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  • litenerik
    replied
    Gil1978, read this

    Hi all, this is actually my first time here at the forum.(and sorry if my English is not that good, Im from the Nordic countries haha) Let me tell briefly how my flushing got started and how I cured it, I would be glad if these tips helped someone else as well.

    So, the first time I noticed red spots on my cheeks was about 5 years ago. They were constantly red throughout the day, but in addition I had these very embarrassing episodes of redness that occurred for no specific reason randomly at some points of the day. Even people at my workplace noticed it, but they were sort of ignoring it. But I was a shy guy back then, and when the flushing started I felt like **** as I thought that shyness increases when you are having red cheeks. I had no self esteem basically.

    I struggled from the red spots for 4 years, until I met a girl who was working as a cosmetologist(?). We started dating, and at some point I told her that the past years have been awful as I've suffered from red cheeks all the time. I asked her if there is anything I can do to cover the redness so that I could feel more confident. I had previously tried different kinds of lotions, and spent a heck a lot of money on all kinds of stuff. ( e.g. green tinted rosacea lotions and other stuff)

    Here comes the interesting part:

    This may sound ridiculous at first but trust me, it was a life changer for me. With the help of my girlfriend, we bought a make up lotion. Yes, at first I was like oh how am I supposed to wear this as I'm a man, and make up is for women, etc. Surprisingly, when I tried the make up cream, the colour of my skin became normal instantly. We only used a small amount of it. And even the burning feeling on my cheeks disappeared as I covered the red spots with that cream. Then became the big day for me: I applied the cream for the first time before work. And I was surprised that my cheeks looked completely normal throughout the day, I was feeling extremely confident, I chatted with my colleagues like never before, and when I went to the toilet to see if the cream was visible, the cream blended so well to the tone of my skin that it took me a while to understand I had really found a solution to my problem. Now I've been using the cream for 1 year now, I apply it in the morning after shower, and I put a normal moisturising lotion before I tap in the make up cream. It last the whole day and completely vanishes my blushing and red spots. I've even heard comments from friends that my cheeks are not red anymore. And the cream has not affected my manliness at all, as one can not notice Im wearing a covering make up cream. You have to look very closely if you can tell that Im using a make up product.

    The make up cream I've been using is Lumene CC cream, here in the Nordics it comes in 3 different tones, I think. And this post is not an advertisement haha.

    Some other methods I've noticed that have helped reducing the redness:
    - Cutting off coffee completely, and replacing it with tea
    - No red wine
    - Avoiding spicy foods
    -Drinking a decent amount of water

    I really hope this post helps someone who is struggling with the condition I'm having ( or actually I would say I had, as my cheeks are normal colour so I even forget that Im having the condition)

    If you have any questions, I'd be happy to help you.

    Leave a comment:


  • nat007
    replied
    Originally posted by laser_cat View Post
    Yes just to echo this - I just saw a derm who sees lots of patients for neurogenic rosacea/flushing. I asked him if laser would be a possibility for me, and perhaps since he knows so many derms he could recommend a laser practitioner for me ... and he said that 50% of his patients he sees have been DUE TO laser damage ... eek

    That is a gob-smacking statistic for sure... My derm also isn't very enthusiastic about laser or IPL for subtype 1 rosacea, especially when it is advanced and the skin is hyper reactive. I had IPL with someone called Mervyn Patterson in the UK, who had what seemed to be a good reputation back in 2005 (with an older Quantum machine - test patches I asked for were not necessary he said; it either worked or it did nothing, never made worse). But his IPL treatment made my rosacea MUCH much worse, and I suffer from it til this day. Test patch always!! As many as you need to be convinced that the machine, the settings and the filters and energy used are right for your skin

    Leave a comment:


  • Gil1978
    replied
    I am worried about the laser i just dont know what else i can do for this flushing/red face.

    Leave a comment:


  • laser_cat
    replied
    Originally posted by MissM View Post
    Hi Lizzy,

    Ugh, that's a horrible statistic! Does your derm then advise against laser work if one has the nuerogenic type of rosacea?
    MissM -

    Lol I was shocked too. My derm didn't specifically advise against laser for neurogenic rosacea ... just relayed that fact. See my post above

    //Lizzy

    Leave a comment:


  • laser_cat
    replied
    Originally posted by kfranke View Post
    ****. Fifty percent? That is awfully high. I'm glad I'm being super careful, then. I'll be driving two hours to see my V-Beam doctor. I was going to just do IPL here in my hometown, but the place I went to was a Med Spa, and the more I thought about it, the more it started to sound like a bad idea.

