergic rhinitis. My brand of paracetamol is Sinutab Forte and is supplemented by a nasal decongestant called Pseudoephedrine (HCL). So far I've only been on these 3 medications for two weeks so it's too early to say what works and what doesn't.

                              Earlier this week I went to see my derm again and presented her with my theory which is that I've got some type of non-allergic, chronic rhinosinusitis caused by rosacea. The reason I think rosacea is the culprit is because of the broken capillaries inside my nose. Broken or dilated capillaries can swell the inner passageways of the nose and cause inflammation creating further issues such as congestion as the body tries to fight it. This is basically what rhinitis is (or is that rhinosinusitis/sinusitis??) which just so happens to have a paper written about its connection with rosacea. I'm not sure about the paper's validity but it's an interesting theory nonetheless: https://www.researchgate.net/publica...ntrolled_Study. Anyways, we talked about it and she brought up allergies and although I told her about my doctor's medication plan she insisted on a test for group 1+2 house dust mites and mold allergies. I personally don't think an allergy is behind this, particularly since it ignores rosacea as a factor, but I'll update this thread with the results when I get them.

                              Finally, I'd like to ask once again if ANYONE else out there is experiencing something similar regarding your nose, especially if you suffer from phenotypes 2,3 or 6 (persistent erythema, telangiectasia or ocular symptoms).
                              Yes I have developed this exact problem in the last few months. It?s an intense pain either side of my nose in my sinus area. I am sneezing a lot more than usual and my nose usually needs a good blow in the morning. I just think the edema/ lymph is building up there now too. I will have the odd day when it?s ok but then it kicks off again

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