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  • #16
    Originally posted by Alba View Post
    Mistica,

    Sorry for the stupid question but what does Cpn doctor mean?

    Alba
    It's not a stupid question at all Alba
    Cpn
    It stands for chlamydia pneumoniae and you might find this thread interesting:

    http://www.rosaceagroup.org/The_Rosa...ight=chlamydia

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    • #17
      Originally posted by snuffleupagus View Post
      Alba - I am in Toronto, Canada.

      Nope unfortunately cant get it any sooner. I tried. Ive been put on a cancellation list, but really doubt ill get in sooner as they are busy. Some other rheumies are booking into August!!!
      Have you tried Vbeam for the burning and flushing as i have had about 7 treatments from a clinic in toronto and it has helped quite a bit.I haven't had a treatment in 1 1/2 years cause things are a lot better.i still flush but not as bad.If you can afford it it's worth a try.

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      • #18
        My appoinment was also about 2 months away. But thankfully my primary doctor called the rheumatologist office and got me an appmt much faster within 1 week of his call. Maybe your doctor can do the same? Worth a try? This specialist appmt was for 3/12 yet my dr. got it so quickly. When i went there i was the 1st and no other patients were there. I dont understand why these specialist can be kind of mean at times. I mean i tried to get in earlier, told them it was urgent and they said i was on their cancelation list other words "dont call us we'll call you". Unfortunately i didn't like the specialist much, no real help or inside in to what is going on with me. He is just waiting for lab results.

        Thankfully at the same time i had made that appmt i had made another with another rheumatologist for March 2, so i havent cancelled will probably go to him also maybe he will be nicer and with more insight as to waht is going on with me.

        I looked at the specialist Mistica mentioned in Sacramento, he sounds like he knows much about auto immune deseases etc. Wish i lived near...
        using elidel at night, taking atelenol, had 2 vbeam laser treatments, 46 year old female

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        • #19
          Vbeam in Toronto

          Have you tried Vbeam for the burning and flushing as i have had about 7 treatments from a clinic in toronto

          mick3-may I ask what clinic you used? I too am interested in getting vbeam. Thanks.

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          • #20
            They are very good there and have done hundreds probably thousands of treatments on people.Not cheap, not a cure but did it help ?Yes for sure.Best results are seen months after your treatments and your face has time to recover.

            http://www.baywoodclinic.com/Toronto...n_Rosacea.html

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            • #21
              Been to Baywood for Vbeam like 2.5 years ago. They were nice and all, but then told me they could do hair removal on my legs for me (i was tired of shaving!) Later found out from somewhere else that my hair was way too fine and thin and blond to have laser work and it would be a waste of money. Were they trying to scam me at Baywood then? Not sure....

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              • #22
                Sorry to hear that, snuffleupagus.

                I actually had an almost identical experience a couple years ago. I finally got an appointment with a dermatologist for my rosacea. After waiting about half a year, I go to the appointment. The dermatologist walks in, doesn't even look at my face and says "There's nothing I can do about redness. Some people just have red skin".

                Then, to top it off, he gave me cream for acne - something which I could care less about - that has the side effect of making your face red. I was out of his office in practically two minutes with about twenty tiny tubes of acne medication I had no need for.

                It actually makes me laugh thinking back on it. So ridiculous. Hopefully you can do the same about your experience.

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                • #23
                  Originally posted by snuffleupagus View Post
                  Been to Baywood for Vbeam like 2.5 years ago. They were nice and all, but then told me they could do hair removal on my legs for me (i was tired of shaving!) Later found out from somewhere else that my hair was way too fine and thin and blond to have laser work and it would be a waste of money. Were they trying to scam me at Baywood then? Not sure....
                  On my last treatment she tried to tell me i didn't need it but i drive 3 hours to get there so i said go for it anyway,That was $500+ they were willing to throw away.

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                  • #24
                    Who knows maybe they just didn't know. I can only say what my experience was.

                    Well lets add another doctor to the list - the supposed best rosacea doctor here, the best specialist at the Sunnybrook Hospital just said "there's nothing i can do." Funny enough every treatment I have tried pretty much I came up with!!!! Nuts eh?! Some specialist. So he's giving up...i asked about the burning/flushing and what we can do - and he came up with nothing and basically said good luck! What a jerk. I'm feeling so angry, upset, and unsure what to do now since i'm left with nobody to help!

                    These doctors are a joke. If you say you're a specialist in something I expect you to actually have suggestions and know about things. I came up with mepacrine, i came up with laser, i came up with ivermectin (which he declined), i came up with rifaximin/checking SIBO (which i have yet to start my course of rifaximin beause right now im dealing with intense sinus pain that i want to get rid of before trying rifaximin). He told the stupidest ideas - use steroid eye drops on my face...Nice solution. Good thing i never tried it. THat was his solution - not like i could stay on them for months! Hello, rosacea rebound?! I know way more about the causes of rosacea and possible treatments, as well as new drugs than he ever did. He never even heard of a sulfacetamide/sulfur foam (which i found on my own and he was all like "what's this?! WOW!!!"). If you're a specialist you think you would you be up on this stuff, it's not like sulfacetamide is a brand new thing here!

                    Anyways, enough ranting. I need to go to a specialist who knows how to treat rosacea, no more going blind with laser treatments either. Looks like i'm off to England!

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