    The guy claimed to have lots of experience treating vascular rosacea with IPL, but he's not a dermatologist, and something about it just didn't feel right to me. So I'll be driving two hours out of town to see a guy who is both a board certified dermatologist and with years and years of experience (and proof) of successfully using V-Beam on rosacea. Am I pleased about the drive? No, and the cost will be greater than if I'd just done IPL. But I have done research and I have found WAY more reports of serious adverse reactions with IPL than with V-Beam.

    In short...be very careful who you choose to do your laser treatment. We're riding a very fine line here between helping and hurting ourselves. Trust me, I'm scared out of my mind. But it's something I want to try, so I'm going to, albeit very, VERY carefully.

    Lasercat, do you think you will consider trying a laser treatment in the future? What else did your derm say about lasers? Anything noteworthy?
    Well, one thing to keep in mind I suppose is that I know this derm only sees referrals/difficult cases, so the 50% is going to reflect that. I know he has patients fly in to see him. He said sometimes patients get worse with the first laser tx, while others do ok until the settings are turned up too much for them.... That's all I know from him. I don't think it is the norm to have laser damage.

    I'm not going to consider laser right now I think. However, I have read many ppl on this forum who finally get relief from the right laser/the right practitioner. And a couple ppl with facial erythromelalgia (sort of like very painful rosacea) who say vbeam helps somewhat ... So, it's tempting, but perhaps down the line when there are absolutely no more meds for me to try! (Just starting plaquenil, eg.)

    Probably wise not to go with the med spa! Do keep us updated. I'll keep my fingers crossed for you

    Leave a comment:


  • MissM
    replied
    Originally posted by laser_cat View Post
    Yes just to echo this - I just saw a derm who sees lots of patients for neurogenic rosacea/flushing. I asked him if laser would be a possibility for me, and perhaps since he knows so many derms he could recommend a laser practitioner for me ... and he said that 50% of his patients he sees have been DUE TO laser damage ... eek
    Hi Lizzy,

    Ugh, that's a horrible statistic! Does your derm then advise against laser work if one has the nuerogenic type of rosacea?

    Leave a comment:


  • kfranke
    replied
    Originally posted by laser_cat View Post
    Yes just to echo this - I just saw a derm who sees lots of patients for neurogenic rosacea/flushing. I asked him if laser would be a possibility for me, and perhaps since he knows so many derms he could recommend a laser practitioner for me ... and he said that 50% of his patients he sees have been DUE TO laser damage ... eek
    ****. Fifty percent? That is awfully high. I'm glad I'm being super careful, then. I'll be driving two hours to see my V-Beam doctor. I was going to just do IPL here in my hometown, but the place I went to was a Med Spa, and the more I thought about it, the more it started to sound like a bad idea.

    The guy claimed to have lots of experience treating vascular rosacea with IPL, but he's not a dermatologist, and something about it just didn't feel right to me. So I'll be driving two hours out of town to see a guy who is both a board certified dermatologist and with years and years of experience (and proof) of successfully using V-Beam on rosacea. Am I pleased about the drive? No, and the cost will be greater than if I'd just done IPL. But I have done research and I have found WAY more reports of serious adverse reactions with IPL than with V-Beam.

    In short...be very careful who you choose to do your laser treatment. We're riding a very fine line here between helping and hurting ourselves. Trust me, I'm scared out of my mind. But it's something I want to try, so I'm going to, albeit very, VERY carefully.

    Lasercat, do you think you will consider trying a laser treatment in the future? What else did your derm say about lasers? Anything noteworthy?

    Leave a comment:


  • laser_cat
    replied
    Originally posted by kfranke View Post
    Yes I would advise against using vasoconstrictors like Rhofade and Mirvaso as they are not a real treatment and only a temporary fix with the potential for serious consequences later.

    Lasers have helped a lot of people, but they can be dangerous too if not used properly by an experienced practitioner. Make sure the derm that does it has experience. And yes, always do a patch test first! I'm going in for VBeam patch test myself next month. Do let us know how it goes for you. Best of luck! 😊
    Yes just to echo this - I just saw a derm who sees lots of patients for neurogenic rosacea/flushing. I asked him if laser would be a possibility for me, and perhaps since he knows so many derms he could recommend a laser practitioner for me ... and he said that 50% of his patients he sees have been DUE TO laser damage ... eek

    Leave a comment:


  • kfranke
    replied
    Yes I would advise against using vasoconstrictors like Rhofade and Mirvaso as they are not a real treatment and only a temporary fix with the potential for serious consequences later.

    Lasers have helped a lot of people, but they can be dangerous too if not used properly by an experienced practitioner. Make sure the derm that does it has experience. And yes, always do a patch test first! I'm going in for VBeam patch test myself next month. Do let us know how it goes for you. Best of luck! 😊

    Leave a comment:


  • ephemerality
    replied
    Originally posted by Gil1978 View Post
    Well after 3 good days using the cream, rebound flush has just happened.
    No more cream for me, it will be laser as my last resort.


    [/QUOTE]


    as most likely you already know this, but please be very careful with laser too. definitely do a patch test first and better not to rush into a whole face treatment.

    good luck to you and keep us updated with how things are going...

    Leave a comment:


  • Gil1978
    replied
    Update

    Well after 3 good days using the cream, rebound flush has just happened.
    No more cream for me, it will be laser as my last resort.



    Originally posted by Gil1978 View Post
    [





    Has anyone tried this new cream.


    QUOTE=Gil1978;336162]HELLO ALL

    Well its been a few weeks and i went back to see a different derm yesterday. He said the flushing is very hard to fully treat and the laser treatment can definitely help. Also gave me a prescription for a NEW cream called RHOFADE. Told me to stay on Clonidine and Propanolol ...but that was really it.. no real ground breaking news unfortunately ...

    Gil
    [/QUOTE]

    Leave a comment:


  • Gil1978
    replied
    [



    Has anyone tried this new cream.


    QUOTE=Gil1978;336162]HELLO ALL

    Well its been a few weeks and i went back to see a different derm yesterday. He said the flushing is very hard to fully treat and the laser treatment can definitely help. Also gave me a prescription for a NEW cream called RHOFADE. Told me to stay on Clonidine and Propanolol ...but that was really it.. no real ground breaking news unfortunately ...

    Gil[/QUOTE]

    Leave a comment:


  • Gil1978
    replied
    HELLO ALL

    Well its been a few weeks and i went back to see a different derm yesterday. He said the flushing is very hard to fully treat and the laser treatment can definitely help. Also gave me a prescription for a NEW cream called RHOFADE. Told me to stay on Clonidine and Propanolol ...but that was really it.. no real ground breaking news unfortunately ...

    Gil

    Leave a comment:


  • kfranke
    replied
    Originally posted by nat007 View Post
    This has been my experience as well. It was my dr. (Anthony Chu) who said that to me btw, about having to break the flushing cycle for the flushing to decrease and for rosacea to stabilize. At that moment I was literally flushing non stop. Days, nights, weekends, holidays, at home, in the supermarket. I thought after some year+ of that, my vascularity was completely ruined and my skin too. But medication in my own case did help to make matters more calm and to bring the flushing frequency down, and some days I look fairly pale now (never for long, mind you), but still; it's not one long dark progressive road to misery necessarily. Try to avoid flares for a longer time and you might actually develop a higher threshold to flush in time. This is especially so if someones flaring has a clear cause. For instance hormonal disrupture. Or an allergic reaction. Or a histamine reaction or overload in the body. Then tackling those underlying problems can also make the rosacea go calm again in time, even it is even possible when initially someone flushed and was red all the time.

    Thanks for the interesting link!
    No problem. I think that it's something everyone with flushing as a symptom should read! 😊

    Leave a comment:


  • nat007
    replied
    Originally posted by kfranke View Post
    This is huge and very, VERY good advice. My rosacea and flushing have improved because I've been taking steps to minimize my flushing as much as I possibly can. The less you flush, the less red your face is, and after a while some of those dilated blood vessels will start to recede--or rather, they won't open as often or as easily.

    I'm of the belief that rosacea is reversible, to a certain extent. I think this because of what I've been observing in my own condition and also, because of some of the papers I've read regarding rosacea and flushing. The most useful one I've read by far has been this one right here. https://rosacea-support.org/the-warm...ways-knew.html

    This discusses the science behind the warm room flush and ways in which you can help minimize your flushing. It's a long article, but well worth reading, in my opinion.

    Hope you're doing well,
    Katie
    This has been my experience as well. It was my dr. (Anthony Chu) who said that to me btw, about having to break the flushing cycle for the flushing to decrease and for rosacea to stabilize. At that moment I was literally flushing non stop. Days, nights, weekends, holidays, at home, in the supermarket. I thought after some year+ of that, my vascularity was completely ruined and my skin too. But medication in my own case did help to make matters more calm and to bring the flushing frequency down, and some days I look fairly pale now (never for long, mind you), but still; it's not one long dark progressive road to misery necessarily. Try to avoid flares for a longer time and you might actually develop a higher threshold to flush in time. This is especially so if someones flaring has a clear cause. For instance hormonal disrupture. Or an allergic reaction. Or a histamine reaction or overload in the body. Then tackling those underlying problems can also make the rosacea go calm again in time, even it is even possible when initially someone flushed and was red all the time.

    Thanks for the interesting link!

    Leave a comment:

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